Lymie 24, First of all, thank you for your service. Second, your question regarding exercise is one that is not well understood in the Lyme community, mostly because we don't understand the...
That's a great question, although at this point I think there is enough evidence out there to support the idea that borrelia can persist despite antibiotic challenge. I'm not sure IDSA would even...
Astro, I personally had a great experience with LDN. I would actually rank it as one of the top 4 treatment approaches I've tried (behind Dapto, Ceftriaxone, and HBOT). I stayed on it for about 6...
There was a post not too long ago started by astroman talking about CD57, might be worth looking up in the search bar. Personally, I think CD57 is very relevant. I can’t speak to its relavance and...
Astro, Great post and I've always wondered this myself. For those that have been sick for years and their body is no longer producing antibodies to Lyme, CD57 combined with C4a seem to be the only...
I'd say one of the key components to working regularly with this disease is a structured and adequate sleep schedule. You absolutely cannot let yourself get in a hole, because unlike healthy folk,...
If you have not been exercising a lot I would highly suggest doing yoga and/or stretching and isometric exercises. The idea is to get your mobility and stability back while maintaining good posture...
^^^^In addition to the treatment options posted by members here I think this is also extremely important. Unfortunately, Lyme treatment has not been funneled down to an exact science nor is it...
I've been taking Cat's Claw, Japanese Knotweed, and Andrographis for about 7 months now and haven't noticed any benefit. Personally I have seen more benefit from LDN and for the brief period that I...
Lots of good info here. I found that taking it at night was disruptive to sleep so I have been taking it in the morning. As you mentioned it's best to start at .5 mg and work dosages up from there....
One of the things I've had to completely give up since I got sick is alcohol. I think there is a close parallel between alcohol intolerance and exercise intolerance. There have been studies that show...
I've heard other catholics/Christians tell people their illness is because of sin etc. and as you mentioned this is a complete misunderstanding of the bible. If our suffering was a direct correlate...
I guess one of the blessings of this crap disease is that it serves as a filter for the garbage in your life. You literally only have the time and energy for the most important things and everything...
Astro, Thanks for sharing, very comprehensive. I have been confused by this as well, but have a theory based on my own personal experience and research. The problem with Cardio is that it involves...
I am a patient at Dr. H's office in the bay area and definitely recommend that office. Although I have only met with Dr. H once, the strength of that office is in the numbers. There are multiple...
Sorry to hear about your experience. Zithro and tetracycline and give me the worst anxiety and change my personality. I would find that I would have problems with obsessive thoughts and getting over...
Thanks for sharing your experience, sorry to hear the effects were not Lasting....
I think you are right. I went there for a year and was treated by one of the NP's in the office. When I decided to stop treatment it was only the. That I saw Dr. H as kind of an outpatient brief. I...
Joe, sorry to hear about what your going through. I think the majority of people on this forum are going through the same dilemma or have been there. It sucks when your trying so hard to get better...
UCSD, I use to have similar issues when doing intramuscular rocephine. Still haven't figured out why sometimes were easier than others because I felt like I did everything the same. What I did notice...
I beginning to see the validity in this. Being from the New England area, I think the uniqueness of those who are chronically ill is in their genetic makeup not so much in the bacteria itself. Ticks...
That's interesting you say that. I have seen similar reports by other people on different forums. Hope you get lasting results when you come off....
Thanks for the replies! The comments here are similar to what I have found on other forums. It helped some (a lot in some cases) and didn't help at all in other. It's really difficult to tell if...
Curious if others on the forum have tried this? It seems to be used for a wide variety of diseases with positive effects and almost seems to be a sort of miracle drug. My doctor put me on this about...
@MPOST Not sure if you have seen this research but they hypothesize that low vit d is the consequence rather than cause of chronic inflammation due to infection....
Runningwild, I hope switching that stuff out helps your GI issues. I think I've been one of the lucky ones that hasn't had a whole lot of GI issues and haven't noticed anything with abx or herbals. I...
