Thanks for the info, Georgia! I'll keep that in mind....
-----> Hi Boots --- sorry I did not reply sooner. I have been distracted with other exciting things (like sleep apnea, GERD, reorganizing my house) and so haven't been too active looking at Lyme...
Posting this since it's been a big part of my chronic illness journey, and I'm sure some can relate to it. Maybe it'll even help / inspire someone. Over the last year or so, I've been coming to grips...
Since Medicare comes along with disability in the US, I figure I'm not the only one. I'd love to hear your experiences! e.g., Compared to "normal" insurance, how easy / hard is it to get approvals /...
Yes, I have noticed something that looks like an oily film sort of frequently. And sometimes kind of cloudy urine, sometimes smelly, etc. Makes me wonder sometimes but I've almost quit caring. FWIW...
Now I don't mean "enlarged" like pathologically or anything, I'm sure some doctor somewhere would have told me that by now. But my resting pulse just relaxing at home is in the lower 50s, and while...
I just got one and when I’m still it seems to compare favorably to my pulse oximeter and BP monitor and what I know my rate usually runs like. But if it scans when I’m moving around, it’s number...
Just a caution on saving abx ....... my understanding is that doxycycline degrades into something harmful over time. (One of the few common drugs that do)...
Thanks folks! I know I read bout keflex on here though and the consensus seemed to be it doesn't do much for Lyme. Interesting about Bactrim, I must not have looked very hard for that one (Lyme brain...
Just to add another potentially helpful tidbit - think of all the different forms of a given supplement, say zinc. My first search result lists these different forms: Zinc gluconate Zinc acetate Zinc...
Disclaimer - I'm not an expert either. However - what I do know : *Epsom salt does "contain" sulfur... In about the same way that table salt contains sodium (let me come back to that) *But sulfur is...
Oh and in case it is relevant, I did not have any cuts etc at the location of the swelling afaik. A couple little ones other places on my hand though.......
Hey all, I've had some swelling in a finger, they have thought it is an infection. Antibiotics are making me extremely fatigued and unable to deal with life. Is this a typical response for non-Lyme...
Thanks blue. I'm guessing the thread you mentioned would have the info on doing a stain? I will look it up if I get to the point of time and money to try things out. Curious anyone else's thoughts on...
bumping for more visibility...
I remember reading about this several years back, before I ever suspected Lyme. "A stable cardboard microscope body and precision-manufactured glass bead for a lens", cost to make is under a dollar,...
"You don't look like a doctor" OK, maybe you shouldn't say that! Sorry you're facing that. Regarding the disability - I am looking at (re)starting that journey myself. Sounds like you might be on a...
Does anyone know much about blood flow / perfusion of the brain? I am dizzy / lightheaded for a lot of the time, possibly as part of Lyme et al. When I'm feeling a bit better, focusing on getting...
bump again?...
Hey everyone........I guess I never posted my LTD results. Thanks to everyone and especially gkamom for the advice! My experience was similar to gkamom's but thankfully not as intense and drawn-out....
Oh, sorry to hear that you're dealing with all of that! I have been getting something like rib pain recently, and pelvic pain is not uncommon for me. I am glad for the others' experiences they've...
To clarify - in the interest of science, I have *added* Cowden and tinidazole while staying on the Buhner....
tldr - Worst week or two in a while. am I doing something wrong or should I expect this, esp after a treatment change? (Cowden to Buhner) So I feel like I've been going downhill for the last couple...
Come to think of it, I have had something else that is quite possibly related..... For years now, after I eat some particularly oily things, I seem to almost exude it out of my skin. Especially the...
Thanks. My current, non-LL, ND has really pushed on me to work on digestion, although that started a couple of months before the last test. I really have no digestive symptoms, but he's big on it and...
Aaand another update, went and had the echo and treadmill test along with visiting with the cardiologist. Initial results all came back "normal", per his first look over things and whatever they sent...
