bigcat, consider iv rocephin. It's a pain to get the pic line in and out, and it's expensive, but sometimes that's what it takes....
Dr Z. was my doctor. He believes in IV rocephin, which worked for me as a final push....
Hi Intuitive Healer, I too have family problems. My family called me hypochondriac the entire time I was sick (total of 7 years). To the point that they asked me for a selfie when I was at the...
I used color codes for severe, medium, and mild symptoms and described them in a legend. And I logged each day in a calendar I created in a spreadsheet. Most of the doctors I've seen thought that was...
Treatment is just horrible. Showering is true endeavor. Drink plenty of water and take as many naps as possible. I don't know why, but it helps. I spent 10 months watching tv. Try to find something...
Dude, I can email you the name of my ID doctor if you want (Texas). My LLMD is in Tijuana, Mexico, if you want....
Dude, being sick is a money pit. It seems to me that you have a lot going on, especially with the C. Diff., so I think you need to use extra caution. Taking medicine or herbs for one thing can...
Dude Abides, what kind of doctor are you seeing?...
Dude Abides, you have so much going on. What kind of doctor are you seeing?...
The idea of the abx is to supply the sufficient amount of poison to kill the parasite without killing the host. Concentration and half-life have all been tested in trials and the drugs used for...
I had a really bad yeast infection in my chest because of the IV abx. I also had a blood clot in my arm from the pic line and spent a week in the hospital. Still, I am in favor of abx. Why? neuro...
Quick note to say that it is very hard to wrap you mind around the fact that so many doctors have seen you and just now you you have a proper diagnosis. I was taking 9 prescription medications before...
I agree with PeteZa. If you are functional enough to make it to work and pay the bills, just nap as much as you can. Don't fight it....
It's horrible. I only starting feeling better on the third month....
Over time, B6 can reach toxic levels which can take months to get back to normal. I saw online it can even cause nerve problems. Once I had B6 toxicity, +/- eight times the normal concentration in...
Thank you for checking PeteZa and Girlie. I will initiate a new thread....
Thanks y'all. Sometimes I can't believe it myself. I still think about it every day. Sometimes, when I am driving, I still have a little bit of fear. The B12 and vitamin D are really helping. The...
alunke82, I will share with you my personal belief. I think of borrelia the same way I think of syphilis. They are both spirochetes, they both attack the nervous system, and they both can cause...
bigcat - 11 months total. 4 months of rotating abx combinations focusing on babesia. 4 months rotating abx combinations with doxy. 1 month of iv rocephin....
I was also feeling better on the 10th month, but decided to do one month of IV rocephin anyway to make sure the thing was DEAD....
I had to eat with doxy, otherwise I would get acid reflux and stomach pain. I cooked one egg with brown rice in the morning. And ate dairy free dinner at night. The calcium can affect the absorption...
My brain fog went away with treatment. The last day I had symptoms was Feb 5th. I feel 100% back to normal now. I need to post on the success stories section. Anyway, don't give up. I was...
I tried pinella, burbur, alka selzer gold, glutathione liposomal, Epson salt bath, lemon water and dry brushing when I was sick. No difference whatsoever. Waste of $ in my case. I would check B12 and...
If you are eating very low carbs (less than 20 g per day) you're body will burn fat instead of glucose and you will be in ketosis. Some people follow a ketogenic diet for neurological health. Low to...
It's just horrible. My GP doctor told me he could have cured me with one month of antibiotics, that I didn't have to go through what I went through with my LLMD. Yeah... right. My friends and family...
I think it's good news that my mental capacity returned to normal. I noticed I've been using more complex words lately. I was afraid the damage could be permanent. I was misdiagnosed with migraines...
Hi BJD55, yeah, it could be something like PTSD. I spent 11 months at home watching Netflix. For the first 6 to 7 months, I had severe brain fog. I got lost while driving. Couldn't find the words....
B12 was on the low side, so I started taking a supplement this week. Also D3. My body has been through so much, I don't want to take anything for depression. I will just keep going until it gets...
Hi, sorry it took me so long to reply. Physically, I've been doing great. No symptoms for two months. Taking no medication at all. Still hard to believe it's over. Emotionally, I am still feeling...
I take Swanson Ultra because of the Lactobacillus rhamnosus. I used to have histamine intolerance....
julymorning, I read online about the 2 months symptom free before stopping abx. The story goes back to my saga to find a doctor. I went all the way to Mexico to see LLMD. Total of 4 trips. After many...
Thank you, Peteza. My first thought when I wake up is "How do I feel today? Is the lyme acting up?" I will get better emotionally, I am sure....
Thank you Huddie, I will definitely do that. I want to write my story, Traveler. I remember looking for success stories during treatment and they gave me great comfort. Where should I post it? Is...
Huddie, I am taking lost of probiotics and a medication for yeast. Is there a way to see if I still have candida?...
Thank you NotQuiteAntonio. I've been thinking about what to do next. But nothing comes to mind, except exercise. I suppose I have to wait for my mind to adjust. It's hard to explain....
I only took abx, 10 months, no pulsing. The funny thing was that instead of symptoms disappearing or lessening gradually, it felt like I woke up one day and it was gone. The insomnia was the first to...
Babesia/Borrelia/Erichilia - pulsing around the head, neck and shoulder pain, headache, sever brain fog (couldn't drive, read, hard to find the words), insomnia, air hunger (misdiagnosed with...
I finished my treatment everybody. Removed the central line and stopped all antibiotics. I feel great, physically. I went to gym and everything. I’ve been without symptoms for a month. I am having an...
IV is really easy to inject and I didn't have any side effects. It might do the trick....
Good description of my own head symptoms. I believe they are caused by inflammation of the nerves in the neck and around the head. Mine went away 3 months into doxy and 1 month into flagyl....
Girlie, I was too flagyl in combination with other abx three separate times. The last time, for two months. I've taken so many abx, I don't know if any of them was fighting biofilms. I take Stevia...
I wish I could have a glass of wine, Peteza, but not with the rocephin, I think. Maybe alcohol free wine. That's an idea....
I am afraid the massage could pull things .. it's not logical, just a fear...
Thanks, Traveler. I am trying not to get my hopes up. I can definitely try the oregano oil. I will see if I can find it at the health food store. Treatment has been super expensive....
I've been on IV rocephin for almost a month after 8-9 months on oral antibiotics for neuro lyme. I've been 100% asymptomatic for more than 20 days. In this final phase, I am required to do anything...
Yes, me too. It's horrible. It can take up to a week to get better. I couldn't find anything that would make it go away. Naps helped a little....
My doctor prescribed 1 pill per week....
My symptoms were mostly cognitive problems, headache, neck pain, and pulsing/throbbing of the veins around my head. It was so bad that I once asked a coworker to drive me home, and I couldn't...
Anything that heats up the body causes me to flare up. Exercise, hot baths, saunas... I think the bugs become agitated or come out of hiding. I simply avoid it....
For me, heating the body with exercise, sauna or a hot bath made the bugs more agitated. I would get a major flare up after that. So maybe the sauna isn't helping. The only thing that calmed it down...