A CT has high radiation so I would choose MRI....
We have always used antibiotics first - mostly bc she’s in extreme pain. Plus I’m paranoid it will move unto her kidneys. I’d do the abx if you’re in pain. Her bacteria is not common so we’re in a...
Did they culture the bacteria? LOTS of water. D-mannose is good. I use a probiotic with d-mannose in it (hyperbiotics). Marshmallow root tea also good. My daughter has had chronic uti’s since May...
I had it a few years ago. No lesions. It’s just a regular brain mri ran in particular sequence I believe, then ran through neuroquant software. I can’t remember exactly, but i think mine scored...
Rw- my husband and all 3 kids tested positive for band 41 in 2015 ( i have too). My belief is that alone it does not indicate lyme. My husband also had a test done at the dentist that did find dental...
I saw him in 2016/2017. Overall it was good although in the end they didn’t really know what to do with me. He definitely tests for many things and was the most comprehensive doc i’ve ever seen. Not...
Mcp used to help me too. Doesn’t anymore....
I had no itching either. Well, my nose itches at night but i don’t know if that’s related. Surprisingly (or not) my daughter did have the other “itch”. So i guess that’s where i got it. Very common...
I slept better after taking a dose of pyrantel pamoate (Reese’s brand OTC). If you clench your teeth or have restless leg syndrome - something to consider....
I have lots of allergies now. Skin and blood testing. I find that some antihistamines make me VERY grumpy. I snap at everyone! They don’t help much anyway so I’ll just suffer through. Nic - what are...
She has delayed it but still plans to get it....
My dad (who was in the hospital with covid 3 weeks ago) got his second shot. He was told that it helps lingering symptoms. I will update on how he does....
*Some* Long haulers are getting better after getting covid vaccine. One theory is they still have low level infection (like chronic lyme) and the vaccine bolsters immune response to seek and clear....
I think pfizer is in phase 2 trials for their lyme vaccine. It does use OspA which was the target with lymerix....
This is just another theory, but perhaps for those that a specific vaccine helps maybe their issue is related to what they are being vaccinated for. The vaccine then alerts the immune system to seek...
Pots - my parents had 1st shot and got infected a few weeks later. My dad, who has several bad things already going for him (overweight, heart disease, prediabetic), ended up in the hospital. Very...
I’ve read Moderna uses 100 micrograms of vaccine and Pfizer uses 30 micrograms. I haven’t validated that but if it’s true perhaps that’s why Moderna elicits a stronger immune response....
Good to hear, Garzie. I am off it. For some reason my tinnitus is much louder on it. I thought it had helped with my energy and back pain but I am still the same off it. Back pain is SO much better...
Sorry I can’t be of much help. I struggle with the same issue. I started thinking maybe it was hormonal bc I notice sleep is bad before cycle and then seems to get a bit better. Idk really. Like...
They make dental probiotics to chew after brushing teeth. No idea if they work or not but i bought hyperbiotic one off amazon. Also, i recently bought a “hydroxyapatite” toothpaste. Potentially...
I’m not sure if you guys have talked about this but some covid long haulers are actually getting better after getting the second mrna vaccine. I haven’t read through all of this thread. Doctors have...
How do you take peptides? Injection only?...
Yes, a urologist did do an extended culture. Nothing showed. He was the first one to tell me he suspected yeast. I think I am just overly sensitive to yeast. I never really researched all the uribel...
Also, mine started while battling a yeast infection. I took monistat 1 and it felt like I had put acid “up there”. I was in shock that it hurt so bad. The next morning I was numb in that area and by...
Urinalysis was normal. Besides uribel, nothing else helped with the first occurrence. I had not found the hyperbiotic probiotic at that time. I also drank marshmallow root tea all day long but I’m...
What kind of pain are you having? I get frequency, dull ache in bladder, urethra burning. All kinds of things can flare it for me - but mostly different meds (abx, herbs - like berberine), hot baths,...
I took xanax (which is similar) for a few weeks and it was the only thing that worked for sleep issues. By week 2 though I had to up the dose to get it to work so I stopped it since I didn’t want to...
I’ve been looking at this recently as well due to my longterm urinary flares which never test positive for bacteria. I still suspect fungal. I recently decided to try LDI again - this time for yeast...
Yes, i developed shaking in my jaw while taking dmsa ( i think i took it every 3 or 4 hrs for 3 days). I was not taking ala when it started. The tremor happens when i lay on my side. It is better now...
I had mercury fillings removed in 2008. Dr. H had me take ALA (xymogen 600 mg, 1x a day). I recently restarted it again along with liposomal glutathione. I wanted to see if perhaps it would help me...
I have 2 strains of Blautia identified through Viome, but unfortunately they do not give a level. I initially did Wahl’s protocol (everything but the organ meats - can’t do that!) when I developed...
You can also get yeast/fungal uti which is not tested when they are looking for bacteria. Microgendx is apparently a better test. I was thinking of asking my doctor for it. I’ve struggled with...
Two of my children have had it - August & December. I tested antibodies and was negative after the first one had it. Would like to check again since I did have a mild cold after my second one had it....
Hi WBF. Sorry you are having this issue. I always liked hyperbiotic for women (contains dmannose) for relief of urinary stuff. Bought it from amazon and would take max dose. I doubt any probiotic...
I took mymycolab test. I know the guy who created this test recommends itraconazole for mold treatment (colonization). Maybe something to try. https://mymycolab.com/ ...
Good luck. Thank you for updating as you go through the protocol. I’m sure it will help many....
Dcd - it did show on my gi map but not high levels. I did have high dientamoeba fragilis. Which is another somewhat controversial one....
Good luck dcd. I find sometimes when i take s. Boulardi that my bladder calms down. However, not all brands worked - so I’m sure viability has something to do with it. Ortho molecular brand works,...
Maybe sacchromyces boulardi? I’ve looked into yeast many times since that is how my issues started. I don’t have a yeast overgrowth but suspect I’m sensitive to it. I know every allergy test I’ve had...
Also I did have some gi issues after going to Mexico in my 20’s. Possibly was blasto....
I also had: Blastocystis hominis (protozoa)- rare amount Endolimax nana (protozoa)- few I have no gi symptoms so didn’t do anything. I’d go after the yeast too....
Nic - I took another break and just started back at .5 mg. I plan to get back to 1 mg quickly and I’ll let you know if the stiff neck returns. That would be weird but maybe a good sign for us both!...
Does your doc have you on probiotics? When I saw dr. H he had me on 3 different ones. I was also on nystatin when taking antibiotics. I chose not to do the dapsone protocol while under his care so I...
Low as in .5mg? I quit the first time bc my llmd started me at 1.5mg. Way too high for me....
My stomach hurt a little but that’s it. I took it before bed. I think i then transitioned to twice a day for 2 wks. I’d have to look it up....
Girlie - it makes almost everyone feel worse. The key is starting low enough that you don’t feel bad and possibly switching to morning dose if it’s effecting sleep....
I had no bad herx from meds. But that is just me - I do well with parasite prescriptions but if i take one antibiotic i will have severe insomnia and interstitial cystitis symptoms. I had pinworm...
Astroman - I’ve been meaning to thank you. You posted awhile back about si joint. I’m not even sure what the post was about but it spurred me to search online for exercises. I’ve been doing bridges,...
It gets jelly & sticky and scrubs your gi tract. Children can even take it. I didn’t notice anything....
Parawellness is a good test. I spoke directly with Dr. D’Angelo before I took the test and he was very helpful with my questions. He has also been interviewed by Scott Forsgren (betterhealthguy) - so...