I herxed hard on it the last time I took it so I'm a bit nervous. He apparently uses it to get platelets back up, but I hadn't heard of that before....
Hello everyone! I got my bloodwork done on Friday and LLMD's office just called and said WBCs and platelets are low. I was sick last week (flu) so I'm thinking that might have something to do with...
Yes and I've been missing out on all of your awesome wisdom this whole time!...
These chest pains and heart palps are freaking me out. I have been to the ER on more than one occasion in the past 6 months with a tight chest though and every time my heart looks "great". So I...
There you are! Thank you!!! :)...
Girlie - I see that you posted but I can't see your actual post. Somehow your posts are blocked for me. Did I accidentally hit something wrong?...
For some reason the new moon is harder for me it seems. I think everyone is different....
I take NAC daily. Can't say I notice much of anything one way or another....
For the past few days/week or so I've been getting more and more heart palpitations, heavy chest and shortness of breath. Has anyone experienced this as a herx affect from rifampin? Man...this drug...
Rikky I hear you! I don't feel like my one day off is enough right now!...
Blue Lyme - Can you explain about burning cortisol? I already have adrenal issues...will this make it worse?...
I haven't been but I just subscribed to the newsletter today and was planning to look into it more. If you get additional info please let me know....
Thanks Rikky! Yes...I think it's definitely a strong bart herx. Haven't had a strong herx like this in a few months. That Rifampin is really something!...
Yep...same here Psilo...I didn't have a lot of joint involvement and neuropathy was improving. Then I went on rifampin for bart and now I have extreme bone pain in arms and legs, bad muscle aches,...
Do others pulse this? I've read a lot of things that said NOT to pulse it. My LLMD has been practicing for many years and is pulsing it 2 days on 1 day off. With how hard it's hitting me my body is...
Psilo - That's what is happening to me this time. I had my usual initial reaction but I'm in week 3 of new meds and yesterday and today I feel like I got hit by a bus and have a bunch of new...
Okay...so it seems that I have about a week long "episode" about once a month (with day to day variations in between). Usually after the "episode" I seem to feel better. I have been hoping that these...
That's what I thought...hoping I was wrong though. :(...
Can herxes cycle? If I have a herx at first, then feel better for a couple of weeks, and then have another issue is it possible that it is a herx when my bartonella is cycling or is that more likely...
We had colds and strep go through our house with my kids and in a weird way I was kind of hopeful that I would get a cold so I would know my immune system is working. No such luck....
Hmmm...okay great idea! I will look into the charcoal. Admittedly I haven't been as hot on my detox game b/c I took my kids on an overnight trip a few days ago. Maybe the stress of the trip combined...
Last set of meds was Bactrim DS for bart also, but I was only on that one for a couple of months b/c it didn't seem to be helping very much. I will increase detoxing some more. I've never done...
I find it helps with my joint pain, but it doesn't seem to touch my headaches or neck pain. It certainly can't hurt to keep it up and see if it helps....
LLMD switched my meds second week of January to really target bart (thinks that is my main issue). I have been on the full dose for about 2.5 weeks (pulsing 2 days on one day off). At first I had...
I can chime in on both the HIDA scan and dapsone. We must be two peas in a pod! I also had a HIDA scan completed back in May due to extreme pain in the area of my gallbladder. Doctors were certain...
I had to change my pulse schedule for similar reasons. I was doing five on two off at first but my body couldn't handle it. I now do on Mon/Tues off Wednesday, on Thurs/Fri off Sat/Sun. I find this...
PeteZa - I haven't heard about babesia and the spleen. Hmmm...I'll look into that more, though I don't really have babesia symptoms...very bart dominant symptoms over here....
I am currently doing weekly acupuncture and for me it's been really helpful. I find it really helps with my head pressure/migraines, my neck and back pain, and with detoxing my organs. I have reduced...
I got some red sage to help with my spleen (I was told this is what Buhner currently recommends instead of Red Root). I'm on heavy antibiotics...anyone know if I can take the red sage at the same...
Huddie I'm doing the castor oil packs every night. It just can't seem to keep up with the pressure on the spleen. Starting to wonder if I should back off antibiotics for a week. I already pulse 2...
Thanks all! Ordering red root today. My spleen is ver angry about two months into the Bactrim. Trying so hard to support while killing....what a tough balance! This Bart is a real pain!!...
I know of an integrative practice that will use herbs near Mechanicsburg. Most of the doctors there treat children. Is that close to you?...
Any particular brands? Is it okay to take red root with antibiotics?...
Help! Need suggestions on how to support my spleen. It is very inflamed (I believe it is from the bartonella). I got acupuncture this morning and he put in a lot of spleen points but it was so...
Thank you! She also has me starting NAC 900 mg capsules once per day with a goal of twice per day. I've taken those the past three days. I feel a bit funny right after I take them, but that sees to...
I read this the other day too. Does this mean all of the saunas and warm epsom salt baths are NOT a good idea? I am confused.... :(...
I have been dealing with severe headaches (front and back of head). The only thing that seems to touch them is getting acupuncture. Even after my first appt my headaches were greatly reduced. I know...
My naturopath told me a lot of lymies feel great on this product. I wanted to share and also see what others thought about the ingredients. Seems like a powerhouse! Anything I should be concerned...
Okay...good to hear! I think it would be a great addition to my detox protocol as it takes A LOT for me to detox. PeteZa - Do you remember what dose you were on?...
I just had an appt. with my Naturopath yesterday and she suggested NAC instead of liposomal glutathione. I seem to get headaches when I take the glutathione and was also very sensitive to the IV...
Also I would add that I tested negative. I am being treated on symptoms....
My bartonella symptoms are: Numbness in limbs Eye Floaters GERD Pain in organs (it moves around to different organs) Pain in rib cage to the point of feeling like I have trouble breathing (scariest...
Will go to get my bloodwork today too so if there's an issue with my liver he will have that information when I call him on Monday....
Thank you! I'll check out the links. I'm taking Amoxicillin, Biaxin, and Bactrim DS. I didn't have the stool issues until I added the Bactrim. Just added hemp powder and flax seed powder to my...
I apologize in advance if this is TMI, but my LLMD is out the rest of the week. The past few days I've had some chest pain and shortness of breath. Went to urgent care yesterday and got EKG and chest...
Thanks for the info!! You are always so helpful...though I'm really hoping you are wrong on the additional coinfections. My hands are pretty full with dealing with the lyme and bartonella...really...
Hello all! I have been trucking along with my treatment. I'm on three antibiotics right now for lyme and bartonella. I have seen a bit of improvement with certain things and also other weird things...
I don't have much to add, but I will just say that I can relate to you right now. It's really tough when you feel like you are constantly having to explain your illness to your spouse....
Thank you sunny40! Yes it helps a lot. Sometimes I just need other perspectives on these things. I do think that my husband is worried for me more than he will admit...he tends to bottle up his...
I will try again. He seems to have little interest in hearing about the disease. We have been to a therapy session on this and he basically told the therapist that I'm obsessing too much about this...