I will be updating my last thread as soon as I have time, but for now I just want to let those who have been told (by Dr.s), or who understandably think - that CT...is somehow more equipped and...
Yes...unlike me, he TOTALLY more than qualifies on paper for immediate treatment and further testing (even within the mainstream medical guidelines and ridiculous tests), with all those positive...
His Western Blot results were as follows: LYME IGG WB - POSITIVE - High 18 KD-IGG BAND - REACTIVE - High 23 KD-IGG BAND - REACTIVE - High 28 KD-IGG BAND - REACTIVE - High 30 KD-IGG BAND - REACTIVE -...
I know Girlie!!! It's disgusting, devious, ignorant...actually it is the equivalent of evil when they care so little about doing no harm, and actually pretend to be experienced in something - knowing...
Last November I, myself had an equivocal ELISA result, a Western Blot that came back with only 3 positive bands (and so was considered negative) - but had a deer tick feeding on me for 72 hours and...
Hello all! I hope everyone is having a manageable day wherever you are as individuals in your LD journey. Need help and I apologize, as I am going to have to be quite detailed. I haven't been on here...
Oh - thanks for the responses, suggestions, and well wishes. Just saw the last few posts. I wish the same for all of you/us. Haven't been on since New Year's Eve Day - forgot to log out too. I don't...
Thank you Traveller. Yes - I have the bullseye photo on my phone and showed the ER doctor last night. He said: "Wow! Yeah - that is clearly the bullseye rash so you really had the full blown...
Thank you julymorning! I hope you feel better and I have to definitely get some epson salts and soak my feet when the homeowner isn't here. I haven't eaten meat for 35 years and am sorely lacking in...
Flash ahead to last night. Been having attacks of pain and electrocuting feelings and wind up in tears and feel like I am going crippled. It feels like I am being attacked by a traveling attacker....
Happy New Year Traveler - and may you and all of us feel so much better in the coming year! Best wishes for your new treatment!!! love, dismissed...
Thanks Huddie! Prayers and Hugs and love to you, as well! I am ashamed to tell people that we are practically homeless. I really wanna be able to think straight and to eat right and to afford herbs,...
I am sorry to rehash and don't want to annoy anyone. I am very new to the Lyme situation as it stands in the medical community and am having a hard time thinking... as well. I will TRY to make it...
Part I Briefly: I was hosting a deer tick (which I thought was a tiny scab in the middle of a big, painful, swollen bruise - right underneath my left knee) for 3 to 4 days. Before I even knew it was...
Thanks Everyone - for all your caring, suggestions, and experience. Just a coupla little details on my situation: I have a back story (pre this go 'round with the tick bite, bullseye, symptoms, etc....
I do have someone to go with me.- my disabled husband. Thank you julymorning. I will be on here later, and over these holidays - for sure. I am on 1mg of Alprazolam ER bid for 15 years and 30mgs of...
Spoke to IDS office on Wednesday and got blown off after being told my test taken on this past Monday (after a week off from taking a 21 day cycle of Doxy) was negative and therefore no Doxy without...
Thank you Sweet Huddie!!!...
I am LOVING these vivid dreams! I wake up babbling to my disabled husband, making no sense but telling a wonderful Disney story where I am going from topic to topic - as fast as I can to NOT...
Oh yes - now I see: Yes - julymorning, I still see her and she paid out of pocket to see that Dr.H - and her advice, is for me to test positive like she did. To keep hoping for a positive result....
WOW! Thank ALL of you!!! I logged out the other night and was too shot to come on here yesterday. Honestly, I am so unable to concentrate, and I see how brilliant and LL YOU all are, and how y'all...
Yes - I am on SSDI, but mine came out to only ten dollars more than SSI per month (from my earnings). I've had 42 jobs on the books - but this whole thing that I described for 30 years, has...
Yes - you guys, the Quest Nondiagnistics' tests are covered. No - I have no copies and begged the lab this past Monday to even just TELL ME, specifically what the test that was ordered, that they...
I have yet another order form for what I think is the same exact test, from my PCP that is dated: On or around 12/27/16. But I feel like "What is the point of this test? Why even have a test exist -...
