LLMDs recommend the 6-8 weeks also. Regardless of symptoms. I know if 2 well known that do. Both here in NY. One is world renowned. I'm not sure if I can post names here. Anyways that's what's...
ILADS recommends 6-8 weeks of doxy...
Normally you wait a week after starting an antibiotic before testing. It does make the spirochetes more active. Igenex test is obviously better than Elisa. DNA connexions is good to detect...
It’s a fad in fact it’s not safe for people with certain Dx to do celery juicing. It’s high in sodium and fiber. And you can probably google so I don’t have to go all nursey on you. This guy is not...
Is Lyme passed through breast milk. I’ve read conflicting reports....
Thank you Girlie...
I have read where people with MS were actually found to have Lyme spirochetes in their brain autopsies. Has anyone read this? I’ve read a few articles and now I can’t locate them. Does anyone have a...
I have chronic Lyme. So I know symptoms can be similar. Recently I started getting mouth sores they last up to a week. Painful. Severe joint pain, hands and ankle swelling, hair loss,cognitive...
I’ve read opposite opinions on this. Is Lyme disease sexually transmitted to your partner? What percentage? I’m really concerned my husband has it either from me or a tick bite we missed....
Thank you again. My Naturalist Dx me with Morgellons but I haven’t been able to go back to him for treatment.........
Thank you for your responses. I’ve been under the weather, now have positive ANA Dr thinking Lupus. Anyways.....yes I have fibers. I’m scaring bad. I’m embarrassed by all these scars. Need...
Does anyone have Morgellons? How do you deal with it?...
I have taken myself off all treatments except IVIG because it was too much for my stomach. Increased vomiting and I needed a break. I’m starting back up on supplements my dr last prescribed teasel,...
I was on oral for several months and it just added to my nausea and vomiting. I was switched to IV and I herxed like crazy. Currently taking a break from all but IVIG....
Yes my symptoms are always worse with full moon...
I’m sorry you’re going through this. I also have facial numbness, pain in teeth and jaw. I was tested for heavy metals and have several abnormal results. I also was found to have a necrotic condyle...
My ultrasound showed a cyst 9x8 mm I’m now being worked up for Acute Renal Failure 😡☹️😢...
I’m currently on no meds for my Lyme. Needed a break. My CURRENT problem.....my kidneys. I developed a small cyst on my left kidney. No problem. I have almost constant pain bilateral flank area. My...
CIPRO has 2 black box warnings and shouldn't be on the market. I believe I was ciprofloxed. I was on it continuously for chronic UTIs after bitten by tick. I habe a lot of the symptoms which also...
Thank you for posting. I left a long message....
Thank you dacarte3...
Thank you so much everyone. Yes I saw the X-rays and it was bad. I had X-rays last year and there was no damage then. I'm on IV gamma globulin and I know some medicine can cause jaw deterioration but...
I have obstructive sleep apnea, I blame on my Lyme. I HAD a CPAP but long story short , insurance won't pay anymore. Sent to dentist today to discuss getting fit for an appliance that helps sleep...
I don't have bite marks or tracking. Recently had colo and endoscopy, negative for any parasites, no lesions on any organs, no recent travel, negative blood smears in past. Just assuming........
Magoo2. No I haven't because it's related to my small fiber neuropathy. It's not a parasite. Thank you for your response...
I have the crawling sensation, feel like bugs all over me, itching. It's not scabies, I'm a nurse and know what it looks like.....one of my MANY doctors did a skin biopsy and I now have small fiber...
I just had blood work drawn . I'm getting a port next week. My Neurologist office just called and said my WBC is very low at 2.4 and they're concerned and faxing results to my primary. In the back of...
Thank you Girlie....
Thank you for above information as I also have those issues....
Well on top of everything else I have sleep apnea. Failed my sleep study. Going to appointment next week for my new friend a CPAP. This is never ending with symptoms. Does anyone else have sleep...
I'm going crazy. I feel like bugs are crawling all over me, sometimes biting me. There is no evidence of bugs or bites. No tracking or worse at night definitely not scabies. No new meds. Can't afford...
I have been experiencing the terrible/severe burning in my heels up to back of knees. I tried to discuss with my Neurologists, who ignored me. I developed Small Fiber Neuropathy . I researched it and...
I actually did the SPIT test to see if I had yeast overgrowth. I set a full glass of water on dresser before bed. when I woke up I spit in glass and let it sit for about 20 mins, however results were...
Thank you. My friend along with 3 others yesterday were put on it for 21 days. I don't want them ending up like me and so many others. We live in upstate NY and the ticks are REALLY bad already....
Please remind me. What is initial treatment for tick bite. Doxycycline how many days how many mgs and dose....
MY LLMD TRIED BOTH. I DID NOT FEEL ANY POSITIVE RESULTS. I DONT KNOW HOW LONG UNTIL YOU ACTUALLY GET ANY. I COULDNT AFFORD TO CONTINUE MY VISITS AFTER 3 MONTHS...
I'm starting round 2 of GAMMA GLOBULIN infusions MONDAY. EVERY 8 WEEKS X5 DAYS. NOT WORKING YET...
Oh my Gosh I thought I was the only one. My knees, wrists and ANKLES crack and pop. I told my husband it also feels like MY ANKLES ARE GOING TO SNAP OFF. UGH. Always something. And yes to the jaw...
March 29th Yes I do try to continue to detox. Thank you everyone...
Thank you Traveler and blueberrymuffin What herbal treatments should I try? Desperate. ..in pain , exhausted....
PLEASE be careful with antibiotics such as Levaquin, CIPRO, Avelox. that class of drug can and does (I know) floxing. They are toxic and cause permanent damage, such as neuropathy and many others...
:mad: WELL.... Brief history. Sick 2 1/2 yrs, seen by 23 drs, finally diagnosed with Lyme July 2015. Treated by LLMD antibiotics by mouth then IV for 3 months. Couldn't continue care due to cost....
Thank you so much for the information. I have seen now 23 Drs. Which is ridiculous. They keep referring me out. I need to go back to LLMD and just suck up the expenses. I get fevers up to 102....
Vast IF-G was negative. Western blot IGG POSITIVE IGM ONLY 4 bands so negative. Sick for almost 3 years. Many many symptoms. Bullseye on my forehead into hairline was treated with CIPRO FOR infected...
I believe it's saying I'm positive but do not really know...
I'm tired of my doctors disagreeing. I do have LLMD but had to take a financial break. Please explain to me: infecto lab BORRELIA LFA-1 IL-2 POSITIVE EPSTEIN BARR VIRUS ELISPOT LYTIC AND LATENT...
Lol. Sorry...
John the symptoms are cumulative. Meaning you don't always have problems immediately. DON'T TAKE THEM. There are other meds available. I don't remember what you said you needed it for but take...
CIPRO, LEVAQUIN AND AVELOX ALL FLUOROQUINOLONES ARE THE DEADLIES ANTIBIOTICS ON THE MARKET. THEY POISON YOUR BODY. IT IS CUMMULATIVE AND SYMPTOMS ARE PERMANENT. CIPRO WASNT BLACK BOXED UNTIL AUGUST...
He does not believe I have lyme. He refused to look at my results. I could not afford to continue with LLMD at this time. But was treated from July to Oct with various antibiotics, vitamins, and...