Thanks Girlie and Traveler, sometimes I forget to leave in important information. :) I personally had this for years when I was an adolescent. (Pre or during Lyme is anyone's guess.) I'm thinking in...
Hi All! So I went to an NYU rheumatologist who told me I had "fibromyalgia." When all was said and done he was nice and not rude like some doctors but when I mentioned an endocrinologist recommended...
So I'm not new to fibromyalgia. I've been sick for 4 years. I could call it chronic fatigue, fibromyalgia, or Post Lyme disease syndrome. (I've been dealing with Lyme and co. for most of that time...
My symptoms are: 1. Dizziness and vertigo spells. 2. Pins and needs in feet, burning and electric shocks 3. Muscle twitches 4. Spasticity? (Muscle tightness and knots in calves, shoulders, and back.)...
Thanks Girlie and Psilociraptor, Can you send me the names of those docs? I don't know about a lot of those doctors because they usually don't take insurance. I saw a Dr. B in upstate NY and a Dr. K...
I just had my thyroid tested and antibodies tested. Everything was fine. I'm just wondering if maybe being predisposed to autoimmune issues might have triggered one when I got Lyme. (One grandmother...
I got to the results of my ANA test back. My titer was 1:40 (negative) and my ANA fluorescence test came back with as positive homogeneous. My Lupus DSDNA test came back negative. Couldn't find that...
Yes, I started treatment in the beginning of 2014. I've done IV rocephin, lots of oral antibiotics, herbs, even experimental intravenous UVL therapy. I've seen a couple LLMD's. For various reasons I...
He refuses to watch or read anything. I've tried getting him to educate himself but my stepmother had convinced him Igenex is a bad lab, I'm nuts, and I'm "just trying to get attention." anyway,...
I currently don't have an LLMD. Can't find any on insurance and my father thinks that the Lyme is "in my head". So...I'm seeing an NYU rheumatologist next month who knows something about Lyme but...
I had a positive ANA test last week. I was tested for DNA autoantibodies but had none. (So no lupus) Can anyone tell me what this might mean or what it meant for you? Thanks!...
Apparently my ANA was "slightly abnormal" not high. Does that mean something? That lupus is unlikely? I'll get the lab copy on Monday. thanks....
I've read the "start here" post about lupus. But I want to know what you all think. I was diagnosed with Lyme, etc. three years ago. Despite treatment again and again, I never get any better. I had a...
I can't seem to find another LLMD I haven't seen on insurance in CT. :( a lot have gone off insurance....
I am seeing someone who was trained by ILADS but her knowledge of Babesia is rather limited and she's frustrated as to why I'm not getting better. This is my second time treating Babesia and no one...
So I'm going to two infectious disease specialists within the next month. I've run out of doctors to see on insurance and I'm limited by what my parents will agree to. (Much to my aggravation, they...
I just finished taking bicillin shots after four months. I took them also for four months about two years ago and within two weeks of stopping felt 60% better but then relapsed after 4 months. Maybe...
I just talked to a researcher who was very nice but I don't think he's right when he says Babesia Duncani doesn't exist on the east coast. (I live in CT, have traveled to CO and NM) But the point it,...
My aunt had an acute case of babesiosis years ago and never had Lyme. And I know especially if you were infected via fleas that people have bartonella without Lyme. I would say it's possible and does...
If I had a nickel for every time a doctor told me I have fibro....lol. Also live in Connecticut. Good luck! Make sure to test for co-infections too wherever you go. They can cause fevers as well....
I don't think pulsing Babesia and bartonella medications are really advisable. Also, both these at the same time can be hard on your liver, can counteract each other, and might just be too hard on...
From what I've read, cats spread bartonella because they usually have flea feces or their own feces in or on their nails. These feces are infected with bartonella and can spread when they scratch...
Huddie, I've had Lyme since I was about 6 and I'm 22 now. (It's a long story but my doctors didn't believe in chronic Lyme and ignored the positive tests for years and I had no idea.) That being...
Huddie, I've been treating bartonella with rifampin and biaxin for 6 months. In the last three weeks I've had some pretty bad bone pain but before that I was bone pain free for over two months! So I...
