Moose First I need to state that I had gastroparesis as one of my first symptoms of Lyme however at the time no one could understand why I had gastroparesis being as I’ve always had great control of...
Sandy feet. Ohhh yoga. I wish I had known how wonderful it is. It has been life changing. That’s why I mentioned it here. If I can just help someone else feel even a little better by trying out yoga....
Garzie I practice with “yoga by Adriene”. She has over 750 free videos on you tube. She has beginner videos too. And also what I like is she does a monthly calendar. If you go to her website there is...
Walking Never got the dental stuff done. Was way too nervous. No problems in that department. Glad I never got it done. Did have an old crown removed and replaced. And A filling removed and replaced....
Insomniaa, My heart did not stop. I did not have a heart attack. My heart was beating way too fast and the upper and lower chamber were overlapping. The treatments they tried to restore rhythm...
So hey everyone. Wanted to give an update. I know most want to hear there is hope. So it’s been a year since antibiotics. I feel fantastic. Here’s my story in a nutshell. A long nutshell. Lol. 8 or...
I had a very scary incidence of long qt from the drugs I was taking for Lyme disease. I spent several days in the hospital on the cardiac floor detoxing those meds out of my body. This was back in...
Jova Yes I agree. That is what the er dr expressed to me. He felt 2 things. First that the drugs I was taking were so very toxic. That if I stopped treatment and gave my body time I may feel a world...
Hi quin No my diabetes did not resolve. I have been a type 1 insulin dependent diabetic for so many years prior to Lyme disease. They are not related....
Girlie I called to cancel my next appt. I tried to explain to the receptionist that I needed to speak with the dr about an urgent matter related to my needing to stop treatment. I have yet to hear...
This is quite long but please read. I was hesitant to share this information because I do not want anyone to feel that I am telling them to stop their treatment. I have been treating for almost 4...
Peteza, I also am looking for someone in this area. I am still dealing with bart and have started taking buhner herbs for it, but didn't get very far. I seem to get a reaction that feels like I drank...
Savena, Yes I did have a positive ANA and the Lupus blood test was positive for me too. I don't remember what my number was but I do know it was off the charts high. I got a call from my primary...
Could I get some insight from anyone who switched from antibiotics to herbs for treatment? I have been on antibiotics for close to 3 years now and I feel that my body is just getting worse off. I...
I am hoping that someone here has had cavitation surgery and can tell me what to expect. Here is my teeth story. I did not have any issues with my teeth or mouth in the 10 years I had lyme except the...
Girlie, I know this is an old thread but I wanted to comment on your comment about wanting to make a followup with dr j himself and that he was all booked up. Well, I tried the same. I also tried To...
thank you everyone, walkingbyfaith...thanks for the info about the thick blood. I have buhrners book. I will look it up. The first practitioner in the practice said no babs. The second said she...
So about 4 months ago after I did my first protocol with rifabutin I started with severe sweating and chills with shortness of breath and increased heart rate/pounding. Sweating so badly during the...
10LymeB, I also have a yucky past of abuse and neglect...I guess most people do at least to some degree. But I do know it eats me up inside. Most days I am okay, but some days are very bad. And if I...
Oh yes, I got out of jury duty. I had my dr write a letter and fax it over. In the letter he stated that I have multi system infectious disease which inhibits my abilities and that I am extremely...
Thanks Elvin, I may ask if I can add oregano oil into my protocol. It was mentioned once to me for some issue I was having so I may ask about it again. I do ACV and def do tumeric on a daily basis....
Yes I have been seeing KL. She is the one who said maintenance next. I did include in my paperwork that I submitted that my biggest problems right now are the tachy/short of breath, sweats, and...
Girlie, I have only seen dr j on my first visit. Then np's. My next appt is with Kim because KL left. I wasn't sweating when she took me off the babs meds just an increase in my tachycardia symptoms....
Hey all! Got a little bit of slippage I think. I have been treated with antibiotics for 2 years this past december. About 4 months ago I thought I was making progress but had a concern that things...
Yes I have 30 more days worth of doxy so I can give her 2 weeks of it plus the two weeks prescribed to her. She weighs 52 pounds. Yeah she was given the same dosage as I was. Do you think that is too...
