I had this happen when I first started Valtrex. Horrible itching that drove me crazy. It finally went away about a month later. Grandpa's Pine Tar soap helped a bit and anti itch moisturizer....
I agree with SoMuchFun. Gadolinium is a heavy metal and very tough on the kidneys (it is how gadolinium is excreted.)...
Valtrex (and all the other generics) was a game changer for me. It helped take care of all my reactivated viral infections and I'm back to work now. I did have to do 2 rounds of it, each for about...
I found out I had PVCs almost 10 yrs ago, well before I found out I had Lyme and m dr at the time told me they were benign. Now I know they are caused by Lyme and still contemplating seeing a...
I took Zoloft years before I found out I had Lyme. I hated the side effects so much I had to stop taking it and coming off of it was a b*tch!! I will never take it or its derivatives again...
r I used to think so, but I had the bullseye rash from my first tick bite. I was a kid in the 80's and my mom didn't know anything about lyme then, so it was never treated. About a year ago, after a...
Nope, not a one, even with the Byron White formulas. I do get tachy with azithromax, head pressure with mino but those are side effects, not a herx. My indeterminate Igenix, negative Lab Corp tests...
My ESR and CRP were always elevated for over 10 years. Not one doctor was concerned they were 2x higher what the max range should be. I tried every diet, exercise, nothing worked. I found my LLND and...
I had this happen to me a couple months ago. My package was left at the door and they never rung the bell. Sat out in below zero weather for a few hours. I almost had a heart attack when I saw it...
Just wanted to clear up that Ambien is not a benzo. It is sedative hypnotic. Z-drugs(like Ambien/zolpidem) are non-benzodiazepines. They act differently on the GABA-a receptor, but have similar...
Before I found out I had Lyme, I tried Xanax, clonazepam, etc and they didn't work (plus they were benzos, so I dropped 'em like a hot potato.) Then I tried all the natural stuff, none of it worked...
I have a rebounder and a destroyed back. The quality of rebounder makes a huge difference. I started with a cheap $20 Wal-Mart one and it made the base of my skull, knees, back, as well as everything...
LDN has been wonderful for me. However, I do not have any autoimmune issues. Sorry I can't help in that respect....
No, they don't cover all tests. They will cover most of Igenex's test. I paid $65 of the $210 in 2015 for Lyme IFA screen (#230,) Lyme western blot IgM (#188,) Lyme western blot IgG (#189.) I think...
Not sure how much you are taking, but my LLND had me starting at 1mg/day for 4 or 6 wks (can't remember.) After that, I've been at 4mg/day and WOW! I'm getting results like Aurora; less joint pain,...
But were you fasted with your other creatinine tests?...
If you are willing to travel, there is the Dean Center(Spaulding Rehab , I believe) in Boston...
I've only taken kratom on its own. I also didn't take high doses and not every day so that I wouldn't build up a tolerance. I thought it worked well, but I'm taking low dose naltrexone now and it...
Tried a few different ones, they did nothing for me. Sorry I couldn't be of more help for you....
I didn't have luck with the cancellation list, but then again, that was way before Dr. C got there. She was super busy, so maybe it's easy to get in these days. I know my follow-up visits used to be...
My facet joint blocks were done on my lower back. They are very painful and in the end, did nothing to reduce my chronic low back pain...
Would using programs like F.Lux on the computer and Twilight on the phone help? I wonder if the intense blue light coming from them is too much. You can adjust the screen dimness and intensity of the...
Here is the description from the HHS web site: So, sounds like their main purpose is to submit 2 reports in 4 yrs on prevention, treatment, and research on lyme....
B99, thanks for posting this! Dr H recapped better then I could, lol. The patient stories were heartbreaking. Two that sick out for me are the woman fighter pilot and the first 13 yo. Being so young,...
I was using Restorative Formulations Adrenal Px Balance that has rhodiola in it. I think I got headaches from it too, I ended up switching to Vital Nutrients Adrenal Support and had much better luck....