I too tested negative for bartonella until I went to Galaxy labs which specializes in Bartonella genus testing...I have bad bone pain too mostly in my shin bones and "long bones". I wouldn't rely on...
I did UVB for about 2 months once a week. For me, they stuck an ultraviolet light in the vein in your arm (a very tiny light) and you sat there for an hour. The blood never leaves your body or...
Rikky1, I have been in constant treatment since January 2014. So I know things go up and down and I've had Lyme for over a decade. Doesn't make it any easier with time though....
Thanks Girlie. :) that's what I thought too. I was a little confused why the doctor thought it was a big deal but I think she also worries because I'm petite. It makes me feel better though that you...
I asked my doctor about a general plan and she kept on saying, "I don't know. I don't know. It's not next month yet." (It was 8:30 in the morning and I think she might have drunk too much coffee and...
So just when I had about 3 months free of bone pain and joint pain, I got hit really hard with the muscle twitching, pain, and fatigue. I had the three best days ever on treatment just before I...
Lymepickle, I haven't missed any doses but after two months of no bone pain and improving energy, I have a week of mild bone pain and bad energy and then cold later to top it off. I think it's not...
Yes, PeteZa is right, listen to your doctor. However, I was negative for bartonella too from IGenex. It wasn't until I was tested two years later through Galaxy labs I was properly diagnosed with...
I have Babesia, Bartonella, and Lyme. The good news is it's been nearly two months without bone pain!!! Yay! Still get some twinges and sore soles in the morning but I'll take it and I've been having...
I was bit by a tick two years ago on November 1st. (I remember because it was the day after Halloween.) The tick bit me on my collarbone and died promptly thereafter, never even got any blood from me...
Alright! Thanks astroman....
Okay, so I know this was taken over a year ago. But these are the only records I currently have access to. Thyroid Peroxidase and thyroglobulin antibodies were tested for and were in range. T 3...
So Girlie, you don't have thyroid issues? I have really, really bad fatigue. I've never seen an ENT....
I'll ask for the results but I don't have them currently. :( I don't honk I ever had antibody tests done. Could I have a normal range of FT3 and FT4 and have antibody problems? I've been waking up at...
Okay, so I was at the dermatologists this week for something unrelated and he looked at my throat and said my thyroid looked swollen. (Granted he's a dermatologist but he's still an MD.) it's...
Girlie- that sound like a good schedule. Have you see any improvement? The Babesia and Bart are seriously a pain. Funny you mentioned the emotional herxing. On Mepron 2 years ago I would cry for...
http://gudhealth.com/petechial-rash.html#petechial-rash-pictures Mine looks similar to the first one. I do believe it's a "petechia like rash". I was pretty sure that was the term for it but I wasn't...
Mustard seed- I stopped taking it for that reason. Something happens in your gut to counteract the Art. ? Anyway, I'll start pulsing. I think I'm going to do 3 days on and see how I feel and...
Tickbite- No, like someone poked me with a needle. Just tiny pin-prick size blood spots under my skin all together in a cluster. Sometimes they are more spread out, like down my arm. They never get...
So Monday I started taking artemisinin again. 500 mg twice a day. I've taken it before but I over did t. Because by my fourth dose Tuesday night I felt terrible then at 4 AM Wednesday morning I woke...
Do you have Bartonella? I've heard of "Bart rage" and Lyme can do the same thing, especially when herxing on abx....
Yes, I know it's gold not plus, I just accidentally wrote the wrong one! Haha. Thank you though!...
The herx is still ongoing hit I'm hopeful this is a good thing in the end? I'm going to get my alka seltzer plus today. So I'll see if that helps. My LLMD isn't that helpful with the non-medication...
I'm taking liposomal glutathione, Epsom salt baths, drinking lots of water, milk thistle. Not entirely sure what else to do. I already take so many pills I don't want to take more though... My GI...
I've been taking rifampin and biaxin for Bartonella for over three months now. In the last two days my bone pain and foot pain is really bad. My chest wall hurts. I'm exhausted, foggy, and my muscles...
Yes, I have been told multiple times you need to be off antibiotics for six weeks at least to test for the bugs. I did that early February. (At least I knew I had to go off antibiotics anyway because...