Hello lovelies, I am almost one year into my Lyme disease treatment and have made a lot of progress-so I am very thankful! But recently have been diagnosed with hyperthyroidism. I actually had...
Magnesium citrate pills! Most people with Lyme are very deficient in magnesium which causes a host of problems. My LLMD says that if someone refused to take any medicines or supplements, she would...
For what it’s worth, my LLMD tells patients to avoid products with stevia if they react to it. In me, I get symptoms like insomnia and anxiety worsening. I think part of the problem could be that...
Hi Korissa, thank you for sharing your experience with TMJ and splints. Ay, I'm so sorry to hear that you got sick at age 13. What kind of exercise do you do for your jaw that helps?...
Hi stray dog, Thank you for the help. I will check it out if I do decide to get treatment for TMJ. Thankfully, the pain has gone back to baseline in my jaw. I am seeing a chiropractor who is helping...
Hello, Thanks to everyone for your responses. I'm so sorry to hear about some of your bad experiences. I feel a lot more calm now. I have decided not to continue with the splint treatment, at least...
Hello, BACKGROUND INFO: I've had headache 24/7 for almost 5 years. I typically have a worse headache in the morning when I wake up. I was given a night guard by my dentist a few months ago (in...
Hey Yellow Cat! Thanks for sharing such an informative website with me! I skimmed it, and I plan to come back to it later. I'm a little overwhelmed right now. I had a very weird BM today-orange and...
Thanks so much, Pirouette! (I love your name, by the way.) Do you have any resources about what a good diet for Lyme disease is? There's a lot of confusing, conflicting information out there on this...
Thanks so much for your reassuring comment! I'm sorry you had such a scary experience with treating parasites-it makes me grateful that I have a doctor to guide me now. What binder would you...
Hey guys, I just wanted to update you on my sleep disorder/insomnia. I returned the 3mg Melatonin supplement to the pharmacy and decided to order a liquid melatonin supplement online (that way, I can...
Thanks so much, Jinna and PeteZa! These are really helpful tips! Jinna, I definitely agree about the writing things down, and I'll try to start with ONE really important thing in the morning now!...
Thank you for posting. I am so grateful to live in an area not affected. Praying for everyone affected....
Hello lovelies, What I would like to know is: What are people's experiences with parasites?? I saw my LLMD last week for the 2nd time. She prescribed Alinia (anti-parasitic medication) for 5 days and...
It's definitely a useful function!! ✨✨...
This is *so* awesome!!! Thanks so much!! Also, the Text to Speech function is useful for proofreading!...
Thanks for the information. I'm actually really similar to you in that I'm 1. more of a visual learner, 2. Screens bother me, and 3. Sometimes I have trouble reading for vision reasons and I think it...
Thank you for following up with me! Yes, I have an appointment with the accommodations office on Monday! I also have an appointment to determine whether I would be eligible for Advantage, this...
Hey all! So I'm subscribed to the Lymedisease.org newsletter and today I read about a great opportunity: teens/young adults with chronic illness can participate in game beta testing designed to...
Hi lovelies! What tips/techniques (for example, organization tips) help you with cognitive dysfunction? Thanks so much!...
Oh wow! Thanks so much for the answers! Blueskies7, I appreciate your response so much! Knowing there's someone else who needs accommodations for Lyme makes me feel better about my own situation. I'm...
So glad to hear that you're starting treatment, Hoagie! How often do you guys take activated charcoal? My doc says not to use it everyday because it can limit nutrient and medication absorption....
Hi all! I am planning to seek accommodations from my college's Disability Services. Specific symptoms that I think might impact my academics include: blurred vision, poor short-term memory,...
I appreciate your help so much, Girlie! Thanks for letting us know....
Wow! That is so bizarre! Hope you get some answers!...
Thanks for the tips, Girlie! (That's such a cute name, by the way.) I am going to take 200mg and limit my supplements to mag citrate, probiotic, fish oil (these I have taken before with no problems)....
Would eating oatmeal and flaxseed work like a binder and/or reduce nausea?...
The doctor told me to drink green tea in the a.m. (I drink decaf). I guess it has l-Theanine. That's interesting about the herx and detox. Do you think I should stop the supplements tomorrow and see...
Hey guys! When I saw my LLMD Thursday (8/3/17), she prescribed a "Neuro-Stabilization/Detox" for 1 month or until my sleep changes. Here's the specific changes: Before appointment: -lithium orotate...
I am definitely glad you are deciding not to water fast! I did this several years ago and was hospitalized in order to prevent heart failure. I was told I was lucky to be alive, with my heart so...
That's a great idea, thanks. I will ask. That's so cute about your pets! I have 2 cats, but they tend to sleep through the morning. I actually like to joke that I'm secretly a cat, because we follow...
Thanks for the advice! I might ask my doctor about that next visit. I am looking more for behavioral tips for tomorrow. The reason I have to get up early is to do a saliva test. I don't want to start...
Across the room could be helpful! I'll try it, thanks....
Hey guys! My doctor ordered the adrenocortex stress profile from Genova to see if cortisol is interfering with sleep. For the test to be accurate, you have to wake up and get up between 6-8a.m. I...
Hey Hoagie, I'm pretty new to the Lyme dx myself, but here's some stuff I've learned that I think is relevant to this topic, especially if you're thinking about getting a spinal tap: 1. Lab tests can...
Thanks so much for the suggestions, here and in my new post. My LLMD has ordered a cortisol/DHEA test and also instructed me to take levothyroxine in the morning (I was taking at night because it...
Thank you, everyone, for your responses! I appreciate hearing what other people have tried and how it worked for them. I do think the 3mg melatonin was causing me to wake up after a couple of hours...
Thanks PeteZa! Do you know what dosage of melatonin was in the herbal combo?...
Hey guys! I have a circadian rhythm disorder/sleep disorder in which I tend to go to sleep late and wake up late. Taking 200mg of Neurontin has so far shifted my sleep schedule back by about 2-3...
Thank you so much for your support-It means a lot! Actually, I feel a lot more confident/secure in my treatment choices based on what you said about timeline...I definitely feel more like I'm on the...
I appreciate your sharing the information that you've learned in what sounds like a long process in resolving your TMJ. It sounds like the price of your most recent guard was high because you are...
Hello lovelies! UPDATE ON LLMD VISiT: I was diagnosed with late-stage Lyme last week by a LLMD (first visit) in light of my history of positive Lyme Western Blots and ongoing clinical symptoms. I had...
Could this have anything to do with taking my levothyroxine at night? I tend to think not, because I have had this problem when taking it in the morning and when not taking it at all, but it's one...
Hi lovelies, I was just searching for "Lyme" and "sleep inversion" and came across this thread. I have had sleep inversion problems off and on for the last 1.5 years. The only way I've really been...
Thanks so much for the perspective, both of you! I think I have developed a sort of distrust over the years (not necessarily that doctors are bad, just that they don't know what they're doing)...
Hi everyone! I haven't been officially diagnosed with chronic Lyme but I have been experiencing many, many symptoms since 04/04/13 (age 15). I am seeing a LLMD on August 3. ** If you could give me...