i've been told i have acid reflux for years. taking otc meds like pepcid don't help, they make it worse. for the past two months i've had a hard time passing stool through my small bowels, and now...
1000 Daisies, it's funny you should mention the wild fires because I thought of that myself! I live on the east coast though so if I'm smelling the fires from out west, I think I might have super...
I need to find a LLMD who will treat with IV abx. I have neuro lyme and GI problems and I can't take oral abx at the present. Have been to four LLMDs and all of them use just pills. Doesn't matter...
Thanks, everyone! I'm glad to know I'm not the only one who's experienced weird smells. It started so suddenly and randomly, I'm hoping it goes away just as suddenly and randomly. In the meantime I...
For the past week I've been smelling smoke and it's getting worse. At first it was just once or twice a day for a few minutes, but now it's happening more and more often and lasting longer. It seems...
I just had an endoscopy. The doctor took biopsies, to check for h. pylori and other stuff, and I bled so much from the procedure that I am now anemic and have to get iron through an iv. There is a...
So lyme can be transmitted sexually, but can it be transmitted through saliva? Like by kissing someone?...
Thanks, everyone, for your responses. I'm going to talk to her later today, hopefully she will understand the seriousness of the situation. And even though I have met some amazing people in the club,...
Wow, I really wish I could participate in this but tonight does not work for me :( Maybe I can get in on the next webinar. Leaky gut is my #1 issue, which no doctor wants to treat [or even...
My friend went to the doctor today because over the weekend she found a quarter sized reddish bulls-eye spot on her arm. She said she pulled something out of her arm that she thought was a tick. (She...
MA10, wow that's interesting. I'm not sure how beneficial that would be either, but maybe it would help. Unfortunately I can't use birth control, as I've gotten really sick from it in the past....
dmonica, I had a hida scan and it came back normal. The surgeon I met with said he wasn't gonna take my gallbladder out as he believed my symptoms were not gallbladder related. finisului17, I'll ask...
One year, I went six months without having a period. The doctors said I was just "too thin" and "too stressed" to have a period. They also said I was anemic [I wasn't]. I was convinced I had ovarian...
Hi there, I too have experienced the vibrating feelings. They are very unnerving and sometimes downright annoying. In 2011, I was in bed and shaking when I noticed several things across the room...
Just wanted to chime in... Migraines were the first issue lyme caused for me. They started about two years after I was bitten by the tick. I thought I had a brain tumor because my head hurt so badly....
Thanks, Pirouette, for sharing your journey. That is some intense stuff. I'm so glad to hear you are doing so much better now, it gives me hope that I can get better too. I have a few of the symptoms...
Has anyone here experienced, or know of someone who experienced, pancreatitis? I read some stuff online about how lyme or co-infections, babesia in particular, could cause this. In the seemingly...
Thanks, everyone, for responding. I feel a little better now knowing that I'm not the only one with a low WBC. PetZa, I'm trying not to worry about things I have no control over--my blood test...
Hi, All. My white blood count is low [3.4] and I assumed it was the lyme causing this, but one of my doctors said that only a virus would cause a low WBC. My LLMD said lyme co-infections could lower...
My tongue burns all the time. It's one of my main symptoms and one of my most disturbing/annoying ones. My mouth burns too, and my tongue sometimes swells and is painful. My LLMD said it's from lyme...
Hi, DisneyLove. I've experienced the upper middle abdominal pain too, with the hardening and bloating. I went to the ER one day because it got so bad and had an abdominal sonogram done but it showed...
My other liver and kidney tests are ok. The BUN is the only thing out of range....
Mine are always low. As in, super low. My doctors, regardless of who they are [ER, primary care, specialists, even LLMD] always ignore this and tell me my labs look ok. But the BUN is not ok. What...
Hmmm, interesting. I will have to check out Dr. Jemsek's interview. I guess it's good then that my llmd doesn't think I'm serious enough to need the iv. That's sort of encouraging. I know my llmd has...
My llmd will not let me do iv antibiotics. He keeps insisting I do massive quantities of oral abx. I do not understand this. I have a lot of stomach issues and this is why I think the iv abx would...
