Oh 10LymeB, I 100% feel your pain. I had a complete meltdown about this a few weeks ago. My husbands go-to is to bring HIS type of comfort food and my family is just plain useless. My sister...
Dude - I'm taking something very similar for my Thymus. Honestly about a month ago my lymphatic system was a disaster, that stuff has done WONDERS.... that and my wet sock therapy. Honestly, probably...
Awwww... Girlie! I tried "Accepting Change" today. If you're up to it, its a little less soul wrenching and a little more reflective about surrendering ;) and trusting the process. Equally as good. I...
Girlie - Hi! I've been meaning to email you! Rough week :( Nope, negative for everything except for EBV and Coxsackie Virus. In rereading to this point, you're right, I should clarify that they both...
Hahaha aren't crossed out prices supposed to be MORE than the one it ends up being?? WHAT THE?? Haha... but I think you're right. I think Multimessenger is maybe the old name or the European branding...
I actually went to see my ND about this today and this was literally our discussion.... as they can't actually tell if I have lyme based on my Armin Lab results (anything looking for an immune...
Did you guys listen? Isn't it amazing? My husband was like, "What's wrong with you? I don't get it. Are you happy or sad? Are you ok?" And I'm like laugh-crying, "nnn-nnn-oooooooo". LOL. I NEVER cry....
Gabybee- I inadvertently did bee venom therapy.... as in... got stung by a bee and my whole system went COMPLETELY out of whack and came off of a period of feeling great to feeling like DEATH warmed...
Pirouette - Currently doing Gemmotherapy for EBV in preparation for more extensive natural antivirals (my system is a mess) have you ever had anything like coffee grounds in your stool? Sorry, I know...
I was earlier, until I found this.... I know its a podcast, a guided meditation for the masses, but I swear to you that its about Lyme. I swear. "When We Must Endure"...
I guess its a case of the devil you know vs the devil you don't know. Some of the other symptoms on here freak me out and I'm always so thankful that I don't have them!...
Cool, maybe we're starting a "thing" lol... I didn't mention above but she stressed the importance of making sure your feet were incredibly warm before putting on the cold socks (i.e. soaked in hot...
I was going to say, I've been told to categorically avoid arginine (and high arginine foods) with EBV and douse myself with Lysine. And EBV is part of the Herpes family.......
Ok, I HATED last night, it was AWFUL. BUT, it really worked. The inflammation in my head is so improved I'm doing it again tonight. After taking the socks off this morning, I expected to find blue,...
Pirouette - You won't really realize that you're having trouble with this. It won't SEEM like double vision because your brain is working so hard to correct it. It seems to the person having it as...
No prob. I want to say that mine has to do with a partial palsy and one eye not moving quite the same way as the other but that's not confirmed.... Convergence insufficiency is interesting. Your...
^^^ this. Had a big fat helping of THIS today. Had to clear out all of the stuff/people that were getting in the way of me getting better. And then I did smoothy prep. Apparently papaya and celery is...
You should look into convergence insufficiency. I was having so much trouble driving and even being a passenger because my eyes won't work together to make images "one" (as opposed to double) at long...
Has anyone tried this for lyme? Edit: Its supposed to be great for colds but ALSO for lymphatic drainage. Its an old hydrotherapy technique where you put on a pair of wet 90% cotton socks followed by...
5mm - right on the borderline. Absolutely no idea if it was there before. I never had an MRI prior to onset in 2015. There "doesn't appear" to be a spinal fluid blockage but MY GUESS is that when...
Ok, googled DMSO... Where do I GET it?...
I messaged on it ;) I'll have to look into DMSO. To answer your question on THAT thread... I was never diagnosed with IIH (I don't have ocular nerve damage, or elevated opening pressure BUT that...
Hows this for fun... they can't SEE it anywhere and it gets better and worse... but yes, probably IIH. They just won't call it that. They prefer basilar migraine. Tomato.... tom-ah-to.... Edit: Oh,...
Mr Dude - Our stories are CREEPILY similar. I keep having crashes - but I THINK that they can be pinpointed to having my immune system thrashed by pathogens, stress or poisons (in the case of having...
Cerebral Spinal Fluid production... it has a ton of different uses but I *THINK* this is how its helping me. I always complain of feeling too much pressure in my head and have only ever gotten relief...
They tried to give it to me as a migraine drug and it made me so incredibly and uncharacteristically rage filled that I stopped taking it after 2 days... a lot of these types of drugs have a SHWACK...
Girlie - Hmmm Physiatrist - who knew? I've never had a real problem with pain. Its always pressure for me, but who knows if I start having really bad herx's. Did he help? Other than being a big...
Mr. Dude - Hi :) Ok, hopefully we both get some answers and can work through this together. Are you in Australia?? Out of curiosity - with the same positive test results - what are your symptoms like?...
Girlie - I am. Just outside of Vancouver. Yes, EM. He's lovely. So kind and thoughtful. He gave me wonderful advice, but as is so often the case in the beginning, you don't know up from down and the...
No. I need to apologize. I'm having a day. Lol. I'm in BC. My Lyme journey is long and convoluted. I was tested (ELISA) the first weekend I presented in hospital and was busy being misdiagnosed with...
Sorry, I'm in meltdown mode today. I watch people come through here all of the time after they get their test results back and I'm like... I'm NEVER going to be like that. Oh look, here I am. Lol. I...
Acetazolamide or Topiramate work. Both are also prescribed for migraines. If you DO have IH LP's instantly relieve all of your head pressure but aren't without a bucketload of risks themselves...
So... of the 39 people that read this... some of which I'm assuming are mods... nobody can answer the question? Am I not being clear? Or am I not asking the right question? I understand how an elisa...
(I'm going to preface with the fact I am not diagnosed with lyme/bart yet, but my LLMD is convinced I have both.) My symptoms are VERY similar to your sisters. Left side everything - including...
Can someone help me decode my test results? I've been sick for 2 years - in and out of neurologists offices and MRI machines - and was preparing myself for a lyme/bartonella diagnosis today and my...
Hi, I'm really hoping that you have already had all of the testing done around these - seemingly obscure - issues and maybe *crosses fingers* have some answers. I have the same ones. Ferritin: low...