I literally am back on the board after 3 years away because of similar super painful neck ache/strain, that was one of my first lyme symptoms back in 2016. I think my lyme (or babs/bart) has returned...
oh and it also could be an allergic mast cell thing...it impacts my right side of neck much more...
ive had what you are describing before on and off thru treatment...its either a nerve thing or an inflammation or both...seems to occur when inflammation is higher......
as a patient of SP, he is a believer that bart is more of the problem then babs....dr J believes the opposite...who knows who is correct...they WILL treat babs (ive taken more mepron than i ever...
there is something called "mepron blues" which makes ppl much sadder while on it...i have experienced it, just so you know why you prob feel extra low......
i too have gone from a low resting heart rate to 90-110...actually it is like 65 when i awake, but any exertion at all, even walking, will put it to 100ish...but then it just stays there all day...
finally went and did galaxy test, and tested positive for both of these....i assumed i had bart, but to have 2 strains added to the lyme and babesia i already tested for bummed me out for some...
https://www.youtube.com/watch?v=FqVlOfzZJH0&feature=youtu.be here he talks about his own battle with bartonella for the first time on camera from last night....talks about long haulers and covid...
It was pushed back so that they could add a chapter regarding covid. Long haulers have a lot of Lyme symptoms. Most likely cns dysfunction based...
one of leading Lyme LLMDs has new book coming out Tuesday- called "Chronic" for those interested..he also has a facebook page where there are alot of informative videos...
yup SP in Wilton idk if i will go above 1.5mg again to be honest...
i too have begun ldn started 1.5 mg a month+ back...i found a definite decrease in inflammation on day 2 or 3...i have mcas and/or autoimmune issues that have made treating so diffucult, but i did...
Bart is the other one i often seen connected with mcas as for me, i used cannabis for awhile to continue treatment (it is mast cell stabilizer),and it worked kinda, but i too became allergic to...
i had a similar experience with hout, and later both monolaurin and cannabis oil...my theory is a herx would not come so soon after administration, so i belief, in my case, thats its mcas...it was as...
there is data that pepcid will help to stop the h2 autoimmune backlash where ppl get in problems with lungs...
i couldve written your post...have dealt with for 4 yrs, last 2 every morn...i think its started with bart....if its not adrenals, i think its related to mcas...its as if my body wakes up and after 5...
@solaris Dr Sp took alot of other drugs besides tetra/diflucan to get to remission...thats usually his abx starting place with patients though......
ive always thought as the body is resetting itself for the next day that there is some definite active exchange between gut and brain...and in my imagined scenario, our guts infected with bart or...
actually came in looking for a post like this...i wake up every morn somewhere betweeen 1-3am with terrible anxiety and itching all over myface and head...i have always thought it involved a...
what girlie says- EVERYtime i hit bart, i get tons of anxiety, usually with insomnia....takes awhile to calm down...
it seemed to flare up my mcas...which after reading more about it, the breathing technique puts your body into fight or flight, so that you can adapt to it....but im already there so it seems to fire...
im 2 days into the breathing and the cold showers... definitely feel better mentally.... far superior to dnrs for me so far....will update...
thanks....its 5.5-6 breaths per minute right, not beats? ive got pots and in general an overall high resting heart rate, which i am trying to lower....its as if my parasympathetic system doesnt do...
@dcd2103 what is "Heart math deep breathing"?...
thanks dude....missed that first thread... i battle with the "manic mind" of a bart herx/flare which recently overpowered alot of the gains i made using dnrs.... doing his breathing method for just...
ive been trying this....this guy holds like 28 world records....believes breathing techniques/mindfulness/dealing with cold can cause you to positively effect hypothalamus/immune and endocrine...
for the record Phillips doesnt use rife with patients, but as he had bart himself he tried many different treatments, and is one of the most open minded doctors you could imagine...doesnt subscribe...
no dr phillips believes that there is a stealth pathogen behind the "autoimmune" symptoms....most likely bartonella...is testing drugs currently working with johns hopkins, duke and...
https://www.amazon.com/Chronic-Hidden-Autoimmune-Pandemic-Healthy-ebook/dp/B07T5LQ6JX/ref=sr_1_1?keywords=phillips+dana+chronic&qid=1576097356&sr=8-1 Dr Phillips upcoming book argues directly against...
herxing is the one of the least understood thing about this disease...a true herx is you feel awful, followed by feeling better....most of my "herxes" ive come to understand as more "poking the bear"...
thank you to those who responded....its just so weird....i get woken up with itchiness inside tip of nose and forehead/left inner eye whenever i go after bart.... could be nerve irritation (ive got...
the thing is, the other day i said screw it and ran each bartonella frequnecy gotten from an asyra machine i test positive for on a gb4000...normally i run 30 minutes- this time i doubled the time-...
everytime i kill bartonella via herbs and rife i get incredible face/scalp/torso prickly itchy in the early morn hours (1-3am) wakes me up, and comes with itchy eyelids and gastristis (i think mast...
its gonna be dr SP in wilton hes referring to....tetra and diflucan is the main part of his basic combo, he pulses it 2 wks on 2 wks off, he had bart and hes 20 minutes away from Dr AK in orange who...
everytime i treat, i get itchy all over (head and eyelids esp), and a raised pimply rash and increased pain in my forearms....with it usually comes post nasal drip and a feeling of body flushing....i...
i did dnrs, but what i found is this....my mind has been obsessed and fixated on my disease...what do i have,how do i treat, why is that symptom coming back? 24-7 for almost 4 yrs.....BUT when my...
jb1994...ive followed your posts, and the weight gain no matter what i eat, and inability to lose no matter what is common for me too....i was told as long as you have bart your metabolism and/or...
most of us who said mcas have walked the same road... testing for mcas is garbage and treatment is avoiding triggers and controlling mast cells- some good recommendations in this post Dr SP in Ct...
its counterintuitive, but we must stop caring about the day to day machinations of this disease....a possible mistake i made was the daily list of symptoms...i mean it had value right? but i think it...
may be mast cell issues....try taking a claritin or other antihistamine.......
add on- the best thing i got out of the system was the stop bodyscanning for aches all the time...the drill for me would be "here comes the nerve pain" thought followed by negativity...resulting in...
astroman i bought the system....not to oversimplify it, but it is a positive thinking system...it uses cognitive based training to "re-wire" your mind....you are supposed to immediately re-direct any...
ive had this before, food coma is a good description....its like u were just drugged/roofied....its not blood sugar, as i went keto and still got it...i think either bluelyme is right and its leaky...
girlie are you making progress? still getting internal tingling tremors in spine? mine spike with treatment it seems...
Bluelyme i have read somewhere that bart is a major cause of gastritis, just after h pylori.... i am taking allicin now, as well as glandular products from ancestral supplements....the thymus and...
havent been on for awhile, started dnrs and reading this forum isnt conducive to positive mindset lol but im still struggling and at end of rope- sorry will be long alot of time that i treat i get a...
hi saraeli....no its bovine colostrum from sovereign....trying to remedy suspected leaky gut as everything i eat/take causes reactions in 30 minutes or less...allergic to glutamine and bone...
so i think leaky gut is at the core of my mcas (along with bart)...reacted badly to both l-glutamine and bone broth....began colostrum yesterday..... woke up today exhaustedddd herx-like...brain fog,...
jbl- yes i will believe what i want and you can as well....the algorithm used looks for repeated phrases....the one they cite most frequently in "fake" reviews is "ancestral supplements", which is of...
jb1994 i strongly disagree with you saying that 99% of ancestral supplements reviews are scam reviews....first the website you linked proved nothing (even after their adjusted rankings, they still...