I am in the same boat. I go to Fox Valley Wellness Center in Wisconsin and can barely afford it. I saw a mom with 2 kids in there at my last appointment and I thanked God it's just for me. I can't...
My #1 is carpal tunnel like symptoms - burning, numbness, electrocuting feeling in my lower arms and hands. This also causes a measurable decrease in grip strength. My muscles often feel week, but I...
That is fantastic news for you - best wishes! You've been so helpful here - I know you'll do great!...
The neuropathy in my hands and one arm has been off the charts awful for about a week now. It's interrupting my sleep and REALLY awful. My doctor says it's common and there's nothing to be done. Does...
The doctor that I worked with for the oil rizoles passed away so I can't go back to her, unfortunately. No other doctors are recommending them either....
Thank you guys so much for the quick and good responses. I flip flop between being super pissed and thinking I'm crazy and should just do whatever it takes to get me well. I've had good luck with oil...
I went through a huge ordeal of testing starting last October with seeing my Primary Care for Carpal Tunnel. She referred me to a neurologist who said it was most likely MS, but did an EMG and a...
I was just put on Plaquenil for EBV. My doctor said that they need to address my viral infections first because I am not responding well to abx because my immune system is too busy trying to fight...
Yikes!!! I'd seek another opinion too, I think. Some of the European strains have wicked neurological effects, I have a cousin in the UK that got Lyme there and had Bells Palsy at first, was treated,...
I was going to post a similar question, Josh. I just saw my doctor for a 2 month check after starting treatment again. Test results showed me positive for both EBV and Coxsackie Virus. The naturopath...
So sorry! I find I'm more sensitive to heat than I used to be, but I also feel AMAZING after a good sweat. Are your kids old enough to help out a bit more? I know that comes with a healthy dose of...
I'm not sure, but she is retesting Type A IgG and IgM and Type B Antibodies....
Interesting...I am positive for EBV too :-( I don't see my doctor again until well into June so I'm not sure what she'll recommend. These results were from blood work drawn in early April so I'd...
My doctor's office rang today and said that my Coxsackie tests came back high so I will need to repeat them in 4 weeks. The tests take a couple weeks to come back so I won't know anything for a bit...
((HUGS)) I'm sorry. I know it's frustrating, but I think you did the right thing. Hopefully where you're at right now allows you enough flexibility to get you through this next round....
Good point about "the healthier you are when you start". When I was first diagnosed, I was in really rough shape and I made it through. I'm just really frustrated at the moment....
Thanks Girlie! I did 3 weeks this go of absolutely no dairy, gluten or sugar. I'm also vegetarian except for fish oil supplements and probably other things in the supplements I don't want to know...
I'm back on treatment after 6 years off. This has been a 10 year ordeal for me so far. I thought I needed carpal tunnel surgery this fall and that has snowballed into all sorts of doctors agreeing I...
What is POTS?...
A lot of people said "So....are you like NEVER going back in the woods again?" I live in the woods. Face ---> Palm....
Just wanted to say Hi - again. I had been pretty active here in 2010 as I was undergoing treatment for Lyme Disease that had likely gone undetected/misdiagnosed for about 3 years. I did 6 months of...
Almost everyone immediately asks me "Don't you get that from a tick?!?!" Yup. One of my besties at work always calls it my Key Lyme thingy - which makes me crave Chobani Key Lime Yogurt, lol. I was...
Traveler - WOW! Thanks for that great explanation of how to interpret test results....
I had this problem as well - numbness, tingling, or even a burning sensation. For a long time, I had a really hard time writing as well from what felt like severe cramping and fatigue. It has gotten...
Hi Tickinit! I have been off abx and all naturopathic treatments for a year now and am doing pretty well too, but still jumpy if I have so much as a little bit of a symptom that I had when I was sick...
I got good results on it as well. Good luck, Cat - you're in my prayers! Time to kick some Lymie butt!...
I'm with Traveller on this. If you can find a good holistic or naturopathic dr. soon, do that. I went on Epsilon and Gamme Rizols that really gave me the same benefits as abx without the nasty side...
