I'm glad people are finding hope and inspiration from my story. I want to add that I can not stress the importance of addressing your mental health through all of this. It is so easy to get into this...
Quote from Dr. K in Washington: "We have never had in the last five years a single MS patient, a single ALS patient, a single Parkinson's patient who did not test positive for Borrelia Burgdorferi....
I took Liposomal Glutathione and I think it helped. I would ask about desiccated liver supplements as well. My acupuncturist actually recommended them, and I think they helped me as well....
Forgive me if you've addressed this before, but are you seeing an LLMD? Nausea was one of my worst symptoms. My doc prescribed Zofran. Lots of it, and it really, really did help. It's also pretty...
I haven't posted or visited here in a really long time. But the reason for that is because I am well!!! I remember how hopeless I felt when I was in the throws of this horrible disease, so I came...
I would avoid Synthroid and request that they prescribe a natural desiccated thyroid medicine. Much, much better for you. WP Thyroid, NP Thyroid, and Armour are some brand names. They still require a...
I can give you the names of the LLMDs in Houston (one even takes insurance). There are also 3 in Austin. But I'm not able to message you. Please message me, and I will give you their names....
I've done it and can see the benefit. It also just makes sense to me. I do think the whole program is tedious. And I don't think it is a miracle cure. However, I think when we are so sick, for so...
I believe Dr. H has a general guideline in his book of symptom free + 3 months. It will take different people different amounts of time to get symptom free. It also depends on which co-infections,...
Thanks, guys. The results are from a DNA Connexions test. She was tested through my LLMD. It's actually my friend's daughter, who is 17. She is very sick and has been for about a year. A mutual...
Is it possible to have Babesia and Bartonella but not Borrellia? I have a friend in this situation now. Tested positive for Babs and Bart but negative for Lyme. Never heard of that before. If the...
The only one I know of in the US is Infusio. They also have a location in Germany. Infusio uses your own stem cells. They extract them from your fat cells, replicate them, and then give them back to...
I wish you the best of luck! I think Infusio is probably the best clinic out there. If money hadn't been an issue, I would have taken the first plane out there....
As Missouri has said, the test you took is horribly inaccurate. Even the CDC admits it only catches about 50% of cases. A Johns Hopkins study found that it only catches 30%. Google Dr. Horowitz's...
I have never seen him but have heard really good things. Are you on Facebook? If so, join the Texas Lyme and Tick Borne Diseases group. Very active and lots of people on there see him....
It means you have those things listed. You wouldn't have the DNA for them in your system if you didn't. I tested positive for borrelia recurrentis too. It's actually a pretty common strain (Dr....
Amen to all of this. I decided to do abx for several reasons. First, I do think they are harsher, but that's also one of the reasons I chose them. I did not want to go easy on them. Second, they...
So does that mean they are going to recommend that people with tuberculosis stop taking long-term antibiotics? Or that teenagers stop taking long-term Doxy for acne? Funny how they only contend that...
I'm still avoiding gluten and probably always will. But I know people who have used Gluten Ease and swear by it. One friend takes it before eating every time she goes out to eat because she has been...
Thank you. That is very helpful. I wonder if me still being on abx is keeping it a little low....
Thanks, I searched before posting but didn't find what I was looking for. Will search again!...
Thanks! I will ask about the astragalus when I see him next week. I just started the Cat's Claw and Japanese Knotweed about a month ago, so I don't even think I had started them when the tests were...
You see Dr. T in Austin too, right? I don't know why he doesn't do the CD 57 right off the bat. Maybe he doesn't put too much stock in it. Glad to hear you are doing so well! I am anticipating being...
So I haven't been on much because I've been feeling great. Seriously the best I've felt since long, long before becoming sick. I have been doing great for about 3-4 months. No symptoms at all. I see...
What lab did you use?...
Have you been tested or treated for Babesia? It can cause those symptoms....
Like the others have said, you have Lyme (and co-infections). You have positive tests for Lyme and co-infections, and negative tests for the autoimmune disorders, so why would you not think it's...
I also am a big fan of bone broth. I love the Bonafide brand. It's in the freezer section. Whole Foods and Sprouts carry it. It's all organic and grass fed / free range....
Thank you for all the responses. I will start with one drop of one and work up. Which one would you start with? I have no co-infections, just Borrelia (two strains). My LLMD will keep me on abx until...
I eat a super clean,basically Paleo diet. My LLMD also recommended a supplement called Restore for Gut Health (available on Amazon and elsewhere). I think that really helped too. I also take 2...
So I am doing really, really well and my LLMD is ready to wean me off the abx. But he wants me to start with Cat's Claw and Japanese Knotweed sort of to "clean up" some bacteria still floating...
I used DNA Connexions, and it was the test I got a positive on. I exercised. Luckily I was having a good day and was able to hit the treadmill pretty hard. If you do a massage, it has to be a deep...
I tried oil of oregano in the past, and oh, boy. One drop (literally) sent me into a tailspin. No interest in trying it again. I've actually heard a lot of good things about silver from folks with...
The silver is just another tool to kill the bacteria. Once I have the silver and neprinol under my belt for a few months without symptoms, he'll wean me off the abx. I'll still take the neprinol and...
I know there are a ton of posts on colloidal silver, but I can't find one that addresses this. I am still on abx - Ceftin 100mg / day and Doxy 200mg / day. Took me forever to get to a full dose, but...
I agree that it may be an adrenal thing. I would see about having them tested again. Levels can fluctuate from day to day. I would also see about hormone testing. What supplements / herbs are you...
Is minocycline a cyst buster? I thought it was more like Doxy, but I could be wrong. He had me on Tinidazole for cysts, which kicked my a**, so I had to stop. Grapefruit Seed Extract is a good cyst...
I good therapist is wonderful. They can give you techniques to help manage the anxiety. I've also found acupuncture has been really helpful for everything you mentioned. My acupuncturist has done...
I haven't stopped my mineral supplements, but I space them out from the Doxy. I take Doxy with breakfast and dinner and my vitamins/minerals with lunch....
And I wanted to add that you WILL be posting a success story here. Hopefully soon :)...
Good to hear from you! I've been thinking about you. I was doing better - May was the best month I've had in forever. Then last month it all went down hill again. Just now feel like I'm coming out of...
Welcome. So glad you found us. Traveler is in AK. Hopefully she will pop in and be able to help you out....
I am the OP of this threas. Please enable your email, and I will send you a list of the LLMDs in Austin. But honestly, 2 weeks is not a long wait at all. Many LLMDs have waiting lists months, or...
More than half of people with Lyme disease never recall being bitten by a tick. Bands 39 and 23 on the Western Blot are specific to Lyme. In other words, you have Lyme. I would definitely start...
Also wanted to add that Grapefruit Seed Extract is a good cyst buster. You can also buy it as a tincture, so you have more control of the dose....
My doc had me on it three consecutive days, then four off. I would start with one a day. It can be a doozy....
The tini could definitely be causing the herxes, especially if you haven't really hit cysts before. I would recommend going to to 250 mg per day for a while and building up....
Maybe some kind of wasp or asp? Those things hurt and can leave a welt for a long time....
I agree with BabsBunny. Check out malarone. It contains atovaquone and one other drug (I forget which). It's also pretty inexpensive (I think)....
First of all, welcome! I'm not sure what this could be. Do you maintain a pretty healthy / clean diet? My acupuncturist recommended I take desiccated liver supplements and ox bile to support my gall...