Are you able to go to a university's dental clinic to see an orofacial pain dentist??? UNC Chapel Hill and Univ of KY are considered the tops. A good nightguard fitting, their resting instructions...
PeteZa, I know this post is old but stool tests are notoriously false negatives and even the blood tests for things like giardia are false negatives. I disbelieved after an old time farm vet...
Thoughts on the UniKey Cleanse/Gittleman protocol?...
ShmilyKate, May I ask in which state did you have your hip labral surgery? Thanks for you info. I've been holding off b/c I had other issues slowing me down (neck locked up & vertigo following a dose...
Would anyone be able to tell me how to have your pH level tested? I do have the pH strips but am not sure how accurate my own testing w/it is......
Have you been seen an orthopedic doc? Maybe you need a MRI....
If you could go to Dr. J in DC or Dr. P's office (to the CNP who works w/him), whom would you choose?...
A newer LLMD in the Triangle area of NC accepts it. Pretty sure this doc is finding big obstacles along the way so I'm not sure how long this doc will be able to take the insurance....
goshawk, You are right. Some PT stole those concepts! I've had both done and Grafton was hideous, but ASTYM is way easier and I felt it helped. May I ask what you've used for treating Bart? Any...
astroman, Sounds pretty similar to Gaston technique or ASTYM. I guess I know where PT borrowed those ideas now......
Maybe I should try Rimfampin?? No clue how it's spelled. Ha. https://news.yale.edu/2018/03/08/enemy-within-gut-bacteria-drive-autoimmune-disease...
goshawk, Thanks for the reply! Wow, I'm glad you've found relief from this. I have been tested once thru Galaxy (Dr. Breitschwerdt's lab), 2x w/LabCorp & once w/DNA Connexions... they came back...
I have been dealing with achilles tendinosis (not -tendinitis... tendinosis is much more complicated and it doesn't help we've moved since all this mess began so continuity, etc.) & synovitis for...
I am posting in reply to the comment that one would think a parasite would show up in stool sample test. I so wish this were true, but apparently stool testing has had no real significant...
Did you have a stool sample sent out for testing? I have, but it was sent to a DVM, which sounds weird until I think about the fact that's how they determine a lot about their patients (animals!). I...
laughingduck, What kind of lab did you use for stool testing? Thanks....
Hi, You can mail in samples to his office. I am hesitant to post where he's located bc I saw an ID doc at a univ. who laughed about the vet and said "I'm sure he has no bad intentions, but he doesn't...
I know a DVM who tests. He only charges about $36-40 and will check for tapeworms, giardia, etc. He is doing God's work, IMHO, b/c regular "labs" aren't doing well checking for parasites...
This sounds like me! Has anyone had a MRI? Mine showed herniation c4-c7 and mod stenosis between a couple of those w/vertigo and dizziness everyday since early Aug. Back in vestibular PT w/emphasis...
k07, I missed your reply. I will enable the email if you right now if you are able to reply. I too was in OH for several years before moving to Greensboro. I actually think I picked up Lyme in OH (or...
Spanish, I'll have to look into cerc 16mg. I am barely functioning... literally even turning to get dressed or shower sets off bad dizziness/head pressure & vertigo (diagnosed and in PT for, but even...
Does anyone have any knowledge/thoughts on Mona Lisa Touch procedure? I'm perimenopausal & considering this procedure. I'm overwhelmed with so many things, but would like to try this as it sounds...
I hope someone else can answer this question too. I've had vertigo and severe dizziness every day for 4 months since completing 10 days of doxy for RMSF (did another 10 days a few weeks later). I...
k07, I am wondering if you might contact me about your experience w/integrative docs in WS. Think I've had Lyme since 2013 at least and finally was diagnosed w/rickettsia (RMSF) and Lyme by WB this...
adey123, I know this thread was from 2 years ago, but how has your c spine stenosis been? I too have issues (herniation from C5-C7 and moderate stenosis). I drove 7 hours (husband driving) to see my...
Raleighgirlie, Did you find an opthamologist in Raleigh? I found a LL optometrist in Greensboro area... wish the MDs all had the same perspective he does. I know there's a LL optometrist in the...
