Hi saraeli, I would love to have a wooden sauna but I have no place to put one but my uninsulated garage and I've read that is not a good place for one. I worry about EMF's and off gassing of the...
BeKindPls, you're very welcome....
I can not tolerate high doses either so my doctor put me on Thorne Basic B Complex. It is the active vitamins in low mg or low micrograms. Thorne has other B-complexes so make sure you look at the...
Georgia Hunter, I didn't know that about Quercetin. Good to know since I take it and always blamed my bruising solely on babesia and collagen loss. Thanks....
Congratulations Girlie! I am very happy for you and I hope this will take you the rest of the way to complete health and feeling good....
WalkingbyFaith, I can't seem to get a handle on any of my infections so there is no way I see taking VIP in the future. I hope you find relief. A sauna might help if you are able to sweat. I...
WalkingbyFaith, yes I do have the susceptible genes. The TGBF1 normal range was 867-6662 pg/mL and mine was 3400. I couldn't handle cholestyramine. It caused stomach pain and blocked me up for a...
saraeli, even my C4a was low and I have neurological lyme. So who knows....
saraeli, she used the National Jewish health lab for the C4a. The other tests were the C3a, all the HLA-DRB's, HLA-DQB1, MMP-9, TGFB1, Osmolality, Melanocyte Stimulating hormone and some others that...
Thank you saraeli. I actually did the DesBio series for lyme and babesia and bartonella back in 2014. I did three boxes of lyme/babesia and two of bartonella. I had no reaction but I forgot about...
Thank you Sebreg. Yes, I skipped a dose of the alchornea and will add it back in at a lower rate. I have had no luck with herbals so far with bartonella. Cryptolepis and bidens pilosa definitely keep...
I've been on Buhner's herbals for 17 months but only about 5 months of 1/4-1/2 tsp of most of them. It took a long time building up. Pretty much sick the whole time with plenty of detox. Previously...
iamjen, I went to the clinic two times in 2018 a few months apart. I do not feel it helped me. In fairness, during my visits I had also started tapering the diazepam I had been taking to control...
k07, I may try it in a couple of months too. Good luck to you!...
k07, it is hard to tell at the moment. I have been slowly tapering diazepam and almost off. The problem is most of the withdrawal symptoms are exactly like lyme, bart and babesia so I have no idea...
k07, I see Dr. SR in Chapel Hill and you are correct that she doesn't take insurance or treat lyme or co-infections with antibiotics. She is a LLMD who believes in immune support, herbals, mold,...
Thank you sebreg! I think all the moderators are so special for their dedication and time....
I was very healthy until I was bit by a medium sized spider on my shoulder in 2001. I killed it and flipped it away. Ten days later my symptoms started and I was told at the hospital that my illness...
Hoagie, it sounds like things are turning in the right direction for you. I am so glad you were brave enough to pursue this treatment and share the ups and downs. Wishing you all the best and...
So very happy for you Girlie!! Thanks for sharing good news....
I use to get my LDN from Belmar Pharmacy but they no longer ship to North Carolina. I now use CareFirst Rx Specialty Pharmacy in Cinnaminson, NJ. They are the same cost as Belmar-$53 for 90 days with...
There is Facebook Group called Rifing Lyme that may be able to help you with the conversion. They allow discussion of all machines and treatments except for the Spooky 2. The Admin of that group does...
Thank you goshawk for helping us!...
julala, it is the Immunokinoko but he now labels it as Core Essential Immune Modulator. Immunokinoko comes in 500 and 750 strength. Mine is the 750mg....
julala, I just got back from the clinic. He is a very compassionate man who truly wants to help. I've been to so many doctors and tried so many different modalities of treatment that I am a very...
ChickenArise, there are two urine tests that are supposedly very good at identifying the mycotoxins/mold in the body according to my doctor. One is the Real Time Labs Mycotoxin test and the other is...
Girlie, we all stick together. I have no idea how everyone can remember so much about so many diseases. I didn't realize plaquenil had a long half-life!...
julala, I have never taken plaquenil but I know several people who take it while treating babesia. The one thing I learned from them is that Plaquenil can be very toxic to the eyes. Some LLMD's...
Girlie, I think that you, the other moderators and all the veteran members that respond and try to help us are all awesome!! I know that I can come to this group and get valuable suggestions for me...
I do not believe that the body just attacks itself for no reason at all which is what we are told happens in autoimmune diseases. There is a cause for everything and I personally think that in my...
julala, I'll let you know how my visit goes at the clinic. I go next week! I have recently been speaking to a woman that goes there. She said she just followed their instructions because she had...
Sarahjane09, saying a prayer for you to find your path to healing....
When I take charcoal at night I always have normal bowel movements the next day. The blacker stools occur on the second day for me too and it has always been that way. I don't have lower back pain...
I was told I have reactivated EBV and I do not have swollen lymph nodes....
Deejavu, thank you so much for all the information. I am definitely going to look into the Microbojen and the Borrelogen. I have taken the CNS Antitox Neuro and Cardio for a couple years and I...
julaia, hoping you have a successful visit and healing....
I have reactivated EBV and my doctor says I can use prescription antivirals or monolaurin. I have used Lauricidin in the past but not for EBV and really don't think it did much for me. I was...
julala, the Facebook page is called Lyme Disease Healed. It is mainly about the Sunshine Clinic but people are allowed to post about any clinic they went to if it offered alternative treatment and...
I am going to the Sunshine Clinic in 6 weeks. He does Kinesiology and Cold Laser for all the infections. The Facebook site that discusses this clinic simply provides testimonials from people who have...
My doctor wrote that I was being treated for anxiety and panic attacks. Never mentioned bartonella, lyme or babesia. I was excused....
I tried Cholestyramine at 1/8 tsp for about 4 days. My stomach hurt so bad and I normally move my bowels several times a day and became so constipated. I was drinking water, prune juice, eating...
My doctor just prescribed Ivermectin for a month. I've tried everything else for babesia....
Thanks everyone for the input! Lapis_29, I am going to take your advice and purchase some of the DNA frequency sets and try them with the Mopa....
I have owned a GB4000 w/Mopa since 2014. For two years, I was scanned by an Ondamed technician and given the frequencies to use. I herxed horrible but got no where and went back to antibiotics and...
astroman, I forgot that not all the genes will express themselves. The consult is not expensive. It is the supplements that are expensive if you purchase all of them. I appreciate your thoughts on...
k07, how long have you been on their supplements? They also recommended ACAT Assist, Fatty Acid Assist, Glutamate Scavenger II and Histamine Scavenger. I've been burnt so many times that I question...
astroman, I paid for the consult but not the supplements. They give you the list of the supplements and it is your option to purchase them with further consults on your progression. I am not sure if...
Has anyone used Tree of Life for genetic MTHFR consult? I had a phone consult and we went over my 23&Me genetic tests. I can not detox and therefore can't treat very much due to severe herxing. To...
I have had a very low CD57 (28) for years and I have Babesia duncani and microti, lyme and bartonella. Not sure if there is a link if you only had babesia....
DMSO sounds great for pain. If it can kill cancer cells I wonder if it could kill lyme and the co-infections?...