symptoms lingering after two weeks are the slightest of twitches only in lower legs. A little fatigue at times probably due to die off.. Working though....
Dapsone 25 pill once daily. Dr said I could go with more but because of the dangers of the drug I am staying put....
Been two weeks now using dapsone once daily with tindemax once daily and clarithmyocin (perhaps misspelled) Had a slight die off. labs which are required are normal. first time in two years my...
Yes I am taking my first blood test tomorrow. This apparently is strong stuff and can cause anemia...
I am taking Dapsone, with tindemax and clarimyocin (not sure of spelling) now. Stress outbreak as usual has caused both ankles to hurt. No swelling butrally hurts. Has anyone here used dapsone?...
After a very stressful event in a day or so I awoke with pain in both ankles. Mostly around the area where the shoes are at their highest. Never had this before and I am certain that the stress...
Thanks!...
Very bad stress induced flair up with both ankles. can hardly wear shoes. Starting dapsone protocal already. wondering if it is inflammation from the stress also. Ibuprofin? Darn, Darn...
Hi guys! Been a little while but updating the ole lyme stuff with me. 2 Months of Vanco and timedemax plus lots of supps. August ,sept 2017 All fatigue and most of lyme stuff gone. Still some...
Hello all. Just checking in with everyone. Let's see... Been off the vanco for a month now. Strength and overall wellness is much better. Still working on the twitching though in different areas of...
Thanks everyone. Actually did vanco with Tindemax for 6 weeks. My doctor uses the theory of Lyme persisters. Next up is probably Dapto and other abx added. Dr Chang has articles on this...
Missed all of you/ Been of Iv vanco for 3 weeks now. did Iv diflucan for 2 weeks and tounge is nice and clear. symptoms burning at times very bad couldn't hardly walk 90% better fatigue (we all know...
My score on second test indicates a jump to 2795 opposed to the original score of 1850 the prior month. Does this mean my lyme has increased. I have been treating for bart primarily ....
Just had a really high psa score come back where the blood was drawn through my picc line. I am always very steady with my scores so this doesnt make sense.....
I have been blessed with this since 2000. Many years off and on of abx. Iv is only abx which works on me. Tried the oral diflucan and swish and swallow nystatin but it couldnt clear yeast. Iv...
No I had blood testing. Titanium was it that was WAYout of whack....
Doing a 2 week break from Abx to approach the bad candida with IV diflucan. Who knows this might be the final piece to the puzzle as some weakness and twitching resumes. But wow did the Vanco help!!...
Had metal testing come back and only issue on the test were very high levels of titanium. I have read that this can also cause neurological problems. Anyone know about this?...
Thanks, I'll try the sera something first ... :)...
Won't the tindemax help with biofilms?...
Actually I have been undertreated for several years only to do Iv for 2-4 weeks at a time. This dr understands length of therapy I feel. Orals have never worked with me....
After 7 weeks of IV vanco and tindemax, pretty much main thing left is twitching still. Dr says possibly is die off but I've has this before this. doubled up on mag but no help. going to stop with...
I was bitten in 2000 and went 2 years of misdiagnosis. Had 3 tests come back positive for lyme over a 1.5 year period. Have done quite a bit of abx and only IV works now. Actually had it knocked down...
Progress, slower this time but progress.. Burning/ 100% gone Weakness / 75% better. Still have some work here Twitching / Seems to be the lingerer . Mostly at ankles and feet though and not at all...
I still take an antiviral twice a week. In my case if feel that the stress triggers the fatigue portion of this and most of it is ebv....
Progress slowing but still some. Burning still at 95% gone Twitching is more of a tingling now but still about 50% gone Weakness is about at 50% gone Doing Tindemax and added iv diflucan. I can see...
Most likely it is. I got a test called mtfhr back and it showed I was positive in it. This gene can cause b12 absorption issues which I must have due to the extremely high score I had in a b12 blood...
I am very curious as to reasons why I have remaining symptoms of tingling ankle muscle areas (more after exercise) and still some weakness. Fatigue and burning are much better with treatment....
Looking online there are so many blood tests which are available for vitamin and mineral deficiency ?...
They called me about the very low score. Wanted to know if I was fasting. No. I read some about diflucan and glucose levels bring low....
Never had glucose levels drop before as Iam taking weekly labs while on the vancomycin. Just added the diflucan last week. Perhaps this is the cause... Also fatigue is bad....
Did you treat the yeast while still treating Lyme. I hate to stop Lyme treatment. Taking nystatin from drugstore Probably has sugar in it...
Yes. Lots. Been a year of lots of Abx though...
Yeast is very bad. Oral doflucan 200 once daily and nystatin 4 times daily won't clear it. Using garlic and very strict no carbon sugar diet. Tounge is thick with fungus for weeks and stomach is...
Dr is giving me Iv diflucan. Can't clear yeast work nystatin and oral diflucan. When I take diflucan I get awful exhaustion....
I have been off and on this year with IV and oral. Too much......
4th week of IV Vancomycin.I saw Dr yesterday and we are going for anther month but also including IV Diflucan as my yeast is out of control. she mentioned that some of my remaining symptoms can be...
Yeast and all the supplements we take can also cause issues. Perhaps take a day or two break on the old tummy......
Yes i am doing alkaline seltzer gold and lemon water and charcoal. Fatigue seems to hit between 12 and 2 every day....
Any ideas on why especially when I take nap I'm not "Lyme tired" but when I wake I am. I had energy all day and woke up from 30 minute nap and am exhausted....
Using tindemax now. this is last scheduled week with IV and my Dr appointment is this Thursday. Not sure what is planned now. I do want to keep the line in though....
Yes. I am doing charcoal and lemon water and Ali's seltzer gold. Tired with headaches. Burning still very minimal though. 😃...
Took 3.5 weeks but fatigue and other symptoms are having a field day. Good I guess...
1st of all having a really hard time keeping the yeast away. can you take Diflucan and NYstatin together and while on abx? Update burning is still way down to almost nothing Twitching is primarily in...
Nothing new added. Have noticed even more twitching. Perhaps herx....
Had this awful fatigue before but it went away but after 2.5 weeks of treatment it's back?not sure what gives here...
Funny how I concentrate on all the other stuff and completely forgot about burning. Twitching drives me nuts. Now pretty much in ankles 90% of the time....
Let's see now Scale is 10% lots of issues to 100% good no issues Burning 90% Weakness 50% At times 75% good Twitching 25% Not much change Fatigue 80% triggered with stress Hanging in as this stuff is...
I realize as many Lyme treating and treatments there are quite a few opinions. Individuals who did this for me are trying to help I truly feel. Again no sypplements were pushed not reoccurring...
I had an analysis of live blood cell yesterday and truly was amazed at the spiros on the two slides. the action of them and then when the slide was pressed how they were almost seeming to fight out...