Most of it was member introductions, some of which have personally experienced lyme. A couple speakers, like Lorraine Johnson from lyme disease.org/MyLymeData and the rest public comments (patient...
Like Rikky said, so many shades of gray! For me, all the symptoms you mentioned is always an indicator my EBV is coming back. I go back on Valtrex and it goes away...I just wish it would stay away!...
Been watching some of this. During member introductions, Richard Wolitski stated Wormser, "resigned due to personal issues." Bahahahaha, riiigght. (ok well, that lawsuit might be a little personal,...
I see Dr G in Amherst, as well. There is also Dr. D in Concord. Google lyme doctor in Concord and he should come up (even though it looks like a woman's first name.)...
I'm in the same predicament gfields. I do go to an LLND in Amherst, NH for my Lyme, but she doesn't cover some things I need a PCP to cover. I had a FABULOUS Dr in Wellesley, but he changed his...
I use a free android app called Life Reminders. It can send a text, email, call or use the app notification itself to remind you of what ever you set it for. It can also repeat hourly, daily, weekly,...
It's now changed to tech 😂...
I must be very lucky. I haven't herxed on anything. When I first found this forum after getting diagnosed, I kept waiting and waiting and waiting for all the terrible herxing people talked about. It...
LOL, I should have had MS a long time ago then. Some studies, I swear.... (sorry I don't have the full study for you)...
I'm 3 weeks into LDN and at 1mg. So far, not much happening. Casa11, I had just started taking Kratom a few weeks ago for pain control as well. About 2 weeks later, I started LDN. I would take my...
Ah, the fun of Lyme - trying to decipher symptoms.... For me, EBV gave me the worst, debilitating fatigue. It intensified my joint and muscle pain and also made the soles of my feet hurt. I didn't...
Hahahahahaha! This had me laughing within the first 2 minutes of the Part 1. I thought I was going to be thoroughly grossed out, but actually laughed out loud so many times! Thanks for this, been...
I'm just starting this. It's only been 3 days at 1 mg/day, so nothing to report yet (positive or negative.) I hope this works, I'm waiting for a game changer, lol!...
Here is the youtube clip from the show https://youtu.be/GLcwpF9s3o4 There is also an "Entertainment Tonight" video clip where she says she has been at home, "resting and resting and resting and...
I saw this and was thrilled she was so open about it. I voted for her too :) . I'm hoping she stays a while so that people can see what we go through (because we all know she is going to have ups...
I've taken a few BW products and hate the taste of them. I thought about putting them in capsules, but was reading how it is best to let them sit under your tongue to absorb better (as opposed to...
Yes, other than liver issues, I've seen high alk phos in people with Paget's disease, osteosarcomas, and other bone disorders. Your mom is doing the right thing asking her doctor about it....
I would love to try a blend with thc in it, but not sure how to go about getting it....
This probably won't be helpful for, but this has been my experience with this stuff. I was using a hemp CBD that had 4 mg per 15 drops 1x day. No relief, went to 2x day, then full dropper 1x day,...
I can't speak for other meds, but for isotopes, you do eventually get rid of it (you'll excrete the majority of it.) Generally, most isotopes in the uCi range is considered a miniscule amount and...
Sorry you are feeling so poorly :( I deal with radioactive half lives. So if I give someone 10mCi of an isotope that has a 6 HR half life, every 6 hrs it is reduced by half. 10÷2=5 (6 hr) 5÷2=2.5 (12...
SPECT is typically done through Nuclear Medicine. So if you are calling CT places, they would not do Brain SPECTs. Part of the higher cost of PET is it's a combination of 2 modalities (Nuclear...
I use Frontline on my dog as well. I love it. I've noticed two things with it (on my dog, at least.) When the tick actually bites, it will "shrivel" up and die. I sometimes have a tough time getting...
Same here. .......question is....can my Lyme brain remember any of it :turn:...
I take this brand as well. I'm halfway through my first container taking 3 scoops/day. I didn't herx at all on it. Then again, nothing I've taken (even abx) has given me herxes, so I have no idea if...