Do you think ozone would be okay to use this with or without abx? I'm so confused about ozone therapy too, but am interested. Checking out that video now....
The list is below. Any thoughts are appreciated. \ Thank you!! Amoxicillin 1500 mg 2x/day for 21 days Probenicid 500 mg 1x/day for 21 days (only if amoxicillin is used) Doxycycline Hyclate or...
What kind of doses are people starting out w/to treat Lyme & its other lousy friends? I started Buhner's herbal protocol + more per LLMD's protocol 2 months ago. Have held off on abx b/c they are...
10LymeB, Did you go ahead w/braces? Curious b/c I have a similar situation....
Spacie Gracie, May I email you to ask who your neuro is. I'm assuming you're in the NC/SC area. Thank you!...
KatS! Have you noticed any improvement using stevia? Thanks!...
Does anyone recommend where to buy lion's mane?...
Traveler, Is there somewhere I might be able to find what you've used to treat Lyme? I ended up on this thread b/c in the last 4 months, I've noticed the tops of both greenish-brown irises have...
springsjean, May I email you to discuss how you've done w/trigeminal nerve pain (one of my many symptoms)? I had the scratchy throat about 2 years ago which turned into almost a year mess of reflux...
ShmilyKate, Thanks for the update. I am sorry about the psoriatic arthritis. My brother in CO has it and somehow he went from pain to finding the right medicines (injections?) so that he has been...
ShmilyKate How has your hip issue been? I hope you are doing better. I too have multiple tendon/cartilage problems including a small tear in my hip from a MRI 6 months ago. I've been doing PT w/a PT...
I know this post is old, but in case anyone else is dealing w/these symptoms... an esophageal manometry, pH study and probably barium swallow and/or upper GI are needed. Dysphagia is a bad feeling!...
Piroutte, One more question... may I ask what state you saw this Lyme knowledgeable neurologist? I recently joined a Lyme group in NC and all the members said no neurologist in the state recognizes...
Pirouette, May I ask what you think about my LLMD only testing me for just a couple of co-infections (leaving out some other ones Buhner mentions)? She used a big named lab co and didn't send out to...
Jinna, You mentioned a allergy test? Do NDs do those? I don't have a ND, but could find one. I am starting w/an herbalist soon who was recommended by an herbalist listed on Buhner's website....
Jinna, What are binders? I've not heard that term. I'm also wondering what Dr. K's products are? Is this a doc on the west coast? Did you use any specific anti-yeast herbal? Also, thanks for all your...
dacarte3, May I ask what kind (or how bad) was your herxing? I know someone who recently died at 49 from c diff from abc which is part of my hesitation, of course....
WalkingbyFaith, Thanks for your reply. I actually have berberine bc several months ago (before RMSF & Lyme diagnosis), I was told I had parasites by this LLMD. I ended up using tons of papaya seeds...
Does anyone have any advice/input on treating Lyme w/o abx? I am leaving abx on the shelf as an option based on my gut feeling. However, I realize I may have to use abx eventually. I have Stephen...
Hi. Have had numerous neuropathies/severe nerve pain (trigeminal included!) and muscoskeletal issues 4 1/2 yrs. Neurologist tested for Lyme, RMSF & bartonella in July. RMSF (rickettsia antibodies...
bleepitybleep - If you've had it for 4 years..it's not in the Acute phase.[/quote] Girlie, I said "supposedly" b/c the IgM is elevated and, of course, the ID doc says that. Has anyone had elevated...
Mine ranged from 8 to 11, which is really low but had dropped quickly between 2013-2015. Some reason my CNP didn't tell me that and I just assumed all was fine. Then I began having dysphagia so she...
k07, I just began "treatment" w/doxy so we'll see. Getting testing through Galaxy soon (Dr. B from NCSU) which appears to be the most accurate for bartonella testing. Tendinosis, dysphagia, chronic...
vcham, I am also in the Triad area & just diagnosed w/RMSF after 4 years of numerous neurological & muskoskeletal issues. Supposedly, it's just the "acute" phase but I don't have the acute symptoms...