Thanks Girlie! I really value your opinion. I am fortunate that my first llmd felt very strongly that anyone with a tick bite should treat for 30 days and not to wait for symptoms. So when he...
So the other day I took my dog to the vet because she wasn't acting like herself for the past few weeks...maybe a week and a half. Vet didn't find anything wrong. Last night, i spot a bulls eye rash...
I just got my first cold in over 10 years!!! Is that a good thing? As crappy as I feel, i do not feel lymey at all, just like a normal person with a head cold would. In over 10 years I have never...
Hi Mary, Binders are a method of detox. When the body has toxins, they go through bile and then into the small intestines. If the toxins don't get stuck to something they will not be flushed out of...
I got bit in bucks county pa. I got diagnosed in Chester county pa which is a neighboring county. If I hadn't moved to Chester county I may never have gotten a diagnosis. It took 8 years of symptoms...
I had the same. To get it loosened up have you tried doing circles? To do them bend at the waist and let your arm hang down. Then do tiny circles with your arm. Very tiny to start. As it...
Girlie, Yes I did treat baba. Twice. The first time with a llmd who referred me to Dr j before I finished the babs treatment. 3 months. Then I had a few months before I started again. Treated the...
Healme, The first 2 weeks were dreadful. Then I had 2 weeks off. I needed the full 2 weeks to recover from the bad herxing. I started back up for another 2 weeks on a reduced dose and did okay. Then...
Girlie, I have never taken rifampin. They wanted to try the rifabutin first if my insurance would pay for it, because she said it is easier on the nervous system than the rifampin (side effect)....
Hey guys, Just an update on the rifabutin drama. I pulse this drug m/w/f for two weeks then two weeks off. So I called my dr and she said it sounded like a bit of reaction to the drug and also a huge...
I've had breakouts so bad during treatment. I'm 51 and never had pimples even as a teenager. Not digging them now. I mean there was not a spot on my face that didn't have pimples. Yuck. But I found...
OriolCarol, This disease is really frightening with the new and worsening symptoms. But rest assured, this is normal. As normal as lyme can be. Maybe not normal, but expected? I go through the same...
Ha Serfr! Love that one!! But I am afraid they drop out of trees though. I am thankful for my husband who has stood by me all these years when no one knew why I was always miserably sick and in pain....
Yes!! It was one of my first symptoms. It was awful. Both eyes were bloodshot for about 8 or 9 months. I looked stoned all the time. I didn't know I had lyme at the time. No one could figure out what...
I have type 1 diabetes. My first symptoms were increased urination. I also lost a ton of weight. But, I did not have lyme when I got diagnosed with type 1. Alot of my symptoms of diabetes before I...
Nic, I see KL at the Jemsek clinic and was with another llmd for a year prior to that. At my former llmd, I was only being treated with the same meds over and over again never changing it up and...
Thank you all for your comments. Sorry it took me so long to respond, it has been a hellish week. Honestly, I have herxed so bad and continuously for so long when all this started but this is on...
I was wondering if anyone has had any experience with rifabutin. I am not sure if what is happening is a herx or reaction to it or both. I started with it on christmas day and took it mon/wed/fri...
Girlie Actually i realized the westin is 1 block. Just a few buildings away. If your husband is a part of your care meaning he is really supportive and all that great stuff it might be good to...
Oh Girlie I am sorry, I also wanted to tell you about hotels close by. I stayed at the Hilton Garden Inn on M and 22 street. It is 3 blocks from the clinic. Last visit I stayed at the westin I think...
Girlie, I just had my appt with KL today. And I got the news that her last day at the clinic will be on March 30. So now I will be seeing RM next visit which is in April. Just thought I would let you...
Ha Girlie, When I go to DC I get in and out as fast as possible. No desire to tour the city. Nope. haha Although where the clinic is located, it is very nice. Great restaurants. Walkable. Clean....
I see KL. She is very good. She is just what I needed. She listens to everything I say and write down and I am happy to report that she uses those as a guide to my treatment. She addresses my...
I had a spect scan done last year. The scan showed reduced blood flow in several areas of my brain. The report stated that this was consistent with alzheimers, lewie bodies and/or parkinsons. Of...
springsjean, I lost my voice for 4 months. First it was just froggy and couldn't speak loud or with any force. Then it went to a whisper and then gone, over about a few days time. This was during my...