Thanks Girlie, I agree with your assessment that I do need to find a new doctor. I am on a waiting list for another one but not sure how long that will be. I am taking D-Mannose and Cranberry...
I was diagnosed with Lyme 2 years ago and wasn't getting better so I switched doctors. My new doctor ran a bunch of tests. The tests were done on an empty stomach and I have been gluten free (almost,...
Hello, I continue to have UTI symptoms that come and go. This has been happening for at least two years When it flares I have lots of lower abdomen pain, back pain, lots of pressure, frequent...
Thanks Girlie!...
Thanks everyone, I did test high but I'm not sure exactly what tests were done. I haven't been able to open them up in their portal yet. I'm not sure why she tested me because I don't have any...
Hello, I was wondering how many of you were diagnosed with Celiac Disease after your Lyme Disease diagnosis? I just received a diagnosis of Celiac Disease last week. My head is still reeling from it...
Thanks, all. I follow the AIP protocol (paleo for inflammation) so I don't eat grains, sugar, dairy or alcohol. I do try and drink about 3/4 of a gallon of water since I am using a Rife machine. So...
I was diagnosed with Lyme and Bartonella in September 2015. I took abx for 18 months and only got about 30% better. I switched LLMDS and she uses supplements in addition to abx if needed. She had me...
My stomach will do that the minute I eat any dairy or any other thing that I am highly sensitive too. I have been on a very restrictive diet for about 9 months (AIP Protocol - Paleo for...
I use medical marijuana for pain and it has been a life saver. I use a vaporizor which is supposed to be better for your lungs. It really helps with my neuropathy in that it makes me fall asleep. CBD...
I have used the clay in a detox bath. I know it helped because the next few times I took an espom salt bath there was a ton of tinly black particles. The one problem is that it's a bear to clean out...
I too have horrible nerve pain, which has gotten much better after almost 2 years of treatment. However, the minute I get a bacterial or viral infection it flares right back up. If I walk too far in...
I have use Kratom off and on. I never had a problem with opiates but I don't think I have ever take any. But I have to use quite a lot of kratom to have any effect. I use the red strain for pain....
I don't want to scare you, but last night I was looking on the internet because my daughter in law has the same systems. Pain around your belly button could be appendicitis or PID (pelvic...
I'm so sorry I didn't thank everyone for their input. I really apprecaite. I got pretty sick and was off the gird for a few weeks until I finally felt like myself. The shingle pain is gone. It...
Thanks runningwild, I am taking several probiotics and a digestive enzyme but I just can't choke down lemon water or ACV which usually I drink all the time. I'll try and put my big girl panties on...
I had horrible leg and foot neuropathy when I first got sick. Sometimes my whole right side would go numb and it hurt like nothing I have ever experienced. I am so sorry you have to go thru this. I...
Thanks all this is all wonderful information. I am printing it all out so I can find it easily . I do have a Spooky2 so that info is great. My new LLMD ran a bunch of tests so it will be interesting...
Traveler, would this hold true if your still treating Lyme and coinfections? I haven't gotten a tick but I am scared to death I will. Thanks much....
I just started seeing a doctor in Carmel, Indiana. She is a medical doctor but focuses on supplements and other treatments. She did a ton of testing first and has someone help you with your diet. I...
Has anyone developed a resistance to antibiotics if treated for Lyme and coinfections with antibiotics? I used many different antibiotics for 18 months. I only got about 30% better and then my...
I uses the Spooky 2 and I think it's the thing that has brought me the furthest. I however use the remotes and at the lowest power possible or else I will herx something terrible. It's taking a long...
Traveler, I don't know what tests my doctor is proposing since I haven't seen her yet. I guess I thought I remembered reading somewhere that you could test to see if your Lyme was in remission....
Peteza, I forgot to mention that I didn ask my first LLMD about getting the shot and he was against getting it. First he said my immune system couldn't handle it and second he said it only covers a...
Traverler, thanks for your post. I do take most of the supplements you mentioned and more. I've been holding back on getting any new ones until I see my new doctor. It just flared up really bad...
