For me it seems to be viral related. I am on and off anti-viral RX's. When they kick in or are attacking the correct virus- which is key- (I have at any one time EBV, HHV6, HHV7, cytomegalovirus,...
Thanks so much Dude and Girlie......
Aww, Girlie, long time no talk. :) Thanks so much. I will email you. I am so grateful you are getting good treatment!...
Bumping...I know this is an older thread, but anyone out there have any new LLMDs they would see if they could?? And why??? I feel like I am being taken to the cleaners with my new one, at...
Hello. It's been ages since I logged in. I gave up everything 1-2 years ago; including nearly my will to live. I just couldn't deal with it ALL anymore. Well needless to say, the Lyme sure hasn't...
I was just recently diagnosed with MCAS.There seems to be so much varied info out there about it, especially diet related. My doc said to stay away from amines, specifically tomatoes and red peppers?...
I often smell ammonia or similar to cat pee, and sometimes even gasoline when I take detox baths and sweat a lot. Sometimes I smell it when I am not sweating though. I know ammonia is a by product of...
Thank you for your replies. I will email you for some info. Does Dr J work with herbs as well? I was recently at Neomed institute and had good results with magnet therapy for my jaw pain....
Hi Friends. I haven’t been on the forum in a long time. Life got so overwhelming and painful with this disease, I had to stop. However, life with Lyme doesn’t stop and you can’t ignore it as much as...
Thanks! Just one other question... So logically then I can take binders, probiotics, etc anytime because the ABX are bypassing the gut? Or is there still a concentration window I should avoid? I have...
Thank you for the warning Traveler. Not sure why I am surprised but I never stop being amazed at the crazy and evil out there. I am so sorry you went through that. I sincerely hope it stops....
Traci I hope you feel better soon! Agree about the binder and pulsing. Agree too with you about the neuro issues. Usually when I herx it's neurologically with visual, olfactory, and auditory...
Started yesterday with Flagyl and next week with Augmentin. Some of you mentioned to detox. I'm not using these for Lyme but bone infection. So still same protocol? The usual detox approaches? What...
@ Pirouette- Thank you. I think there are two viral threads going currently, so I posted this to you in the other one. :) I'm concerned about the interactions like with ginger, licorice, Chinese...
Thanks Girlie! ;)...
I have used the one from Ananda Apothecary and really liked it. Seemed to help for pain. http://anandaapothecary.com/CBD-Oils/index.html Sorry I forget how to make the link clickable....
Welcome! I just replied to one of your comments and now I realize we are both in Europe. I may pick your brain at some point. Because I have a doc whom I feel is my only option. And well he's the...
Thank you for the replies! So as far as detoxing just the usual baths, lemon water, dry brushing? What about binders like charcoal? @Jinna-Geesh.Wow. You poor thing. Thank you for sharing your story....
1,25-dihydroxyvitamin D is the non activated form of vitamin D. Unless your kidneys activate this and transform it into 25-hydroxyvitamin D, there is no way you can get calcified blood vessels or...
I have tried them all and did not have a problem with any of them. I would use the chocolate for banana, peanut/almond butter type smoothie. I mostly used 1/2 scoop or packet per smoothie though. I...
@bekindpls- thanks! I will look into that supp! @Pirouettee- Wow, so glad you chimed in! I am on and off the forum because of neuro issues so must have missed your "story" I'm confused though. I...
Yes, thank you. This is what I was thinking of. Ok, good to know. Good discussion. Yes lymehater, you need to treat Coxsackie, like Traveler said. And the suggestions about Lysine and other...
I was recently diagnosed with HHV-7 and Coxsackie viruses. The antiviral I took caused psychosis so I had to stop. Just doing herbals. I am supposed to start IV ABX today but remember reading or...
Ok thanks Traveler. It seems obvious now that you say it, but it didn't occur to me. I know you understand with your jaw issues too. There was a post somewhere out there that I meant to reply to you...
