Hi CharleneR, I'm so sorry to hear about what you have been going through. I haven't been on these forums in forever - your response to this thread triggered an email notification from...
BabsBunny, So sorry that you are having all of these issues. As far as cost goes, I've found that purchasing fresh meats (chicken and ground beef) and frozen wild seafood (gulf shrimp) in bulk helps...
Szabo246, I'm not sure how far along in the treatment process you are, but I don't see why a few glasses of wine would be a problem. I guess it depends on how you're feeling and what you're taking. I...
Dirtfarmerswife, In reference to what you said about grass-fed beef vs. conventionally fed beef and health benefits, I've read several times in various publications (I don't have citations at the...
Doors12, I have not been diagnosed with Bart or any other co-infections (just Lyme by IgeneX) but recently started a 2 month protocol with Houttunyia and CSA formula "just incase." I've been dosing...
I have not noticed any issues with Whey either. It is a main ingredient in one of the protein shake products that I use regularly....
Dirtfarmerswife, I know that there are a lot of people that swear by avoiding dairy, but I have continued to incorporate it into my diet and seem to be doing fine with it. I try and stick to a...
10LymeB, Several years ago, before I had my new Lyme diagnosis but experiencing Lyme symptoms, I used zeolite for about a month and noticed a slight increase in "overall wellness" feeling. It also...
Jackinthebox, I used to get these all of the time, both while on ABX and after I stopped taking them. I never figured out exactly where the night sweats were coming from - I just chalked them up to...
Mergirl, I've found that I do well on a low-carbohydrate, high fiber, high protein, moderate fat diet with Lyme. I had gained some weight over the last couple of years, and this helped me lose all of...
I agree Girlie and LymeSick. To this day, the only negative side effect of taking Adderall that I have experienced has been having to put up with other people's ridiculous, uninformed commentary...
LymeSick, I agree and good for you. I've had a few people over the years criticize me for taking Adderall, some even going to the extreme of blaming my Lyme symptoms on medication side-effects, which...
Psilociraptor, what you are saying definitely makes sense in reference to the pain. While taking Adderall, the pain is significantly reduced for me, and I don't have that "numb sensation" in my...
BorderLyme, Yes, I have experienced the same thing in reference to arm / leg weakness. For me, it's mostly only on the left side of my body (my left). My arm is the worst, sometimes I can barely feel...
I know this may be somewhat of a controversial topic, but has anyone had any experience with the medication Adderall as it relates to their Lyme Disease? I was prescribed Adderall IR for many years...
Hi Tickonboard, I'm glad that you found something that helps with your herxes. I purchased this product and tried it out, but, unfortunately, it did not work for me. I added it to my herbal regimen,...
Thank you WalkingbyFaith! I went ahead and ordered 2oz of the CSA formula and 2oz of a Houttuynia Cordata Tincture. I will add these to my protocol 2x daily until they run out and see how that goes....
Thanks everyone for the responses. I just did the Buhner Protocol for Lyme. I've tested positive for Lyme twice w/ IgeneX, but negative for all co-infections each time I was tested. Over the past 6-7...
Hi everyone, It's been a while since I've posted on here. I've been feeling much better lately (look back at some of my old posts for a little background) after completing 4-5 months of the Buhner...
Brendoni, I didn't have the issue of the "graying," but did notice some discoloration (teeth not as white as usual) after being on ABX for a few months. To combat that, I purchased a jar of Activated...
Has anyone read this book yet? https://www.amazon.com/Believe-Me-Invisible-Disability-Disease/dp/1250121655/ref=sr_1_1?s=books&ie=UTF8&qid=1513571664&sr=1-1&keywords=believe+me+yolanda+hadid I...
The Dude Abides, Thank you for posting this. I'm not sure if it was you or someone else, but I saw this posted on this forum a while ago and ordered two with this offer (only paid about $5 for...
Hi everyone, Does anyone have any reccommendations for dealing with chronic pain associated with Lyme? What has worked for you? Lately my nerve, muscle and joint pain has been bothering me much more...
