They really don't, and she was very quick to address my circulation problems and hypotension as a cause of my bloodclots. They won't even hear of my tick infections since they are already treated...
Let's hope so:-) Another thing i forgot to mention is that i have damage to one of the valves in my left leg, due to a bloodclot back in 2012. I wear compressions but it's not helping my Orthostatic...
Yes, that would be me. It has gotten better although i haven't done anything for it yet. The burning and stabbing/needle sensations in my legs is not that severe atm. Anyways..I was hospitalised for...
Also, is this condition the same as POTS?...
Hi, was recently diagnosed with this (from what i was told, it's reduced BP during activity/standing up). Apparently had it for many years, but for the last 6 months it has gotten so severe that i...
Thanks, i'll look into it. Also read some about lumbrokinase and nattokinase as natural bloodthinners. Should be very effective, read that it can reduce clots by 48% within 2 hours. But not sure if...
Bee Venom, right? Just to be sure.....
I was tested for it in 2012 when my first clot appeared, negative back then. I guess they have tested me for it this time as well. I will know at my appointment tomorrow. I'll keep you posted!...
Indstead of stopping or not starting, just wonder if one can be put on shots for a period? I did this for some months during abx protocol....
Hi all, I've had lyme, bartonella and babesia for almost 13 years. I got my first blood clot in 2012 (leg/lungs), right before my lyme diagnosis. They found no underlying cause of my clots accept for...
Hi, Buhners neurocore contains cordyceps sinensis, the one i'm taking in capsule form is cordyceps militaris. Is there a difference, anyone know? I notice that many brands, including Stamets/Host...
I haven't had my home tested, but will look into it. Thanks. My house is from 2007, and i have lived there since 2018....
Hi all, my previous post is here: https://www.healingwell.com/community/default.aspx?f=30&m=4178785&g=4178819#m4178819 I've had neuro lyme for 13 years. I have to ask in regards of pains. In many...
I'm in Norway. I just started paleo, so we'll see how that goes. Is there any way for the neurologist to tell if it's autoimmune neuropathy or not? Do they assume since i have an autoimmune...
Also I read about different treatments for SFN. Creams, Steroids, IVIG, antidepressants and what not. They say that antidepressants will help, even if you are not depressive? Or is IVIG the only...
Not yet, but I will. My doc referred me to my local hospital yesterday. I really hope it won't take long for an appontment. I also looked into private practices in my country, noone is doing the...
Seems to be the problem in every post i read, noone knows......
Anyone used this product with success lately? When I do a search I only find older articles. Seem to have a lot of bad reviews, just thought i'd ask if anyone recently tried it with success. I have...
Thank you, dcd2103! I will probably send you an email later if that is OK. I will see my doctor monday next week. I'll ask her to refer me to a neurologist once again for the skin biopsy. This will...
Thanks! Do you know how they usually treat it? Also read that some of Buhners herbs is supposed to be good for this.....
And I don't have diabetes btw..Seem to show up when I do a google neuropathy search.....
Thank you for reply! I saw a neurologist just under 6 months ago. I did needle testing for muscle weakness, and aslo electromyography (EMG). I was told that this was for neuropathy. The tests I did...
Hi, my doc is not lyme literate, but he still helps me in every way that he can. I have neuropathy and a few autoimmune dissorders and i wonder if you guys know of any good articles that explains the...
I think they're working and seems that they're doing it's job, but the reactions is quite severe, so may be wise to back down on my dose perhaps.. Haven't been using quercetin for a long time, I...
Thanks for this! Yeah, it's really hard to tell what it can be. But neuropathy would be nervedamage, right? Thought maybe that would show on my EMG test.. Chinese Cat's claw is going to be my next...
I'm not at all sensitive to touch either.....
Hi all, I've had lyme, bartonella and babesia close to 15 years now. Started the Buhner last week. Did one week of JK (Green Dragon), 500mg - 4 caps a day. Did not notice any difference really. This...
Thanks. Yeah, I see that on different FB pages as well that a lot of people start off at 500mg and has to be rushed to the ER within the next few days.....
Thanks a lot for your reply. I will check into All Day Chemist as well to see if they ship to Norway. Maybe i'll wait a while to see how more people are doing, and go the herbal route meanwhile....
Hi all, my regular familydoctor is very open for discussion in regards of new treatments for Lyme disease. And I have been to many so called LLMD's here, who have only turned me down for several...
Tickbite666, thanks for reply. May be a stupid question, but what do u mean by trying a scaled back abx protocol? So you did Tini 5 days on, 2 days off, did i get that right? And if I were to do one...
Hi all, need som help about further treatment. Have neurolyme, bartonella and babesia since 2007. First treatment started in 2013 after i got diagnosed. 4 months of Minocycline, Rifampicin and...
Hi, anyone using these with good results? Just wonder if they are as good as tinctures (I'm using woodland, just started so only a few drops of 2 different herbs so far). Or if tinctures are better...
Hi, posted this also on the Lyme forum a while ago. The skin on my upper hands are paperthin and sort of red/blueish. I took a biopsi to test for something called Acrodermatitis which can be linked...
SierraDon, sorry for late reply. I took a biopsi from my upper hand since it was kind og red and blueish from time to time. Not sure if ACA only can be found on your legs?? But it came back positive...
Anyone tried this product with good results? Or will it be better to take them individually for higher doses?...
Thank you, sebreg. I will watch it!...
I'm guessing that many skin disorders can be related to lyme disease. I wanted to test for something called Acrodermatitis. Maybe it's more common on the legs, but my hands are red/blue from time to...
Girlie: yes i have the book, but haven't read a whole lot of it yet....
Thanks guys!...
Thank you, sebreg! I think it will take a few weeks for me to get the babesia herbs. You think it will be ok to stop until i get them, and then continue on malarone with herbs? Or will it be a...
Hi, just finished a course of 4 different abx for bartonella and lyme, plus malarone (750mg x2 day) and primaquine for babesia. I had to stop the abx due to yeast overgrowth, but was adviced by my...
Hi, Is it necesarry to do both when you have neuro borrelioses? Thanks!...
Hi, diagnosed with bart, babs and lyme 2012. Can scratchmarks (red or white) from bartonella infection suddenly appear on stomach/forearms, and then dissappear few days/hours later? How do you attach...
Hi all, i'm just trying to figure out what is happening in regards og symptoms. I just finished this protocol (30 days): Atovaquone: 3 tablets morning, 3 evening Primaquine: 1 tablet morning...
Sebreg: u think it will do any harm to go off the protocol for about a week to get some rest? Been on it for 45 days now, no progress so far. Maybe as u said that it is overly effective, and maybe...
Primaquine is for babesia also, and yes it's malarone. My doc is aware that rifampin makes malarone less effective, and yet i hear lot of patients are given this combo. I had great success with...
Thanks! I'll b sure to ask my dentist. But if i stop abx soon, maybe then it will b ok to do amox?...
Hi, I am currently on this protocol, on it for 45 days, not sure for how long though: Atovaquone: 3 tablets morning, 3 evening Primaquine: 1 tablet morning Clarithromycin: 1 tablet morning, 1 evening...
Hi guys, you can read my previous posts on my protocol here: https://www.healingwell.com/community/default.aspx?f=30&m=4047171&g=4051320#m4051320 and here:...