I had one test on the 22nd of November and the ELISA part was unequivocal or equivocal (or whatever is the one that is questionable or borderline ) and it got automatically sent to the Western Blot...
Thank you for answering me Girlie. Would a person really. really keep testing negative every time - even after a fresh infection, even after 3 weeks of ABX?...
No. I wish I could (severe poverty). All these years and then with this new infection which gave a bullseye (I showed you in an email) after having that deer tick on me for 3 or 4 days until I pulled...
Hi julymorning - I hope you're hangin' in. I wrote my back story in a condensed way on the thread with my question. I was hoping you and/or Girlie could read it and maybe help me understand, since...
No - thank you both for your advice. I am just trying to find one who takes my insurance. I guess I am just blown away that I can really keep testing negative ( even after a FRESH and illness...
Hi. I am told that Igenix lab is the one that gives the best results. I'm new and don't know much and I guess it can be ordered and self paid for - and then your doctor draws the blood and you send...
OK - here goes the back story. I am 51 years old living in the Lyme capital of the world. I had a deer tick feeding on me for 3 to 4 days and figured it out on 11/22/16 - went to ER, same day, got...
I'm sorry - I just need to know if a person could keep testing negative with these stupid Quest Diagnostics "Lyme ab" tests. I KNOW I am sick and this is making me feel insane, like I am imagining...
I am so sorry for your loss of your loved one Dejavu - and I wish everyone serenity, and safety, and physical, mental, and emotional comfort during these holidays and always!!! XOXO, Miss dismissed....
OK - I haven't been on for a week or so, as I was going to get retested and see what it said before I went any further. I had a deer tick feeding on me for 3 to 4 days and got put on 3 weeks of 100mg...
Just a "goodnight y'all" bump!...
I will try to get some of these herbs at some point asap. I guess I will use one of my TWO retest prescriptions for the inept Quest Diagnostic lab - tomorrow. Then, the other script is to be used "on...
Bad news. I called the doctor that came highly recommended, and he does not take insurance. I was already disabled (on SSDI) before this tick encounter and do not have the resources to see a doctor....
Thanks - All. I DID take many pictures of it in all of its stages. I've gotta find a way to continue treating this. I can't get Dr.s to prescribe more ABX due to negative Quest lab Western Blot. It...
I got a bullseye rash at the site of the bite and contrary to what the CDC and the "others" say...it has been incredibly ITCHY from the start. Even while on the ABX (21 days of 100mg Doxy twice a day...
Thank you JulyMorning and everyone else. I DID do the search JulyMorning, and it was helpful. Also, I will drink more water as I probably have not been drinking enough - due to limited access/use of...
Is dark and/or cloudy urine something that others with Lyme and Co. experience? I am wondering if this is from Doxy - which I had my last dose of last night, or part of the bacteria/bacterias. If...
I just finished 21 days of Doxy last night and my nodes are still up and killing me. I started the Doxy after removing a deer tick that had been feeding on me for at least 3 days - I had thought it...
Girlie - I finally sent you the photos and a note....
Girlie - I have been planning to contact you with my rash photos. I am embarrassed to say that I only know how to post them from my mac, directly to an email or a place where you can post direct....
I am looking to see if anyone on here 1.)had a deer tick feeding on them for several days 2.) thought it was a scab 3.) started to get pain at "scab" site and dramatically powerful head spins before...
So as I've stated, I was hosting a deer tick for 72 hours or more, had severe pain at the site of the tick and terrible vertigo 48 hours before I even knew that "the scab" was a tick, pulled it out...
It's totally Orwellian!!! I was just taking a glance at another health issue on this board - one I suffer with, Chronic Pain. I was utterly STUNNED and further SICKENED to see that they are (not sure...
I should've have asked someone for them, but to tell you the truth - I had no idea that this was such a fiasco and that the tests were so "iffy" and the LIMDs were so inept and unwilling to deal with...
No one gave them to me to even see what these tests look like and no one went over them in my presence. I don't have the test results since they were taken at the ER. The ID guy I saw yesterday, had...
pmm73 - I am totally new to this group, this board, and pursuing help of any kind. It was as a result of seeing that Dr. I mentioned above, (just yesterday) that I joined this board...just yesterday....