Quick background: I was diagnosed with Lyme in 2009 and it was estimated I'd had it since 2006. I had a baby in 2007 - the pregnancy was TERRIBLE - lots of Lyme symptoms that I chalked up to the...
I used the large bottles of 3% and 2 cups of Epsom Salt per bath and got good results. Good luck - hope you can get to a LLMD who can give a clinical diagnosis or better testing!!! -Allie...
If you can, channel some of that worry into making sure you are doing all you can do. Sometimes I catch myself getting kind of lax about diet and exercise or even taking my supplements. I've watched...
I talked to my np last night finally and she said it was most likely a reaction to an anti-parasite oil we had just started. I took my first dose at dinner Friday evening. She said parasites can...
Friday night I was awake in bed because my husband had gotten up with the dog. I had my eyes shut but saw some big flashing lights that I thought might be lightning. I opened my eyes and there was...
Are you off everything? Herbs and Rx meds? Just curious. I'm off meds for almost 3 months but added tons of herbs and supplements - would like to be off everything before I post my victory thread,...
((HUG)) I had Candida overgrowth and probably some other things overgrowing in my gut that caused WICKED food cravings - especially for carbs and sweets. I went gluten and dairy free recently and it...
My dog got Lyme on the same hiking trip that I did. She was treated right away (funny how it took 3 years for ME to get treated) but I don't think it was long enough. She ended up with really severe...
I just had an intestinal barrier test done and I had REALLY high antibodies to gluten, dairy, and all sorts of yeast. I'd been wondering how much of my GI problems are from Lyme, how many are from...
LOL - I feel a little better knowing that others are in the same boat. It just seems crazy to me. I never counted, til my husband was taking some vitamins one morning, did a deep sigh and said "I'm...
I keep a notebook with a page for every day. I write all my to do list at the top and I start me meds list at the bottom. I usually make 3 columns - Breakfast, Lunch and Dinner. But "Breakfast" also...
Here's what I'm on right now - all per my naturopathic doctor and I'm off ALL my prescriptions which should feel pretty good. I shouldn't have counted - that just freaked me out. 45 Chlorella tablets...
Mine is low and I do have an absorbtion problem so I get injections as well. Can be a Lyme thing but can also be related to a host of other issues as well....
Sorry, but it seems CRAZY that I am a headache away from 100. Is anyone else in this boat?...
Amen! I could not believe that a friend of mine was on Doxy long term in the same doseage that was prescribed to me for Lyme. My son was once prescribed abx for a virus and when i questioned the ped....
Thanks for sharing Dagger, I'm sure what you said hit home for others as well as it did for me. I've been off abx since June and that was my second round. The first time I made it from probably...
Hi guys, Not sure what testing you had done for EBV. I had a Epstein Barr Virus VCA Antibody IgG that was on a scale of 0-10. Mine came back a 5.00 which my Dr. said meant I had been exposed to EBV...
I have had a few too. I just use a warm compress. The two that I recall when they were I was definitely run down - shortly after having a baby for one and after or during pneumonia with the other. I...
Ditto what Allie said about quality. I take 500 mg capsules. I started with 2 caps 3 times a day with a meal. Then went to 3 caps, 3 times a day, then 4 caps 3 times a day and maintained this. Now I...
Often times when you treat Lyme you do get sicker before you get better. It's called a Herxheimer reaction - not sure on my spelling. I was the sickest I have ever been in my life about 3-4 weeks...
Hi Marlene - I'm not sure on that one. My Naturopathic doctor put me on more of a circulatory support regiment for adrenal fatigue. So I did CoQ10 in the Ubiquinol form and Nattokinase because I have...
GREAT Topic! Achieving Grace - I loved what you said - lots of truth there for me as well. This week has been really rough as far as medication/supplements go - was crying the other night thinking I...
Do you know how long you had been infected before the diagnosis? I would keep track of your lingering symptoms and re-check with your physician. If she still says you don't need further treatment,...