Hey OriolCarol, I had major twitching for 2 years straight. It has only recently subsided to about 10% of what it used to be (thank god). I had some what appeared like muscle atrophy at the time...
I have had many of these symptoms minus the weakness. I was able to recover 90% with a combination of abx and bvt. I'm in 2 years and still treating so it's not something you will see immediate...
Quite possibly has nothing to do with Lyme. I've had this before I had Lyme and it was a sinus infection. Quick treatment of the infection and it went away. Not saying it's not Lyme but if you have...
I had the twitches all over as well, but mainly focused on my left side in my calf, foot chest hand and arm. There is noticeable 'atrophy' in those locations. Side by side comparisons of each of...
Hoagie - that seems to be typical for people. My left side is also my worst. I do hear people complain about one side more than the other and usually it seems to be the left side. I had similar...
Hey WV Mike, I have the same thing. It definitely comes and goes and I haven't necessarily tied it to when I feel at my worst. However I get a strong skin odor, something musty I can't really explain...
Sorry to hear that oddity. I feel like I'm in the same boat only slightly less progressed since I started a pretty heavy series of different meds over the last 15 months. I do feel like the...
Welcome to my world. I've had a litany of symptoms but these have by far been the worst and most un-relenting. I have had 24x7 muscle twitching, cramping, nerve pain and 'heavy' feeling legs for...
BlueLyme, Sorry - forgot to respond to your earlier question. Yes - I'm on the full 10 stings @ 3x a week. I've been at that since about November. I really felt a lot of things clear up since that...
Also - just thinking this through. I thought most LLMDs gave a clinical diagnosis based on a combination of tests and symptoms. Is this Dr. NOT giving a Lyme diagnosis but treating as Lyme and saying...
I would have to go back to my original bloodwork but I'm pretty sure 23 was one of the ones I had and my doctor said it screams Lyme. I had a few other bands as well and I think there are a few other...
Hi Kari, Glad my story can help in some way. I understand your sisters point of view completely. For me the coinfection tests were validation because I don't think there are many false positives on...
Hi Kari, A few thoughts... I've read your original post as well to get caught up. I started to experience very similar symptoms to your mother in late summer/early fall of 2015 (time of the year is...
I can feel my intestines twitching from time to time. A few times it was very strong and persisted for days. I've had twitching everywhere but that is as close to an organ as I can recall. Mostly...
Wow 49. Yea that puts things into perspective. Also my Doc finally got back to me and said it's only slightly elevated, nothing to worry about and just detox as normal. The descriptions in the Drs...
Not to highjack this post but I actually just received results from Doctor's Data today for heavy metals with a provocation and my Lead is 7.2 (ref. <2) and My mercury is 9 (ref < 3). For Lead it...
Hi aerost, I picked up Lyme (and Babesia and Bartonella) in the woods of either Czech or Germany (most likely Czech where I did a lot of fishing) in Summer of 2015. The twitches are EXACTLY as you...
I was an avid coffee drinker for years. I could handle a ton of caffeine without issues. Before I knew I was sick, like Krimpet, I noticed I couldn't handle the caffeine all of a sudden. Not sure...
hah - pirannahs. I used to compare it to a small mouse knawing at my muscle and bone. Now it's more of a dull achy type of pain. It definitely floats around to different body parts. I still get the...
I flew overseas 3 times since I got Lyme. I believe those planes cruise at a higher altitude than domestic flights, but not sure how much of a difference that would make. Either way those trips were...
bluelyme, Thanks. I may try doing something similar. I do bvt on Sun,Tues,Thurs - I'll probably start pulsing meds on Mon,Wed,Fri,Sat or something. I'm going to stop taking Turmeric even though I'm...
bluelyme - that is great to hear! I have just started BVT - one month in (@ 8 stings), however I'm still on abx and other supplements that may be counterproductive to BVT. I'm in the process of...
Hi Lymenotok - PM me....
I take plaquenil Mon-Fri and then Tindamax on Sat + Sun. I was told they cannot be combined....
Hey Pantsface, My story is similar. I had some symptoms leading up to the muscle problems but I hadn't paid much attention to them at the time. Then at some point in January I had major spasms,...
Hi Queen, I've replied to your posts before and wanted to again show some support. I know EXACTLY what you're going through. I previously mentioned that our stories are nearly identical, as well as...
Hi Beeperoni, I have had the air hunger as well, going on 1 year or so but not nearly as bad as you mention. I'm reasonably fit, 34 years old, 155 lbs, never a smoker - and when I started noticing...
Hi gfields, I get this only on my left side. It was one of my initial symptoms but had no clue what it was at the time. Lots of hip popping/cracking and shooting pain, sometimes throbbing pain - also...
Queen, Sore spots on the head, shooting pains, etc... Are you also being tested for Babesia? I have also had these symptoms and am waiting on some labs to come back as we speak. I Googled the...
Hey SS, I have been using Nutramedix whole leaf extract, 10 drops 2x day in a glass of water with 2 Tbsp of lemon extract 30 min prior to my abx. No GI issues. I have also been using the Truvia brand...
Thanks Traveler, I will be sure to check out the thread and dig through the provided link. Happy to find others with similar stories....
Hi Queen, Your story sounds 99% like mine, from the symptoms down to your western blot results. I did join this site just to reply to you because it is hard to find someone with symptoms that mimic...