PeteZa: Thanks for the list. There is one practitioner in Virginia, so that may be an option. Girlie and yancync: Thanks for reaching out. I sent you both an email. Invictus...
Hi, All: I was diagnosed with Lyme, Bartonella and Babesia in September of 2016. I treated with Dr. J in DC beginning in December 2016 and was put on a heavy antibiotic regimen. This last October, I...
All over body twitching was one of my last symptoms to go. Initially, it got MUCH worse with treatment and then slowly began to taper off in frequency over time. When I got about 80 percent better, I...
Girlie: Sorry to hear about your father. Each day I'm off Seroquel I feel better and have less twitching, so I have at least some understanding of the true trial that your father went through....
Girlie: Knowing what I know now, I agree 100 percent. Frankly, I was really taken back when I recently read about the reasons Seroquel should never be taken for insomnia. My dosage was rather low, so...
Hi, tcoach: Glad you are making progress. I agree that twitching seems to be the hardest symptom to kick. It's really my one remaining and persistent issue, along with some slight muscle aches and...
Hi, All: When I first began treatment with an LLMD in December of 2016, he put me on Seroquel and Gabapentin for insomnia, which was pretty severe at that point. Around the same time, I began...
Thank you all for the responses and suggestions. It helps to hear that others share your experiences too. The muscles soreness and tension is much less today, so I'm going to keep going, taking...
This weekend I attempted to get back into exercise and do some relatively light weight lifting. After laying off the exercise for a while, I expected some degree of soreness afterwards but ... WOW...
"Medically-required" or "therapeutic" might help too. Companies sometimes don't want to delve too far into medical issues....
I had the pins and needles sensation in my hands, feet and legs for several years before being diagnosed with Lyme, Babesia, and Bart last September, and it was getting increasingly worse over time....
Decarte3: No, I'm not currently taking a collagen supplement, but based on this thread I will start. Do you have any suggestions? Thanks....
Dacarte3, Tyme, and bluelyme: Thanks so much for taking the time to reply. All of this is really scary and, as I said, it helps to hear that others are finding ways to deal with these issues. Tyme:...
Hello, All: I was diagnosed with Lyme, Bartonella, and Babesia in September of 2016. Prior to diagnosis, I was positive on three ELISA tests and positive on three Western Blots for IGM Band 23 and...
Hi, Searching. Sorry to hear about your BIL's difficulties. In addition to the Lyme-related tests already suggested, you may want to consider having his thyroid function tested, if it hasn't been...
Cindy: I treat with Dr. J and all of my antibiotics have been covered by insurance (and I fill them at CVS too). In addition, Dr. J's office has fought with my insurers when coverage was denied in...
1000Daisies: The test was through LabCorp and ordered by a LLMD in the DC area. There were no tests in this round for Lyme or Co-Infections; just the basic liver function tests with a few "specials"...
Purrsiankitty: Thanks for your thoughts and congratulations on your increasing CD57. I'll keep my fingers crossed for more progress. Girlie: Appreciate you pointing me toward Bartonella. I believe I...
Thanks, blueberrymuffin. I certainly hope that it's the case that I heal faster, but, so far, that doesn't seem to be the case. I was on Doxy for 90 days and many of my symptoms got better. At the...
Hello, All - I am a bit confused about some conflicting test results I have and would appreciate any experience or insight that you can share. I've had a series of three lyme tests from a standard...
Thank you, Traveler: Should have done that myself .......
Hello All: I would really appreciate any assistance in understanding a recent MTHFR DNA test result I received from my LLMD. It showed I was "homozygous for the MTHFR A1298C variant." The NP at the...
Julymorning: Thanks so much for the quick response. It's very comforting to hear that you got better. It just seems like when one symptom starts to fade another -- even more bizarre -- takes its...
Hi, All: Having been diagnosed with Lyme Disease in September I posted last week about my alarming muscle twitches, and the Community was great in responding about their own experiences with...
Thanks for the comments on Bartonella, Diet, and Magnesium: I am treating with Dr. J in DC (had my first appointment in mid-December) and I think the focus right now is on treating the Lyme. I have a...
Grdner: Thanks for the tips on the magnesium and sauna. Does there seem to be a nutritional component to your twitching, if you don't mind me asking? I may be imagining it, but I've noticed over the...
Thanks Inspiredby3 and Traveler: I have the heel pain in the morning too and my toes just feel "weird." Had the rash too on my inner thighs but (at the time) didn't know what it was. Traveler - Maybe...
All, thank you so much for the support and information. As said above, it helps to know that others have had the similar experiences. I am especially sorry to hear about the muscle wasting, which...
Thanks, Girlie. It's helpful to get confirmation that bands 23 and 39 are Lyme-specific and muscle twitches have been experienced by others, as their onset has me a bit concerned and questioning if...
Thank you Blueberrymuffin and Julymorning for taking the time to reply. LLMD has given me info on detoxing, including Epsom baths and staying away from gluten, sugar and (unfortunately) alcohol, but...
Thanks so much, 3Hump While I hate to hear that you are having muscle twitching too, it is comforting to hear that I am not alone it what I am experiencing. Take care. Invictus67...
Hi, All: I'm a new poster to this forum but have been fortunate to use it for information and support over the last several months. I've had a series of three lyme tests from a standard lab over the...