For the last month or so I have been waking up at 3 AM and craving sweets. I mostly end up eating ice cream (a couple spoonfulls) and marshmallows. I now have marshmallows on hand to pop in my mouth...
Girlie I think you are right about where Im going. She is a PA and I believe she's been there for a while. What you mentioned about Bart treatment is sort of what Im talking about. I was on Mepron...
I may be wrong, but I believe that referral from your neuro is very much part of the "system". Before I knew I had Lyme I had a similar experience, I had a normal CT despite severe back pain but...
Sorry, long question and vent... After over a year in treatment has anyone saught a 2nd opinion from a different "Specialist"? I have been going to a very well-known lyme specialist for over a year....
Jarrow-dophilis by Jarrow. No refrigeration and there is also a Saccharomyces Bulardi that helps complement . Neither require refrigeration. They also offer travel size packs....
It still baffles me that over the last 5+ years everyone around me has had colds and flu. from the typical office cold that goes from person to person every year, to the colds and flu that my...
My tinnitus has been horrible since starting treatment two years ago. It got worse and worse...to the point of unbearable. For me it seems to be in my brain also, it is like a screeching scraping...
Well it does sound like you have a pattern - somewhat better when you're 'on' the abx. I try to go back and decipher my notes..and I can't make anything useful out of them...no trends at...
Girlie I think I am similar to you...I still havent developed a distinct pattern, except for with the headaches. I tend to write everything down, which is very difficult to go back and analyze, but I...
Hey Girlie, thanks. I'm on a 3 wk on/ 2wk off schedule and I was taking Minocycline, Ceftin, Septra DS, Mepron and Enula in the second week. I only take one anti-malarial in the third week. For...
I have days where I feel like my head is on fire, not feverish, just like my head and face are emanating heat. Not sweating either like you said, though I do have sweats but those are different....
I tend to feel somewhat better when on, even though I have slight nausea and more exhaustion. But it seems like as soon as my break comes, things go berserk. Pain, crushing headaches, etc. I see a...
Doxy was my first abx, about a week into taking it my tinnitus started and hasnt' gone away since. It is 24/7 screeching/scraping sound...like nails on a chalkboard but never ending. Sometimes it's...
I have noticed that certain symptoms are routinely worse at night, while other certain symptoms are routinely worse in the morning. Some times I get a few hours of relief (from some symptoms) in the...
Hello all. just looking for some feedback on this topic. A little background - I never really had depression until about 10 years ago, I had three traumatic events happen, pretty much simultaneously...
I don't have drip sounds...but I have phantom sounds of people talking, like when I was driving, even with the radio off I would hear a murmur as if I had an AM talk station on. Another sound I hear...
Honestly...Klonopin. I hate to recommend drugs but it's one of the least addictive anxiety medication and there are several ways to wean off of it when/if necessary. I understand the feeling of...
I know this thread is a few years old, but hopefully someone who has seen this Dr. B can give me advice. I have seen some of his talks, and he is in NJ which is good for me. But would you consider...
Thanks. I have definitely had more prominent symptoms on the off days, now that I think about it. I was just expecting a mother load given the amount of abx....
I know everyone responds differently to treatment, but I wanted some insight on what I should be expecting, in general. I just finished my first two weeks of pulse treatment with 3 abx taken 2x/day -...
Thanks. I had been taking doxy 200mg/day for several months and had a few weeks off. So I thought I would handle it ok. I won't be taking anything tomorrow as I'm on the mwf...
The OP is seeing Dr. J. which means it won't be daily dosing. And..he usually has a schedule something like two weeks on and one week off. That makes a big difference. But, definitely starting one...
Girlie - I started Gaba about two months ago at 100mg 2x/day. I've slowly titrated up to 300mg in AM and 400mg in PM. (RX is for 300mg - 600mg in PM but I like to move slow.) As far as response, it's...
Thanks PeteZa...I received a written schedule and it just says starting 4/3: AM - all three meds / PM - all three meds. I was wondering about spacing...oh well :) I got through that bit!...
