Thanks, Hoagie! I am new to all of this and while I am not trying to question my doctor, taking antibiotics differently than I am used to makes me nervous. I guess the whole thing makes me nervous,...
Has anyone ever been prescribed azithromycin for pulsing? My LLMD has prescribed azithromycin 250mg- take 2x a day for 3 days and 4 days off. I just stumbled upon an article (not sure of the...
Thank you, Girlie! I was so excited to have found the culprit for all my issues over the past 15 years and then to have found a doctor that is knowledgeable enough to treat. However, I'm feeling a...
Rikky1- I am still having a lot of the Bart symptoms (those that are similar to Lyme-fatigue, headaches, etc...), so it's hard to tell, but I will say my nerve issues have gotten better, but not...
Girlie- She is calling in a prescription for Zithromax to be taken for 2 months--not sure if this antibiotic is typically used for Bartonella or just Lyme. I have a lot of questions that have not...
Girlie- She is a LLMD and was recommended by many (I believe she is on your list). I'm not sure if my new protocol is to treat the Bartonella or not. Unfortunately, I didn't get to speak with her on...
I was diagnosed with Lyme and Bartonella a couple months ago. I took Clindamycin (Cleocin) 300mg- 2x a day and just finished a couple days ago. I just got a call from my doctor's office with my blood...
Kat1000- Reading your post reminds me so much of my situation. For the past 3 years, I was convinced I had a hormonal imbalance (had no clue that I had Lyme). I was stuck on thinking it was a...
Shoulder pain was also one of my first symptoms. It started in one and then moved to the other and now it is in both....
Rikky1- I was diagnosed with Lyme and Bartonella (as well as EBV and mycloplasma). I am taking Clindamycin 300mg for 6 weeks and then going back to see my LLMD. I was hoping the antibiotics would...
I have been taking antibiotics for about 3 weeks now and I don't feel any better (I could argue that I feel much worse some days). Just wondering..how long did it take you to feel better (even just a...
I don't know if it's related to the eclipse (I didn't think about it until now, actually) =), but I've had more pain than usual the past few days. I thought maybe it was going to rain (I usually have...
A couple months ago, I had some really strange symptoms in my left arm. Pain started in my armpit and then gradually moved down my arm over the next month and a half. About a week after the pain...
Thank you so much for the information...it all seems a little overwhelming right now, but I think I will get the hang of it. Having this for over 15 years, I shouldn't have expected anything less...
I started my antibiotic treatment yesterday. I seem to be tolerating the antibiotic well, but unfortunately, I am having a reaction to the liposomal glutathione. I am getting EXTREMELY sleepy and...
I have been visiting this forum for a couple months because I had bands 41 IGG and 23 IGM test positive in June. I saw a LLMD a couple weeks ago and I went back on Tuesday to get the results. She...
mpost- I had the Western blot test by Quest done. 41 IGG and 23 IGM were positive. My symptoms include (this is a short list because there are so many): stiff neck, vertigo, extreme fatigue, extreme...
Thank you all for the replies! I was just introduced to the world of Lyme in June because my family physician had the sense to test me for Lyme. Not one doctor suggested Lyme in all the years I've...
Thank you, PeteZa! It's all starting to make more and more sense now. Lyme is like a giant puzzle and now I finally have all the pieces (or at least more than I had before)....
I have not felt well for years (about 15 years to be exact). However, 3 years ago, the symptoms became so bad that I could not ignore them anymore. This happened shortly after we adopted our son....
I am in Texas, living in Houston now. I have previously lived in San Antonio, Austin, and El Paso. I am in the process of finding answers now and have a follow-up visit with my LLMD in Houston on...
I agree dacarte3! I am so grateful she's testing for co-infections. It is just so sad that more doctors are not educated on Lyme and its coinfections. I am so grateful that I found a doctor that is!...
Thanks, Girlie! She used what is called a SUDOSCAN...I had to stand on and put my hands on two silver plate looking things for 2 minutes. Never seen it or heard of it before. It might explain what...
I had my first appointment with my LLMD this afternoon and overall I really liked her. She said all the things I hoped she would say regarding the current blood tests being inaccurate, Lyme patients...
That's what I was thinking too, Traveler! It definitely feels like it is nerve and/or muscle/tendon related. I am taking Ibuprofen, but backed off a little the past few days...wondering if the new...
For the past month, I've been having some very strange symptoms in my left arm. These symptoms are actually what brought me to a new family doctor, who was intuitive enough to test me for Lyme. But...
Thank you all so much for your guidance and advice! I appreciate this group of people so much!...
I've looked for answers in previous posts, but didn't seem to find any (my brain fog is strong right now though). For those of you who have used the Buhner protocol, I just have a few questions and...
I'm very new to this forum and I think I received an email from him a couple days ago. The title of the email is "Everything you need to know to understand and cure Lyme disease". I did click on the...
Does anyone know if taking the antibiotics will affect any blood tests I have with my LLMD. Since I have not technically been diagnosed with Lyme yet (although bands 41 IGG and 23 IGM were positive),...
Thanks for your perspective mareish! It is definitely something I'm going to consider....
Thanks so much for your suggestions, Girlie! The doxycycline is 100mg...I still haven't filled the prescription because I have truly struggled with this decision. I have been leaning more toward...
Just need some opinions because I am so confused right now. My PCP, who suggested the Lyme testing based on symptoms I've been having for years, prescribed doxycycline for 3 weeks to treat the Lyme,...
Thank you all for your responses. The arm pain with bruising and lumps is definitely the strangest thing that has happened so far. My PCP didn't have any answers, so she referred me to the ER when...
Would appreciate any information for LLMDs in the Houston area. I received a list of doctors from the Texas Lyme Disease Association, but I don't think they are specifically listed as LLMDs. I am...
Thank you so much for your quick response! This makes total sense! I could cry right now...just the thought of having an answer and a plan to getting better gives me so much hope! Not that I want to...
It has been a long road to get here. I have been ill for years and am only getting worse. I have gone to so many doctors with no answers. About 10 days ago, I went to a new PCP because I had a pain...