Just wanted to say I'm so sorry. This sounds like a living nightmare. I am praying for healing, strength, wisdom, and peace for your sister and your family. Thoughts are with you. Big Hug....
Thanks Bekindpls! Have you taken any other anti virals besides Lysine?...
Hi friends, It looks like a lot of dental threads currently. Which is good but makes me sad too. The word is getting out about root canals, cavitations, etc. But so many are suffering. After my...
I am glad you posted this! And @ Girlie it's funny what you post about the Vit D council. Because my LLMD says the opposite or at the very least you need a proper ratio between the two. In 2015 I...
Hi BekindPls- I came on the forum to seek an answer to the same question. I haven't been on in awhile, as I go thru spells where I can't be on the computer. But I see this is an older post anyway. I...
Hi Healthexpander and welcome! I just wanted to say I agree with everyone here, lol. I think you need to hit this from all angles before it becomes to serious. I too, was/am a health nut. I became...
Oh Traveler. :blush: Thank you for your encouraging words. You always know how to lift my spirits. And I guess it does help to know you feel the same, as sad as that sounds! It really does often feel...
Awesome, thank you ChickenArise! Interesting stuff......
Yes, I just tested positive too. Don't know which one. I am on anti-virals for HHV-7 though....
Thanks all! I was happy to get the viral DX but now that it has set in, I'm feeling pretty hopeless again. It just seems to never end. Do you all feel like that? Is the Lyme causing all this immune...
I did it for awhile last year. I was actually shocked at the results. In 10 days I was able to drive again had energy that I haven't in years. Unfortunately I had to stop because I ended up with...
@blue- ha, yep!! :/...
Hey Friends, Just wanted to update on my dental cavitation surgery/disaster/crazy-ville/twilight zone situation. And it was a turn I definitely was not expecting. Quick recap: Cavitation surgery last...
Wooohhooooo!!!! Really happy for you and your family!! Thank you for sharing and keep up the good fight! :)...
Hi AzerilA- Why are you having wisdom teeth removed? The more interventions I have done to my mouth, the more I think mouths are prone to more healing issues than other areas. Are the wisdom teeth...
@dca-Thanks! I have a bunch of liquid nystatin so I have been taking that. Probably not as good but until I can get the others, it will have to do. @happyjo-Wow, thanks for this! When Dr. F diagnosed...
Hi ACF612 Just throwing my 2 cents in here. I have never had Igenex so I can't speak to that. Only multiple ELISA and Western Blot, which always showed CDC negative.(Although now I know better,...
@Hornett- I have been around the block with this one recently so I will share my experience and opinion. I have been posting a lot about it in the recent months so if you search under threads for "My...
I understand. It is so difficult to keep going. So so difficult. But we are building an inner strength, empathy, adaptability, character, hope, and patience to persevere. Which can be a great...
@Magoo2- ok thanks. Yeah, well I wouldn't be surprised if Lyme starts in the jaw. I did not have MAJOR Lyme symptoms until my root canals started acting up. We'll keep fighting and thank you for your...
July- Thinking of you and lifting you up in prayer. Big hug!...
Like others have said everyone is different. But my story is somewhat similar to Traveler's. And my theory is that it is highly related to gut health, which of course in turn is related to our immune...
Yes, you are so right. :cry: Although lately, I feel like I am grieving losses daily. Do you? Of, like you said, friends, family, and even things I never expected. I was asked to be a bridesmaid of...
@Magoo2- So I watched the video. I am just confused about one thing. 10 pass is just a higher dose ozone? So any doc technically who does IV ozone can do it? I used to work for a naturopath back in...
Thank you ChickenArise for posting this. I too was diagnosed with FM by Dr F when I was in PHX a few months ago. But I don't live there so I can't follow up with him and kinda felt like I didn't...
Agreeing with P!!!! That is all you need to fire him!! Have you tried quercetin? I just read your other thread about concerns using curcumin, so that's another thing that helps with both digestion...