Thanks, actually I had a small bowl of kashi with some almond milk and I actually feel better. It was an intense, acute response I guess. Also, for anyone taking Gabapentin, would an hour separation...
It's only been an hour since I took my first 5 pills and I'm extremely dizzy and in and out sleepy/annoyed/sick. My hands are feeling cold. I took Doxy, Ceftin and septra. I don't even think they...
Achieving balance, equilibrium, is what we strive for personally, culturally, politically, spiritually, it's so elusive....
I have been taking Jarro-dopholus EPS 25 bn per capsule; 2 caps, 2-3 time per day plus Saccharomyces Boulardi+MOS 5bn per cap; 2 caps, 2-3x per day with the probiotic. These have been working really...
Another reading one: I get emails from the ASPCA, and the one I got this AM subject said "Help End Dog Fighting...". At first glance I read "Help End Dog FOOD Fighting"...
Thank goodness for hardwood floors and wool socks so that with my super stiff legs and back I can slide around instead of trying to bend my legs to walk from room to room!...
I can't see the pics, but I can tell you I have several variations of what I think are "Bart" marks. I get something like a streaky red line, about the width of a pencil, with a little curl as it...
I have this too, more in my hands and it changes in intensity all the time. I've been told Turmeric or Curcumin. It was recommended to look for Turmeric with Meriva....
I'm with you...BAD day today. But, a month or so ago I was at work and when going out to grab lunch I put on two different shoes on at work, and walked a few blocks in the city to get lunch in them....
Good advice Traveler. I would also add that while it will help in the short term, tolerance develops quickly, and if you are treating or going through this for a long time, adderall will not be as...
I have mostly had my neurological and migrating pain symptoms on my dominant (right) side, though they do occur on the left, just not with the same intensity and/or persistence. I have never had an...
Mostly same for me, though lately strong sporatic twitches in my left thigh. Actually, overall I'd say most frequently in my thigh, upper right arm and hands and inside my ears. I also have...
Trader, while my meds will be different, I am extremely anxious about starting them...as I will be taking three abx at once to start, plus over 9 nutraceuticals x day and other meds for nerve pain,...
Hey Kat, that is funny to me because I have the same issue on a daily basis... Reading words that aren't there. In my work today I read the sentence "...when it acquired certain assets and...
Thanks!...
Just bumping because I found this really helpful! Exactly what I was looking for....
:) you are lucky. I seem to have a strong reaction to something...but it could be one of the infections I have. I have these severe coughing episodes out of nowhere...my chin starts to itch, but not...
How does everyone manage everyday household dust and cleaning. I know personally I have been extremely sensitive to dust/mildew/mold, etc., now more than ever, and the cleaning is becoming...
I get this as well occasionally where my toes connect to the ball of foot. a lot of times for me its the pain in the ball of foot, as if there are stones under my skin that hurt when I take steps. I...
I appreciate the spreading of awareness, but after reading this I am not in agreement with the POV. First of all, they blame it on people right from the start. Guess what, people have from the...
I've been seriously considering getting some guinea fowl this spring...I've been on the fence because of having a lot going on...but I think it will be worth it. I've heard they make an enormous...
Hello and welcome. I can completely relate to the low back issue. That was part of how I ended up getting tested for Lyme. Today the back remains my most incapacitating symptom, and it also remains...
I am with you, unfortunately. My tinnitus started 1-2 weeks after starting Doxy in Aug/Sept 2016 and has only gotten worse over time. It never stops...it's there when I wake up and go to sleep....
Wow, a lot of insightful info in this thread...at least for me. I think Bart is causing a lot of my symptoms and these short cycles have been notable, some 24 hours, some 5-6 days...one thing I get...
It's a state-by-state thing. Typically your state will list out the infection and timing for reporting. Also, some diseases are tracked, even with an indeterminate test result, because some of these...
Girlie that is good news about your doc. I have no PCP because they all stink and I don't have the energy to keep searching. I have been struggling with the mammogram myself. I haven't had one and I...