Did you ever do the Advanced Labs test, and if so, what was the result....I'm considering using them....
Hi, I'm considering doing the Chronic Tonic....do you have an update? Carey...
I'm in Ohio. How long have you been working with KK?...
All I know, is that my immune system is shutting down...I have low IgA, low IgM and awaiting IgG results (my IgM has been dropped to half of what it was last summer and my IgA is steadily getting...
Thank you!! I will order it now (gotta love Amazon Prime!). You're a cyclist? I am, too! That was my first passion. My dad is 71 and he has raced for over 25 or 30 years. He just celebrated his 71st...
Thank you! I'll look these up....
http://requestatest.com/cd57-test...
Thank you. Truly. I've had a night of (interrupted, not very good) sleep to think about this and you're right. Denying it isn't going to help. I know I have it. I don't want it. But there's nothing...
That's the million dollar question though....HOW do you kill the bugs and bust the biofilms? Each doctor has their own protocol...there is no consensus and so we are at the mercy of whichever doctor...
I'm sorry, I should have said it's my impression....it just seems that no one ever gets better from Lyme. I can only do little spurts of research..and those that I found who have really found...
Thank you....I do have his book...but haven't had the energy to read it read. I also have both of Horowitz' books, Cure Unknown, and a few others....if only they were in audiobook format....I'd have...
I should have said in my post that it's my perception after 6 months of researching Lyme that it's pretty much incurable and hopeless. I see sooooo many people who suffer for decades....like me....
I have tracked my symptoms-- I listed them in a post in reply before you edited your comment. My Horowitz Lyme questionnaire score was 90. I have a telephone appt with an LLNP next week, but she...
Thank you-- I have copied and pasted my initial post to the forum with my symptoms just above this post. I think I'm just in denial....
Thank you-- though I thought that 31 could be cross reactive with EBV and other viruses? Also--- as far as symptoms, here was my initial post to the forum... Hi there.......I fear I may be the...
I don't want Lyme because there really are no treatments for chronic Lyme... 1) it's virtually impossible to find an LLMD that takes insurance, much less one within my travel area (30 miles) 2) The...
Hello everyone...I had my first IgeneX test last fall and my results were: IFA- 80 (positive) IgM 31++ (epitope test negative for Bb) 39 IND 41+ IgG 39 IND 41++ CD57 - 93 negative for all co...
Thanks to both of you for replying. The ER didn't do any imaging, they may have done bloodwork, I don't remember. I have never had a CT or MRI for anything (except an MRI on my knee about 8 years...
Hi there...I'm not sure if I belong here or not, but I stumbled across some symptoms that indicated possible IBD and so I thought I'd ask here before going to my doctor because I don't want to seem...
I watched it when it was free. A member here did a summary of each day. The search here is hit or miss, but you could try for searching for those summaries to get a better idea of whether it's...
Has anyone paid for this and found it worth the money? (I know it was free initially...I missed out, but it's $99 to access the videos now) https://chroniclymediseasesummit.com/...
Thanks-- I had found that site already but it has different tests than I had run. It lists 3 of the 4 I had run but it doesn't list the EBVE, instead it lists "EA-D, IgG" and I do not know if those...
Anyone have experience with EBV resutls? I had my EBV retested and was wondering if I could have help interpreting the results. My old results from 2009 must have been tested with different...
Hi there! I'm new to this board as I'm usually on the Lyme board. But I had my EBV retested and was wondering if I could have help interpreting the results. My old results from 2009 must have been...
for some reason, this name sounds familiar....I'm thinking that is what it was....
great idea! Thank you....
Looking for testimonials -- pro or con. I tried searching the forum but because his initials are NP...which is the same as for "Naturopathic Physician" (which, coincidentally, is what he is lol),...
Oh, I surely hope it's not permanent. I was a locally competitive athlete (running and cycling) until about 18 months ago. I have pretty much had to stop all forms of exercise except the occasional...
It wasn't amoxi-- it wasn't bright pink or bubble gum flavored (and amoxi needs to be refrigerated). I was 15 when prescribed it but couldn't yet swallow pills so I was given a liquid. I was just...
OK, this is going to be a weird question....but does anyone remember a liquid medication (possibly an antibiotic) that didn't require refrigeration and was caramel or butterscotch flavored with a...
I have, but I get B12 injections, so it's to be expected for me. Carey...
Was going to try Results RNA Ultimate Lyme Support...will not be doing so now after both calling the company (and being sent to voicemail after asking my question) and then asking my question via...
I think you are referring to something else? This is a kit that comes with 4 different sprays that you use twice a day (I think), up to 6 sprays of each bottle. One is colloidal silver, but there...
Thank you...I did that prior to posting because I found very, very little information on it, and what I did find was almost all regarding the Colloidal Silver spray and not the kit. I don't think I...
Looking for people who have had experience with Results RNA Ultimate Lyme Support kit. Really wanting to buy it, sounds like a miracle, but can't find much information on it outside of the website...
So I got my 11 year old's results back today... IFA - less than 40 (negative) YAY! IgG 41++ IgM 39 IND, 41++, 66+ I've never even heard of 66. I don't have that one, nor does my older son. No clue...
Thank you! I was reallllly hoping I had spared them. I did have a couple miscarriages, too. Such an awful disease made worse by the medical establishment making us seem like crazies....
I am awaiting my first appt with an LLMD on 2/8/17. I can't just make an appt for my son(s). This dr requires a $750 membership fee to be paid upfront *prior* to any appointment being scheduled :-(...
Thank you. What type of testing does Advanced labs do? Urine? Blood? Do you need doctor's order? How much is it? I am considering DNA Connexions and it will be $1500 to test all 3 of us....
The guilt is definitely weighing heavy on me....
He did do the IgeneX test-- those were his results I posted immediately following mine: His were IFA 40, IgG & IgM 41++, 39 IND I'd love to do the DNA Connexions test for all 3 of us but that would...
It's ok, our tests were almost identical....
This was an IgeneX test :-( Once I have the papers in hand, I can scan them but the results I posted are as they read them to me. He has had pain issues-- leg pain as a child and stomach/abdominal...
So I've just got results for my 18 year old son. (Backstory-- I have had Lyme for 29 years but went undiagnosed until October of this year. Never even heard of Lyme disease until a few years ago. I...
Thank you! I have my appt with the LLMD on Feb 8th. Looking forward to it!...
I was thinking an Infectious Disease dr for the Epstein Barr, not the Lyme. Carey...
Your original reply says I was IND for band 39 so no further testing was needed.....what did you mean by that? That I have Lyme or I don't have Lyme? Thanks!...
I tried calling IgeneX today for clarification and they wouldn't discuss my own results with me. Said my dr had to call to talk to their dr. My dr is NOT lyme literate and I doubt he will call. I...
Yes, you're right-- it was ++ on band 31, IND on band 39. Do you know more about IgeneX's IFA test? I was 80 on it, which is positive...but could that also be a false positive due to chronic epstein...
K07-- Yes, back in 2009, I tested IgG positive for both EBV and CMV, IgM negative. I posted my symptoms in a response a couple posts up. Do you have a link for the urine test? Thanks!...