PeteZa, thanks for your concern,, it is very sweet of you and I do so appreciate it. I did go to a doctor but just didn't post it. Since I was in between rashes my GP didn't think anything was worth...
Hello, I was just wondering if anyone else experienced this. I stopped taking abx a few months ago, but was still treating with supplements and a rife machine. The abx were causing major problems...
In my case, as I have continued with treatment some symptoms will go away only to be followed by new ones. My doctor gave me the example of peeling back the layers of an onion. For example I am being...
I'm following one protocol called Lyme and Morgellons. I have a Spooky2. I'm only on preset 28 and there are up to 78 so I have to go very slow or I herx really badly. Each preset hits different...
I use flea and tick treatment all year for my dog and cat even though we live in northern Michigan. There is also a vaccination now for Lyme. I was just talking to a lady whose 6 year old dog has...
Redeye, are you doing the same treatment for Tinnitus as you did for Bartonella? Welcome to the group!...
My lymph nodes hurt but don't seem enlarged. I bounce gently on a mini tramp which is supposed to help move the gunk through the lymph nodes. Sitting on a large ball and bounce also is supposed to...
Pirouette, thanks for your recommendations. My LLMD didn't want me to go on biofilm busters because he said they were too hard on your body. I have some so I'm going to take them since I'm not on...
Traveler, I dropped my phone in the tub last week and apparently blew out transferring pictures. (which sucks. I also have to use speaker phone but I guess it could have been worse.) Anyway, our...
No more like a sore opened up. It's a very tiny hole and it doesn't look like anything is seeping out of it. Sorry, if it's too much tmi. The red spot is very dry and scaly but doesn't itch or hurt....
I have used it and it really had no effect on me. I took two containers and then stopped. I'm not sure what it means. Maybe I just have co-infections and my old Lyme infection is in remission....
I live in a very rural area and it's about 20 miles to the grocery store. So my husband has to go for me. They have some organic foods, but many times they really don't look so good. I try to stick...
spaztick, I couldn't open up the link you posted. I have a rash now so I really wanted to see the pictures. Mine developed after I had horrible pain in my neck for about two weeks. Once it popped...
Thanks Georgia, great information. I'm not sure if you know but I was reading an article about how to space out your supplements to get the most effect. It was all overwhelming for me so I follow...
Hi Lena, I had never heard of your diagnosis so I was googling around to learn about it. I'm not sure if you saw this or if it will be helpful but it was posted last year on this forum. I'm saying...
I'm not sure if everyone will see this, but I hope so. Well, my upper left arm continued to hurt. as well as my neck. The pain in my neck got really bad. Last week I was up most nights because of the...
After reading Pirouette post, I was trying to find out if Michigan is a state that requires doctors tell their patients that a negative test is meaningless for diagnosing Lyme. I came across this...
Hi there, I thought I just had to post about my visit to my GP that I had this week. Before I was diagnosed with Lyme and co-infections I couldn't sleep and I had horrible anxiety. I took Klonopin...
Thanks much! -L...
I get them periodically. I'm on a break but I have researched and been told that jumping on a small trampoline helps the gunk moving out of the lymph nodes. I do it and it really seems to make it...
Thanks, Lanie, great information. I really appreciate it. I just mentioned Lyme, coinfections, and a virus all cause inflammation which can raise blood sugar. I will definitely check out the...
Hi, I've never posted on this site before site before, but I have some questions regarding a blood glucose test. I have Lyme Disease and probably a couple of co-infections. I had my test done when I...
Girlie, I guess you missed my post where I said that I'm not using kratom right now since it stopped working. I'm waiting three months before I try it again. I again, there is no sense using...
Thanks everyone for your insight. I'm not sure what I'll do. Probably if I see my old "friends" I'll just be polite and cordial. If they didn't even have the time or the fortitude to shoot me a text...
I'm not sure if I'm the only one, but I was wondering what/how people did/felt about the people who abandoned them while they were sick. I haven't spoken to my family in almost a year. It's been at...