Joee, I experienced this a few years ago, when I was still in the process of confirming my diagnosis, and became so ill that I wasn't really able to participate in life as I normally had before. I...
The Dude Abides, I would highly recommend looking into doing an herbal / OTC combo for sleep issues related to Lyme, especially if you are wary of pharmaceuticals. I'm not a medical professional, but...
Hi Casa11, I have never tried Trazadone so I cannot weigh-in on that, but for my Lyme-related sleep disturbances, I religiously take a nighttime pain reliever / sleep aid (Tylenol PM) as well as...
I take 5-HTP on a daily basis in conjunction with several other supplements, vitamins, and amino acids to help naturally boost my mood and concentration. I've also found that it helps with appetite...
Hi Walkingbyfaith, When dealing with judgmental, uneducated, or unsympathetic people, it's important to always remind yourself that those comments and behaviors are a reflection of those people, not...
Girlie and 1000Daisies, Thank you. I am going to look into these herbs and possibly add them to my Buhner Protocol just to be safe. Since these are all "infections" after all, I wish we could come up...
Thanks everyone for the input. I feel like diet is huge in general for overall health, even if you don't have Lyme or any kind of ailment. Especially if you live in the States, where we allow all...
Girlie, I know I've read on here before that Lyme rarely travels alone and it's important to treat co-infections as well, but both of my IGENEX tests for co-infections came back negative for all of...
Hi Everyone, I know we talk a lot on this forum about ABX, Herbal Protocols, Supplements, and the like, but I was curious what kinds of diet and lifestyle changes people have found success with in...
Hi everyone, I have been on this protocol for about a month, and have definitely noticed good overall results. I still herx from time to time, mostly after taking the probiotic, but I am going to...
Hi Xelaetaks, I had some herx-like symptoms and sleep issues when i was on Ceftin for a few months, but pushed through and continued the full course of treatment. I still have them sometimes as I am...
Hi WalkingbyFaith, I too am on the Buhner Protocol and had some herx-like reactions in the beginning, but they mostly seem to have since subsided. Maybe you just need to give it time? I mixed in some...
Hi Kml, So sorry to hear about what you're going through. I have had Lyme for several years now with various treatments on and off, and I can certainly empathize with Panic and Anxiety symptoms. They...
PeteZa, thank you for that. I am going to look into that further as it seems I am missing a few herbs to my overall protocol. 1000Daises, I have been tested positive for Lyme three times now over the...
Hi everyone, I was treated for late-stage Lyme in the beginning of this year with a few months of Ceftin and a combination of herbs and supplements. After the lab work came back negative in April, my...
Hi everyone, I was just curious as to experiences people have had with physical therapy in relation to their Lyme recovery treatment. Has it helped at all with some of the muscle and join aches,...
No, that shouldn't make a difference. I've had success in using 32oz of Hydrogen Peroxide in addition to the epsom salt - it's supposed to be good with detoxing and healing infections....
I just looked into it and found a purchase link here - http://www.forresthealth.com/apo-hepat-homeopathic-liver-support-drops.html I'm going to give it a try. For anyone else interested, you can get...
I just took a look at these and it turns out that, ironically, I have already been taking supplements that include many of the ingredients included in his protocols (at comparable dosages). All I...
Girlie, what homeopathic liver supplement do you take? I have been looking into adding homeopathic healing to my regimen as well....
Thanks Pirouette, I will look into burdock root....
Thank you everyone for the feedback. i am going to look into something like grapefruit seed extract and a natural antibiotic, as my LLMD advised against taking additional pharmaceutical antibiotics...
Thank you, I will definitely look in to these!...
No worries at all, I appreciate the honesty and support. My Dr. never mentioned a cyst or biofilm buster. I'm just now reading up on them in the forum. Are there effective non-prescription ones that...
Hi Traveler, it does- thank you! I will take a look into Lidtke brand Tryptophan....
mm57553, thank you for the insight. I am learning quite a bit from this forum. Glad to hear that you are seeing good results....
It is my understanding that prednisone modifies the immune system in a way that can really cause a lot of problems in someone with an active infection such as Lyme disease....