4x daily? 4 capsules, or 4 drops? If it's capsules then extreme dizziness is probably not going to be your only herx symptom cause that is a lot of oil of oregano to start out with....
I've taken oil of oregano. My herx symptoms were fairly mild: a little anxiety, some moderate dizziness, a slight headache. Also had some explosive poos [sorry if that's tmi]. And if I didn't take it...
Thanks everyone! I will ask for glutathione in my next cocktail. I think Myers is my favorite kind of cocktail ;) I would have one every day if I could....
Hi jaspi, I have gotten Myers and glutathione in a combo formula, but I have only done it once. I have also just gotten the Myers by itself. I responded differently to each, but I think the Myers was...
Thank you, Purrrsiankitty! I'm googling Genova now....
Purrrsiankitty, how do you test for leaky gut/candida/mold? I think I have problems with all three, but my LLMD just keeps throwing abx at me....
This was my second ever cocktail, but no glutathione was added. I did have glutathione in the cocktail I got last week. Maybe the glutathione made the difference? Last week after I got the cocktail I...
Yesterday I got a Myers cocktail; I felt energized and my pain level went way down. Today I'm exhausted, I'm super anxious, my ears are ringing, I'm dizzy, my head is full of pressure, and I'm...
I have three IgG bands positive in my western blot: P30, P41 and P66. (No IgM bands positive). As I understand it, 41 and 66 are not lyme specific but 30 is. When I tested ten years ago, P41 was the...
My pulse sometimes drops down to 52 at night. This is disconcerting, but my LLMD didn't seem to think it was a big deal. A few years ago my resting pulse was 120. I had tests done on my heart but...
Interesting, one of my main symptoms is a feeling of internal burning. I've often wondered whether it's from the lyme, co-infections, candida, or something else....
I do have a problem with molds but like bluelyme said, ooo hits many things. The oil is effective against bacteria, viruses and fungi. I only herxed in the very beginning when I first started using...
My symptoms are hot flashes, burning all over [feels like I'm on fire], feeling like I have the flu [aching, feeling hot, chills], intense pressure in head and neck, feeling like I can't get enough...
I use Oil of Oregano and rub it on my spine or head or wherever hurts. I also take it internally. It helps to reduce pain, pressure and inflammation. When I first started using it, I herxed really...
I know I have lyme [chronic, nearly 14 years] but am now concerned I have co-infections. I'm basing this on some of my current symptoms which are not lyme typical. This lyme flare is different from...
Thanks for the info. At this point, I doubt lyme will ever show up in my bloodwork so I'm gonna think long and hard about the IGeneX tests since they're not exactly cheap. And sadly, no, I didn't get...
Before I got a lyme diagnosis, my primary care physician [pcp] thought that I could have MS. I thought maybe I had MS. I had tics and twitches and all over burning sensations and muscle spasms and...
I've been so sick for the last two months and finally figured out it was my chronic lyme flaring up. Since my lyme was never treated with abx when I was diagnosed in 2008 [just used very minimal...
Yes, I've had the stomach extension but I have gallbladder issues. I sometimes would bloat from just drinking a glass of water. It could be candida/fungus, but my bloating started up right when I had...
I've been having bad pain, bloating, spasms, nausea, weird poos, excessive gas for nearly two months. Went to ER, they said they didn't know. Went to gastro, he laughed in my face and said I was...
I also have the blurry vision and floaters--some days I swear I can even see little spirals. And when I have migraines I see flashing lights and colors and all sorts of fun things. The cotton-wool...
Thanks, Pirouette, I will check that article out! :) I wish CD57 was a good measure for progress--I'd really like to see my progress in black and white. Unfortunately with lyme, measuring progress is...
I definitely have lyme--had the tick bite and rash and flu-like symptoms and everything. But I want to do Igenix so I have a "positive" result to show friends/family who don't believe I have lyme. I...
When my CD57 was nearly 150, I felt horrible. My doctor was shocked to see me with such a high number. He thought I was doing great. But I was still extremely sick. So I'm not really sure the test is...
I was previously diagnosed with cotton-wool spots on both of my retinas; I thought I was going blind at the time. The spots went away after a few months. Saw three doctors, including a retina...