cdc requires high levels on 5 bands - I had lyme for a long time before the test so the bacteria had long since shut down my immune system so i had the lyme definite bands but not high enough levels...
A lot of the internet lyme drs are currently suggesting going after the parasites first . I had a jump in improvement after treating for parasites and i didn't even have a lot of visible results...
haven't tried this one but it is really important to get rid of the parasites....
Hi tune, you'll want to take care reading the results too, since especially if the spirochetes have had a while to burrow in deeply, your levls may not be high enough to get an official positive but...
welcome to the forum! I think you will find many kindred spirits here, with unfortunately similar experiences. We battle on. Or at least we try to stumble forward. find the little positives and have...
Laura I have no experience with what you are going through so not much to say other than remember you are and have been doing the best you can and the best you know how at the time. Prayers for all...
I 've had sharp pain (like white-hot pickaxe sharp) in bones joints and muscles but I missed the skin strings. so far, anyway! I have had intense itching, but not the intense stinging pain. this...
thanks for the smile!...
I quit almost all pain meds when the lyme was diagnosed and I started treatment. I felt it was critical to know how I truly felt, not how I felt on pain meds. I take a very occasional ibuprofen if I...
Probably not entirely wasting, but most likely the psyllium has been sweeping some of your breakfast supps out along with it. The one that is supposed to leave the good stuff while absorbing the bad...
congrats and thank you!...
artemisinin stops being absorbed so best to pulse. i do 3 days at a time. best absorption seems to be on an empty stomach with omega 3. I think I need to stop reading research papers. .....
daisies I get something similar although I do regular sauna. I thought maybe it was related to my sitting with my hands resting there but it makes no difference if I move them. The rash takes maybe...
the more authoritative readings I have done recently unanimously say tweezers as close to the skin as possible, then pulling steadily straight out until the tick lets go. Twisting is more likely to...
the last research paper that I read said glutathione is absorbed far better on an empty stomach. I take it very first thing when I get up in the morni g. By the time I make it downstairs half an hour...
I haven't taken it internally but it did a number on whatever was in my sinuses when I used a cs nasal spray. I admit I was surprised at its effectiveness....
welcome Ella! it is wonderful to converse with people who truly understand what you are experiencing - this can be a very lonely disease. Glad you found us...
they move a bit. For a while it was left eye (which I discovered I could moderate by massaging the right side of the back of my neck) but that has tapered off. Now it's my left arm almost every...
Very cool - like how she put the treatments across the bottom - nice....
I keep it in excel too, as the bottom part of my med/supplement checklist, so I track what I take and then rate the symptom categories. Periodically I graph the symptom ratings, which makes patterns...
Thanks, Trav, sometimes it helps immensely to have someone confirm what your instincts are telling you. PeteZa, it's a good thing to be lucky! And balanced!! I'm sure you still have (or had) better...
Since we're talking herxing, I am wondering your opinions on something... I have not been back to my LLMD since he changed my protocol to "see if we could get some more definite herxing"... I had...
(if I can remember my train of thought...) Some people are quite oblivious to their states of being, including paying attention to what their bodies are saying. I get the impression that most people...
I am on the trolley typing one-fingered on my phone so if this cuts off I will resume later. I am on a journey with this very question. I have had lyme &co for a long time, probably 20 years + , been...
oh, and warmth helps some too...
Huddie, as my joint pain gets less I have more (or now can notice it more) issues with cramping and muscle twitching and 'vibrating'. The only thing I have found to help so far is more magnesium. I...
my llmd said twice a day (before breakfast and dinner )but i like the idea of a more constant level. I do 3x on weekends and twice daily during the week. Taking tinctures to work is a pain (I take...
too funny! I 'm usually pretty good reading those and I read it the same as you did!...
refined sugar and especially high fructose corn syrup set off my joints big time! I cut out high fructose corn syrup several years ago but every once in a while a little slips in and boy do I know...
hey there BJD, I know how you feel! I was an athlete all my life until this, almost 7 years ago. I have the opposite weight problem though, I can't keep it down. I try to think of what I CAN do for...
I took up tai chi chih (moving meditation ) last summer -there's a class at the local y. It helps me a lot even if just for 30 seconds I visualize a wave of relaxing energy washing through me. And I...
do you mean are there any bacteria resistant to herbals?...
oslo is a wonderful place but you are making the choice you need to make. Ask sweet hubby to take notes and bring home brochures so you can plan a return trip some summer!...
there is a Delaware County lyme support group that meets 3rd thursday of the month in brookhaven. the topic you ask about comes up frequently. there are only 2 i have heard mentioned who take any...
i don't know how to do emojis or i would put a whole line of smilies- how wonderful that you are feeling wonderful! !...
I take them together - "them" right now being Japanese knotweed, samento, teasel, cleavers, burbur/pinella, and whatever else. I don't take them quite concurrently with my supplements because I...
I also take ginger and turmeric - good stuff. Fish oil, GLA, tulsi holy basil, gingko biloba, and reishi mushroom are other supplements with anti-inflammatory properties that I take. As far as...
I've taken glucosamine sulfate for my knees and other joints for a long time and I recommend it long-term. Joint pain has been the most consistent and obvious symptom I've had. I am walking better...
thisisnotme, hope you are feeling a little better today. actually I hope you are feeling a lot better but it's lyme so we have to moderate our expectations! how long have you had symptoms? Alcohol...
glad you figured it out, and thx for listing the protocol. Hope you feel better quickly....
you are doing GREAT! I hope the benefits keep coming! I am finding it easier as time goes on to get in more water - every time I take herbals or supplements I drink a full cup of water. Gotten to...
I think I have been infected for about 20 years but very sick since 2010. I have worked the whole time. I just put one foot in front of the other and keep going as best as I can. I am finally...
my doc same as yours on the tinidazole, Girlie, dosage and schedule....
I 've used a few different tinctures from them and had no issues and they seem to be effective. I wouldn't hesitate to buy them again....
My Llmd publishes an 85% cure rate. I asked how it is measured, since tests are inconclusive and we have a hugely difficult time establishing presence, let alone presence and subsequent absence! !!...
I have been working with an acupuncture dr (he's a medical dr as well but he just does acupuncture and TCM herbs now) and he is also what I will call a lyme survivor from lyme about 15 years ago. My...
My llmd had me on 2 combo tinctures from Researched Nutritionals, plus samento (and burbur /pinella continuing for detox ) I started at 5 drops each and worked up to ongoing dose of 30 drops each . I...
I do find taking double magnesium (morning and evening ) reduces the severity significantly...
I don't know what is causing it. .. I have something similar when I lie down at night but it usually lasts only half an hour or so. I also get twitches and cramping so I know what you mean about it...
I am sorry your voice has gone on sabbatical. Hopefully it will return at some point. I have sporadic hoarseness but I hadn't yet associated it with my lyme & co. I will pay more attention. my...