Hi Hoagie and Girlie ...(I'm the member with the sister that went to Sanoviv) it's been a long time since I've posted. Kelly came back from Sanoviv with great hope followed by extreme deterioration....
Hi Hoagie, thank you for your post. My sister Kelly's symptoms have dramatically worsened. We had to act fast. She and I jumped on a plane to California this past Friday afternoon for her to meet up...
TymeToKillLyme What's a personal Sauna?...
K07 Sheepla - are the rumblings like vibration or buzzing? If so, i have that as well as weakness off and on. I do have lyme, bartonella. Does your sister by chance have mercury fillings? You may...
Hoagie: I/we have heard of the protocols. Not sure why she pushes me away when I bring them up. We have a close friend who works with Cowden Protocol. Which I am sure is similar but will look it up....
in the beginning she had a slight slur only at night, that was January 2017. Then she got her Lyme / Bart diagnosis in April, still slight but getting worse. Then she went off of the PICC and Bicilan...
Dacarte3: Her symptoms are 24/7 as far as speech and weakness. I think the "rumblings" or tremors that she feels change slightly. Glad to hear you're fully functional. Hoagie: If the Rifampin is what...
Thank you!!! She actually never took Doxy back in April/May when she started treatment. So she is on day 5 of Doxy and Malarone....
These are the symptoms that my sister has and she is Lyme and Bart positive ... She recently went to neurologist that specializes in ALS and told her (despite the positive Lyme and Bart) that she...
Is there anybody out there with similar symptoms? CURRENT SYMPTOMS slight paralysis on left side of face and weakness left arm and now leg, Weakness in tongue and back of throat, VPI, fasciculations...
what's bump?...
Is anybody familiar with a practice that offers Rife Machine Therapy?...
Girlie ... this is me : ) ...you have been SO helpful, just thought I would inquire about the labs. this is for my sister, who has bulbar ALS symptoms and though she has a positive (IGX) Western Blot...
Igenix: IGX: Negative CDC/NYS: Negative Borreliosis - Lyme Bands (kDa) 18 (+), 23-25 (I), 28 (-), 30 (-), 31 (I), 34 (-), 39 (I), 41 (++), 45 (-) 58 (++) 66 (-), 83-93 (-) Western Blot IgG IGX...
Please email me any time...
Thank you KB69, I got your email and forwarded on to my sister. Left a message and will call back as soon as they open tomorrow! THANK YOU!...
Hi, I am desperate to find an LLMD as close to home as possible. My sister has a positive Bartonella diagnoses and because her symptoms went from a slight slur and twitching, to what looks like bells...
Thank you PeteZa ... will do and thank you for the article. I am so sorry for all of the typos was writing from phone and clearly couldn't see very well. Sheila...
Hi, I am desperate to find an LLMD as close to home as possible. My sister has a positive Bartonella diagnoses and because her sysmption went from a slight slurr and twitching, to what looks like...
I would also like to know that name and phone number of your naturopath in Fairfield County CT. That is where I live and my sister is desperate for help. She has NueroLyme and her speech is...