Ultrasound was normal, but that is pretty typical from what I understand of this condition. No stones....
Hi everyone-- I have been having abdominal/back pain, sore throat, intermittent chest pain and tightness and occasional nausea. I had blood work done at a rheumatologist and my ANA and ASMA were...
Are they safety issues (toxic materials) in purchasing the cheap ($100) portable saunas? If not, which one do people recommend?...
Has anyone had success with topical glutathione cream to reduce brain fog? Is it safe? If so, how do you apply it. Or are there better ways to get glutathione?...
Im now 10 months into treatment and overall improved, but still two stubborn symptoms that won't quit (others too but these are the worst): 1. Brain Fog/Drunk feeling 2/ Joint/muscle tension Do these...
If you are over halfway through treatment is lyme transmittable through oral sex? I am not sure if I need to tell people or not. I don't want to bring it up if it is highly improbable....
I do have it but I haven't read it. I originally had a clinical herbalist whose herbs I was going to use in conjunction with antibiotics. Jemsek office told me I had to stop doing that because it...
It's kind of like an overstimulation feeling in areas of bright light and then also having to focus on what different people are saying, and the ability to focus on their face. Something about...
How would you describe brain fog? I am still able to excel in school...but I just kind of feel like I'm floating in a different universe and can't quite focus properly on people. Just not grounded....
Yes, third protocol with some different meds, some the same. I was previously targeting Babesia in my second protocol but now we are going after it "hard." I'm on Mepron for 8 days out of two weeks,...
Well this is my third round of meds...at the end of my last round I was doing so well and my NP at Jemsek told me she was so happy with my progress. I felt pretty good almost all the days of my off...
Thanks for the info! I am happy to be seeing him. I hope I get better. ...
Thanks for the feedback. What do you mean my off weeks are a gauge of my baseline? I am feeling a bit discouraged, because I used to feel better on my off weeks...but now on this third protocol round...
No I haven't. Why are they controversial? How do I remove ammonia build up from toxins in the head? ...
It's been a while since I have posted. I've been doing better overall, but I still struggle with symptoms almost everyday. I am on the Jemsek protocol and take medicine two weeks, then am off for two...
Can you take Japanese knotwood with gabapentin? Does it interact with any other supplements or antibiotics?...
Status: I am 3 months into treatment and my joints are better, I am able to exercise (fairly intensely), my sleep is good, my brain fog somewhat has lifted, I am not (as) emotionally labile, I have...
I have accommodations for school including (but not limited to) extended time on tests and a reasonable number of disability-related absences. I just needed a letter from my LLMD explaining how this...
Yes, it is the extended release version ...
Has anyone tried Gabatin or Grailse for burning nerve pain? I continue to have burning/tingling sensation like a cap on the top of my head. Doctor switched me to Grailse as it is an extended release....
Does anyone have an opinion of Mepron vs. Malarone for treating Babesia? I am on Mepron, but it is significantly more expensive since insurance isn't covering, but am willing to pay if it is more...
Know that you have babesia? Probably a good idea. I'm going to try and and get some to start April. We can do it together :) For me, it's a 'challenge' - got one bottle only.... So, if I herx ...then...
I've already been on omicef and septra and they told me to take it all at once.....
Tomorrow I begin my babesia protocol which includes mepron, septra, omicef and enula...I do not have the enula (10 drops 2x/day) yet as nowhere sells it locally I had to order it offline and it has...
Has anyone had success with online coupons? The pharmacist said it covers "11 days." Im guessing she means 11 doses as I doubt she took into consideration pulsing?...
Who has had problems with insurance covering Mepron? I just went to the pharmacy and they told me that Atovaquone (not even sure what that is...they said it is the generic) would cost $1,121.99 for a...
Did you have to provoke for urine test? ...
Yeah-my ND gave me the pill for a provocative test knowing I have fillings--but I just feel like that isn't safe. ...
How were you tested for heaving metals? I was told to do a provocative urine test (taking something that would provoke any metals) and then send in for results. Im skeptical though because I have...
I have a heterozygous mutation of A1298C and my doc didn't really explain to me what that means-except that it's not as serious as the other one I need to take methyl b12. But is this the mutation...
Do those work in conjunction with heavy antibiotics?...
Thanks so much for the positive feedback. Do you see Dr. J? I sometimes take epsom salt foot baths but I live in an old apartment and don't like to use the tub to take baths. Are footbaths as...
No..just antibiotics from Dr. J. I was working with an herbalist in conjunction...but Dr. J's NP said I needed to stop my herbals because it would "muddy the waters" and she didn't know much about...
So would that be 20 drops/day? More? I don't want to take to much. Is this herb particularly good for the symptoms I mentioned? quote="Girlie"]I take Pinella and Bubur together everyday...whether I'm...
I use this occasionally but haven't noticed much difference. How much do you use/how often?...
Still, my head symptoms seem to be the worst (almost only) symptom. Tingling, burning, numbness, aching, throbbing, foggy, drunk...you name it. It's rare I have a full day of clarity. I used to have...
Can anyone chime in about how Dr. J's (or a similar) protocol for b\Babesia is? I'm really nervous because they kept stressing that it was the toughest part of the protocol. I will begin mepron,...
What does astragalus help with? ...
Thanks for sharing. I'm on the dr. J protocol so rotating every 2-3 months....
How common is reinfection? It seems as though many people are symptom free for years and then get bit again which is so terrible! Are we more susceptible to being bit? Or are most people exposed to...
I believe I will be on minocycline with it. How is this protocol? Is it tough-or did anyone notice significant improvements with it?...
I would like to hear everyone's different treatment protocols. Abx or herbs and for how long? I am only in my first month of heavy treatment so long road ahead... Sometimes I find it hard not to get...
Is this the kind at the gym?...
So, is a sauna at the gym beneficial for detoxing? I haven't tried it yet but was thinking of getting a membership somewhere that had one....
Would you recommend taking it with an antibiotic protocol?...
Good to know! How long is too long to use flaxseed?...
Is flaxseed oil good for Lyme disease? I just ordered an organic bottle of it. It wasn't cold...but I refrigerated after opening it. I've heard it is good for cancer patients and the immune system so...
So it's purely from the infection?...
Everytime I attempt to go out to a bar with friends and be social I wake up with a hangover type headache. To be clear, I don't drink any alcohol or sugary drinks-only water. It's frustrating because...
Sorry! I meant blood sugar! It was high by just one point the first time, 7 the second....