Thanks for the success story - so glad to hear you've found something that's been able to hit EBV on hits head. I've had years of depression, fatigue, cognitive issues and pain and doc suspects EBV....
Thank you so much Blue Lyme, all of your words ring true. It's like you've read my mind beyond my initial post 😃 The hardest things to deal with is not so much the symptoms (which is tough enough)...
Thanks everyone Have tried treating biofilms and coinfections several times with no budge in symptoms. Also heavy metals. Went to see Dr H's office in 2011 who recommended I get hyperthermia...
Hi everyone This site has been a great help to me over the years - thanks for all the support! After many Lyme treatments over the last 8 years in 3 different countries including IV and Hyperthermia...
Hi there, I was diagnosed with Lyme in 2009 and after many failed treatments where I literally didn't react (good or bad) to 99% of them, my current LLMD thinks that EBV could have played a factor in...
Hi everyone! I'm trying to work out if I have cervical stenosis and if it's Lyme related. Background - history of brain fog, head + neck swelling symptoms for the last 10 years or so. Diagnosed with...
Thanks for the bump!...
Hi, I suspect one Biofilms could play a big part to my symptoms (chronic low cd 57 15 years of symptoms, 5 years of treatment, blood flow issues in left hand side, never seem to herx or react to abx,...
Hi all, I was wondering if anyone could recommended an LLMD who knows or has experience diagnosing and treating Protomyxzoa / FL 1953? I'm based in the UK but open to traveling to Europe / US. Thanks...
Hi everyone I've been dealing with neurological symptoms for the last few years and seen various doctors and LLMDs (including the BS and doctors in America). Recently, neurological symptoms such as...
Thanks for your responses :) Calilyme - good to know you've had a positive response from the herbs. Were the products recommended as a result of saliva testing or by another LLMD. Healing98 - I've...
Many thanks for this :) I'm starting to discover that even with the tests, it can be difficult to pin point exactly what type of protozoan infection someone could have. Even though seeing a picture...
Hello all My LLMD has suggested I have an appointment with DR S M at Beyond Balance. I was wondering if anyone has much experience from the Saliva Testing, consultations and subsequent treatment,...
Hello all Quick quick re. testing for FL 1953 My LLMD has suggested I get the following tests done to determine if I have it, all can be provided by Fry labs as far as I know Smear for Fl1953 and...
Hi all, Thanks for everyone who have helped me over the last few years. I was wondering if anyone has had success dealing with Protomyxzoa Rheumatica after dealing with Lyme? I’ve was diagnosed with...
Hi all, Firstly, thanks to everyone who has helped me so far on this forum in giving me advice on treatment,doctors etc. I'm currently in London, UK. I’ve recently Dr F and Dr H in the US in the hope...
Hi Jake Just saw this thread and completely know how you feel. Been suffering from brain fog symptoms since the age of 18 (27 now). Im in the UK and I fully understand what you mean by the apathy and...
Hi all, Thanks to everyone who has helped me on this forum so far. I’m currently living in London, UK and currently exploring ILADS, LLMDs in the US, particularly in NYC. I think i’ve narrowed my...
Hi, Ah yes, didn't realise I had to change the setting - thanks for this! Iappreciate the need to keep info confidential and not put our good Drs at risk. If any one has any info on Dr C or any good...
Hi all, I've been looking for an LLMD in the New York area (i'm currently in the UK and looking to seek expert health abroad). I previously posted a few months ago and had a lot of useful responses...
Hi all, I’ve been reading this forum for the last few years and It’s been a fantastic source of info as well as support on coping with this disease and it’s many complexities. I’m been suffering from...
Thanks for the response, it's most appreciated. So far I haven't really been able to contact anyone who has experience with this. I may try and get another opinion from another ART practitioner. I've...
Hi all, My practioner has recommended I attend Group Constellation Therapy. I don't know too much about it, but I think its a form of of group therapy designed to help you deal with deep systematic...
Thanks for this, I'll be sure to take a look! I hope you contribute to this with my own experiences in the hope that it can help anyone with dealing with this. I'm based in London in the UK and am...
Hi all, I'm seeing an Klindhart trained, ART pracicing specialist in the UK and have been doing so for the last 6 months. I diagnosed with Lyme by an elisa and CD 57 (low score of 18) in September 09...