Thanks for the response! Definitely curious and hopefully to hear how you guys respond to the protocol. I've personally started to rework my protocol and restarted with one herb at a time to see if...
david, your heart rate can be influenced by a number things. Have you talked to your doctor about it? Could be that your having an adverse reaction or herx. It could also be as simple as your heart...
tcoach, The statement your doctor made is actually quite loaded and goes back to the divisiveness in the medical community. I've heard other doctors say the same thing and have seen some research...
Thanks for the post Astro! Definitely going to try this as I also fall into the category of high nighttime cortisol. This is exacerbated when I exercise. Body seems to have an exaggerated response to...
I've actually not heard of this and had to look it up. Was not able to find a lot of peer reviewed research to support benefits of using a concentration mask while exercising, but I know myself and a...
Warrant, I had this problem a lot when I first became ill. Acne was particularly bad on my forehead. In my experience it is was more of a symptom of hormonal imbalance due to my immune system...
In term's of being chronically ill, I think more of case could be made out of bacterial persisters than bio-films. There is a lot of research to back up what Buhner saying, but if you do a search on...
Thanks for the info! I keep telling myself it's a good sign I'm getting a cold, but physically I feel awful. That's horrible that you get so violently ill. It's hard to hear that many on this forum...
Hey guys just wondering if anyone else experienced some set back when starting an herbal protocol? I've been on the protocol suggested by Dr. Bill Rawls which i believe is similar to the Burner...
I hear your frustration. I'm on year 4 now of lyme +coinfection treatment, have been on every antiobtiotic oral and IV, have tried herbs, HbOt, antivirals, changed diet and Am stuck around 65%...
I started with the suggested core protocol, which I believe is similar to the Buhner protocol, and also taking suggests herbs for stress/adrenal support. About six weeks in along with improved diet...
Hey All, Curious if anyone here has tried the Dr. Bill Rawls protocol. His vital plan mix is a bit pricey (around $300 for a month supply). Seems like you could get individual herbs from Green Dragon...
I've only been on it for 5 days and had a rough day today with concentrating and stumbling over words. Feel just as fatigued as I normally do, but hopefully it helps in the long run....
Kind of my gut instinct on this as well. I remember years ago when I was healthy I was experimenting with diets to improve athletic performance and what I came to find was that getting in enough...
Hey all, Just started the Autoimmune Paleo (AIP?) diet and was wondering if anyone else on the forums has had much success following the diet. It's incredibly restrictive and I'm not one to snack on...
Yes I agree. It's highly likely that the OP is positive. The intention of my words was to convey an outside possibility of a false positive for whatever reason b/c the OP is asymptomatic. Every test...
As CD pointed out Dr. Bill Rawls does a pretty good job of explaining how we become infected with various things (not just lyme) and for the most part these things become part of our Microbiome....
I've seen about a 40-45% improvement over the past 3 years since I first became sick. I was one of the lucky one's who only dropped to about 20% of my previous health so I was able to work but that...
Thanks for sharing guys. Definitely has given me some things to think about....
Hey all, I'm constantly trying to learn from my battle with chronic illness. One thing I have definitely noticed is how resilient, intelligent, and insightful, the chronic illness community is. I was...
guirmg, I was only doing the dapto 1x daily over a course of 2 hours. I guess that qualifies as pulse dosing? Thanks for providing the research link. Unfortunately I was on Dapto before that study...
I have experience with dapto. I was on dapto and ceftriaxone for 6 weeks then switched to the "preferred" combination of dapto, cefo, and doxy for 3 months. Interestingly I saw noticeable...
Thanks for the response guys. Ive been on antibiotics for over two years including IV dapto, doxy, cefuroxime Combo. It would be hard to believe anything could be cultured from my blood but then...
I recently tested positive on the Igenex Multiplex PCR serum plasmid but negative for the serum genomic. I was negative on whole blood tests. I was negative for all bands on the IgM and Igg western...