29 years old is young! Please find a LLMD (Lyme Literate Medical Doctor). Your symptoms sound similar to mine. Every person is different and needs to be treated differently with Lyme. If you haven't...
I lost my sense of taste and smell and also had phantom smells. This was before I knew I had Lyme. I went to a doctor in Washington DC for 3 treatments and he cured me. This has been 3 years ago and...
I don't know about the possibility of it getting into your bones, but I do know firsthand that it probably will make your Lyme symptoms worse. I've unfortunately had to have two surgeries this...
The bulls eye rash by itself is enough for diagnosis. That's what I had. I would advise you to be sure and take some pictures of it. Those pictures may come in handy later. If you are not using a...
I just emailed you the name of who I am seeing that has helped me tremendously. I hope the email went thru. She is in the Kansas City area....
On the flip side of PeteZa's girlfriend you could be like me. I got on two rounds of Doxy pronto after my bite which had the bulls eye, yet here I sit 11/2 years later still fighting it. If you start...
I don't have any answers, but also totally confused about the thyroid. My GP had been watching it for a year or so before Lyme came along. Then it really went crazy. I had one test done on 2/1 by my...
Thanks Babsbunny! Just the information I was needing. This forum is amazing. If it wasn't for the people on here I think I would have lost my mind by now. I don't post often, but do read some most...
I got bit on a Saturday and was on Doxy by the next Friday! So, not even a week. I sat and watched as my GP looked up the CDC recommendation for treatment. I actually did two rounds of Doxy, but only...
I hate to say congratulations on testing positive, but Congratulations! I've been battling this stuff since September 2015. It is hard to accept the diagnosis especially since this disease is wrapped...
A few weeks back there was someone on here looking for something to take for a really itchy rash. I finally had success! Both of these are prescription medicines. The first one is Triamcinolone .1%...
I had the same kind of bullseye rash you are talking about. Mine itched like crazy and was hot to the touch. I did two rounds of the Doxycycline that did absolutely nothing. I was bit August 2015 and...
Very interesting. I listened to the entire thing. Wish he could get his message out....
I had the beginnings of bells palsy with the face numbness on one side at the very beginning of my journey. Went to the ER and the doctor diagnosed a toothache and gingivitis. Went to see my dentist...
Oh my gosh I got bit the exact same place and had a bullseye rash that my doctor diagnosed as Lyme disease and the Elisa was negative and the Western blot was inconclusive. Please, please find a LLMD...
Be sure to try that massage that Peteza posted. It is a lifesaver for me. I had the pain behind my ears like you are describing for almost 9 months before I saw this link. It has helped immensely. I...
I'm 61 female and live in Kansas. I've grown up hunting, fishing, and camping so probably had tick bites but don't really remember them. The one that got me was when my husband and I were cutting...
After one year of having jerking of my legs, head and shoulders for two-three hours every night I have finally stopped jerking. I think it was something my new LLMD gave me that helped. I had been...
My LLMD told me that the IgG Subclasses 1-4 are what you are born with for an immune system. All mine were within the normal ranges. My LLMD follows Horowitz too. Have you read his book Why can't I...
I had the CD8-/CD57 + Lymphs done and my result was 4.5 with reference 2.0-17.0 I didn't make any notes about this test when my LLMD went over my results. Also had the Abs.CD8-CD57+ and my result was...
I too thought that the LLMD fees of 350-700 was way too much. Now I wish I had just gone ahead and gone to one a year ago. I got bit in August of 2015 had the bullseye rash so was clinically...
I had often wondered if you could sue the CDC. Any lawyers on here? My doctor followed the CDC protocol to the letter and here I am a year later. Working on peeling back all the layers....
I have the same kind of problem but mine in on the right ankle. Seems to calm down and then flares and I can't find a reason. My LLMD is getting me some topical cream for it. She had just ordered it...
I had thought of abandoning ship just last week. I had wondered what would happen. Now I know. Thanks for sharing. At least this week, so far, I'm feeling the best I've felt in months....but just...
Sam I was in your exact spot two weeks ago after fighting this stuff for a year. I finally just went to sleep with the help of Benadryl and woke up feeling somewhat better. The dark spot you are in...
I've had leg, arm, and shoulder twitching for almost a year now. The fun part is when my head gets to moving rapidly back and forth too. That is really scary. Did the neurologist route...didn't do...
I know the feeling...it was one year ago today that I was bit. I think by being diligent about doing my detoxing has helped me in the last month. I too am on 500 MG of Azithromycin right now. I know...
At least you have a regular medical doctor that cares. That helps. Whatever you do don't let him send you to a neurologist if you are having brain fog and memory issues. It is a waste of time and...
The brain fog does lift although I'm not exactly sure why. If I had to guess I think it was by doing the detoxing that everyone on here encourages. I just do lemon water all day, foot baths of epsom...
I've had right eyelid twitching for 8 months now. It comes and goes. I also have leg, head and shoulder jerking that keeps me awake for 2-3 hours every night. I've been on probably 10-12 different...
My doctor has agreed to sign the form to request testing thru IgeneX Lab. Should I just get the Basic Lyme panel or do I need to get something else? At this point my symptoms are mostly neuro. I had...
Gummo, I have the same thing, except more severe. It involves both legs now, plus now my head is violently jerking three or four times in a row. I'm afraid it will knock the rocks loose in my ears...
Yes, I've read the New to Lyme. Lots of good information....
I'm just trying to find an LLMD anywhere. Would like to stay in the Midwest, but could travel to Washington, DC, Boston, Baltimore, or Dallas. My symptoms are mainly neurological. My eyesight...
Problems started Sept 2, 2015. Had classic bullseye rash, itching and on fire also, treated with 10 days of Doxycycline twice. Skin on hands and feet have peeled after exposure to water, brain fog,...