What are HPLC columns? Yes, I agree about the warning: everything must be clean that comes in contact with it.[/quote] HPLC = high performance liquid chormatography. http://laboratoryinfo.com/hplc/ ...
Please be careful with DMSO. It can be extremely dangerous and is not at all comparable to water. The chemical properties of solvents matter. I was a pharmaceutical chemist for over 13 years and have...
This protocol is for people with MS and neurological symptoms; there is a FB group. I have not seen many people with Lyme posting there....
Traveler said it helped her burning neuropathy....
I did Lion's Main for a few months. It did nothing for my full body small fiber neuropathy or trigeminal neuropathy....
An EMG/NCS measures large fibers. A punch biopsy measures small fibers. The symptoms you are describing are more in line with small fiber neuropathy....
Spot on! I got the first 30 days covered by insurance (it still cost 800 bucks or so for a month), so my doctor ordered one of the most expensive abx. After that i went out of pocket with Infuserve...
One of my friends could not get IV from Dr. J's Pa. She said that only a small amount of their patients get put on IV. And my friend has some very serious issues including ATN and SFN....
Awesome! What type of neuropathy symptoms do you have?...
I'm from Wisco and we definitely have a handful of people here who treat this disease. Some are fairly expensive and charge NY prices. Some are more reasonable....
IV abx have helped me the most. It's not so much as a place that does IV abx as finding a physician who will prescribe them for you. Not every LLMD wants to mess with IV abx or only use them for...
The numbness and wet leg sensations are text book small fiber neuropathy, which is an immune-mediated phenomenon that can be driven by both Lyme and co-infections....
IV abx have given me the most improvement out of everything that I've done....but my case of Lyme is reasonably extreme and neurological with a subacute onset of Non-length dependent small fiber...
I'm familiar with CHOP. They are not Lyme friendly. They are very well-known for their CRPS/RSD program for children.....i think they call it AMPS....
[/quote] It has gotten a little better especially the last 2 months. I've been dealing with this since the beginning of 2014. I was healthy prior to that....
I'm trying that same product right now....
I had acute onset full body nerve pain from Lyme and coinfections. It's definitely warranted to get an extensive work up for Lyme....
I have full body neuropathy. I've done supplements, herbs, oral abx and IV abx. The IV abx have been the thing that has given me the most improvement and symptomatic relief....
Yes one of them pushed their way into my FB thread and tried to over assert herself. I brought up the author and medical writer Pamela Weintraub (who wrote one of the best and most thoroughly...
At least one of them has demonstrated to me that she doesn't understand nor has really read the Lyme science. They are one of the reasons why the mainstream calls us "Lyme Loonies". I'm not a fan....
MRI and CT can't see everything in your TN nerve. TN type 2 or atypical face pain is caused by damage to small fibers (ophthalmic branch of your TN nerve has small fibers). This is a diagnosis of...
I might call up that number at the bottom of the CDC article and have a convo with author....
I don't believe that there are any humans studies which show this. These studies were done in a test tube and not even in animal populations. This is more of a clinical belief/theory based on...
For my grandmother, my great aunt, and 2 of my aunts who were all diagnosed with Celiac, changing their diet made a profound change in their health within a few months time. Unfortunately, all this...
The testing for Celiac is extremely poor. This includes if you get a biopsy because the biopsy can miss damaged tissue. Many people in my family have been diagnosed with Celiac...some of them at 70+...
Curcumin, MSM, NAC, ALC, RALA and Fish oil....
I'm hoping for inflammation and pain reduction only....
I'm currently trialing a product from Blue Bird Botanicals called Hemp Classic 6x. I'm taking 10 drops a night.....but I don't like the taste so I actually prepare it in a capsule with olive oil. I...
My friend who is a nurse used to do my bandage change. Now I do it myself with help from my significant other. I agree that it's not that difficult to do. If you are going to do it yourself, maybe...
I've gone through the same thing. Full body, rapid onset sfn.....Neurology recommended pain mgnt and I found out the cause was Lyme. I take a large dose of gabapentin and nortriptyline daily. Unless...
I've had full body neuropathy for the last 3.5 years from Lyme and co-infections...
Just a heads up on pain mgnt. I know here at the teaching university in my city, you have to have certain very specific diagnoses to get into the pain clinic and there is a 6 month wait. Lyme is not...
I go to the clinic in Pewaukee/Waukesha. Are you familiar with them?...
HI Huddie, so sorry to hear your son is still suffering so terribly. My heart goes out to him and you all. I hope he sees a breakthrough soon! Madison, do say more about getting bcbs to cover the...
It's hard to get insurance companies to approve IV abx for "just Lyme". If you do get it approved, usually it's due to a case of encephalitis or having evidence of Lyme in your CSF. Now if you have...
I had BCBS PPO. My lyme was diagnosed by a LLMD (well, technically an LL nurse practitioner). My LLNP accepted my BCBS insurance so my appointments were on a 20 dollar copay. My insurance changed...
I've been on IV abx for 7 months. Out of everything I've done, it has helped me the most. 1. IV abx will entail that you have a nurse to change your kid's bandage once per week if you get a PICC...
Phioph also had full body small fiber neuropathy, so it makes sense why mHBOT helped....
If it feels like acid is being poured on your skin, then you could have small fiber neuropathy....
I was on 3200 mg of gabapentin a day. I'm currently down to 2400 mg per day. It took a while to adjust to it and I do very well on it; not everyone does well on this drug....
Vitamins work in tandem with each other and have cofactors. If you over supplement one vitamin when you don't have a deficiency, you could be creating a problem with toxicity or you could create a...
This testing is reasonably common. A fair amount of people in FB Lyme groups have CVID....
Fakespot.com is a website that can be used to determine if a product on Amazon has fake reviews....
Which one? (here are five different ones in the link I'm refering too.) IgA 60-400 milligrams per deciliter (mg/dL) or 600-4,000 milligrams per liter (mg/L) IgG 700-1,500 mg/dL or 7.0-15.0 grams...
I've had this test done, but did not do the vaccine challenge since my subclasses were not low enough. If your doc orders this test, they are looking to see if you have CVID...which would qualify...
I tested positive for this. I'm on valtrex....
One of my friends goes to Dr J's clinic. She says only 10% of his patients get IV abx; 90% get oral abx. She is actually not happy because she has serious neuropathy and wants IV abx....and the PA at...
http://aonm.org.uk/sites/default/files/styles/LBC_Lifting%20the%20Veil_Common%20Sense%20JSC.pdf Here is a slide deck from Dr. J (Washington DC). He sees a lot of tick-born dysesthesias (SFN) with...
This is very common. SFN is immune mediated in the context of Lyme. The immune system gets confused and attacked the dorsal root ganglia and you develop those antibodies. Have you considered getting...
If you are not on some type of continuous pharmaceutical for pain management for the nerve burning and are not consumed with how much pain you are in every minute of every day, you would probably...