So ever since my first cholesterol test, around 2006, my numbers have been very low. Since 2013, when my major problems started and I've gotten more tests, they've almost always been around: HDL...
Thanks everyone for the advice! I had the exam last week. I did not remember to be completely fasted although it had been several hours. I did try stopping treatment 4 or 5 days ahead also. The...
Wisco - I like your thinking about "at least it's not causing major heart problems". Interesting twist to this story lately.... I hadn't ever bothered with the follow-up tests they recommended, both...
Wow, that's wonderful for both of you! Thank you for sharing the story - I saw your post when you were going there and am glad to get an update. Especially useful to know about Lyme vs. coinfections....
I do seem to be aging a bit extra myself. Early 30s, have noticed a grey hair or two the last couple years, and now the grey does seem to be spreading more. At least under my chin :rolleyes:. I don't...
Thanks for the responses! bluelyme - on the teasel, is that something that I would take for, say, a few days or a week? That is kind of what I was thinking as well. I seem to remember that on the...
Hi all, I have an appointment for dark-field microscopy in just under 2 weeks. Given that they'll be looking at fresh live blood for spirochetes, or anything else interesting I suppose........is...
I thought this was fun and somewhat relevant. :) https://embryology.med.unsw.edu.au/embryology/index.php/Movie_-_Neutrophil_chasing_bacteria ...
Soooo..........I grabbed a copy of the reports from my latest EKG and Holter. I was told they were normal except for a low rate (50s resting, down into 30s asleep; but typical for me). Looking at...
Sorry to hear you're having those kinds of issues! I likewise have unexplained chest pain that hasn't shown much on expensive tests as of yet (the doc wants some more). Mine does get worse with...
The Holter came back pretty clean, as expected. Some "PVCs", premature ventricular contractions, which the PA didn't seem to think were too serious. And the rate was still low....all the way down to...
Walking past my shed just now reminded me of the day last month when I was getting ready to drive somewhere, on a particularly off day (in a particularly off couple of months). Started backing down...
Yugo - sorry to hear all of that. I and many others here can relate to much of what you've been going through. I can only second some of what's been said already about testing, I am not an expert....
Mergirl, I sympathize with a lot of what you're saying. It can be really confusing and conflicting advice doesn't help....well, no one knows everything and every body is different. And cooking isn't...
Lately I've realized how many other people I know locally with Lyme or other difficult chronic issues. I know this group has been a lot of help to me (thank you!!!), and I know it's easy to lose...
The Dude - would you do that by replacing the entire car? ;-) Trav - love your idea! The more I think about this, the more the idea of that much cash actually scares me some. Not just the new...
Once in a while when driving, I notice the lottery billboards advertising huge jackpots. I don't play the lottery so there's no real risk of me winning, but you know how you get contemplative when...
Hoo boy.....yet more from me. In one sense, as you all know from experience, these can be kind of funny from a distance. But for the time they waste, and the frustration and havoc that they...
Well, I'm glad we're having this discussion. The stories of late payments helped me be a little more aware of what's going on when I was updating my Quicken just now.....I'm so disorganized lately....
So an update - I've been feeling worse for the few days after the test - as expected for that much exercise (not much really, but for me at present it was). Then again, poor sleep hasn't helped...
Thanks everyone for the comments. I went ahead with the 48-hour monitor. Some cardiac-like symptoms occurred during it, but not to the extent of what they were a few weeks ago. Of course, after 20...
Oh and Casa - I'm with you on taking breaks in the car during errands. I do that a lot. Haven't ever been busted for it though! That's tough. I finally gave in and started driving the little cart...
Ha....yesterday after looking at this and posting, I tried to go down to the gym to (carefully) do my self-paced therapy. Several times had that nagging feeling I was forgetting something.... well, I...
Thanks JustPiccd. Definitely agree it's not to be taken lightly. I hadn't realized about Lyme heart deaths being a big thing. Do you have any links / ideas when or where about that study? I have a...