tickbite-I started on it about 3 weeks ago. The biggest issue I've had has been days or hours of debilitating exhaustion. The exhaustion comes with lack of brain function. I've seen a couple of...
Unfortunately I think since you have already filed and been denied you are going to have a more difficult time getting approved. Lyme and co infections will not get you disability. Wishing you the...
My guess is that you are not sleeping because your cortisol levels are completely messed up. That was my issue and it's very common when our bodies are so stressed. My LLND tested me for it. The...
Chick,I don't know anything about the protocol but I do know that Zhang is a very respected researcher who focuses on Lyme and co's. He's connected to Global Lyme Alliance and on the board of Bay...
It feels 'nervy' not muscle. I have been pushing/presssing...rubbing...etc. Haven't tried heating pad. I'm thinking maybe ice...as if it's nerves that may help... That did work for my shoulder blade...
If it's happening every 20 seconds or so that would led me to think spasm. It could be a muscle or tendon spasm caused from tension in the area due to inflammation or pain. Try a heating pad and then...
Just a herx doesn't diminish the significance of the high result. That's not an ok answer from an LLMD A high result on any Kidney or Liver test needs to be dealt with. You need to stop abx's until...
I told you my LLND won't rx Dapsone based on the current side effect issues; ie death and other very serious long term effects. He stated that there isn't enough data yet to change his mind and risk...
For those of you trying to get disability this might be of some assistance https://www.bayarealyme.org/blog/lyme-disease-disability-benefits/ It's written by someone who is an Outreach Coordinator...
I read that she's feeling really poorly again. My heart sank. I than read a post on Instagram of someone who has Lymes (no it's Lyme) and was ranting that she doesn't and never had Lymes only rich...
There is an OB/GYN that's name is given when you sign up for the LLMD resource (It's been a long time so I don't remember what site that is) I know that Girlie has him on her list of LLMD's but when...
Turmeric only becomes a anti inflammatory when it is paired with black pepper. Without the pepper it does not aide our systems. You are getting increased relief with fish oil due to the anti...
I sent an email to a member who is on infrequently now as she is better (multifacetedme) asking if she could respond to this post. If my memory serves correctly she lives/or lived in the same...
Just my opinion but I think to find parasites you also have to do the stool test. Just 4 is terrific. I have greater than 2 % which is listed as high level of microbes and my list contains 120...
She first spoke publicly about having Lyme over 3 years ago. She's been sick for a long time. When she initially spoke out she wasn't ready or comfortable to speak honestly about the true horrors of...
Any update Girlie?...
Those specific muscles are your head support muscles. Have you been looking down at a phone, tablet, or reading a book? When we spend a lot of time looking down we stretch those muscles and then when...
Regarding the Boston Heart test results. Our HDL results will be abnormal as well as most if not all of the other cholesterol results. This is due to the inflammation that our diseases cause. They...
Since you go to a doc in Mountain View I assume you live in the South Bay. Instead of Taco Bell what about doing a Trader Joe's run every week. You'll need to check labels the first few times until...
I disagree. This will only cause issues for Igenex. It's best to move forward and stay positive. That will help you with your healing....
I'm so sorry this happened to you. Unfortunately your story is pretty common. Lyme disease is far too often still not recognized by Western medicine MD's. You can get assistance in self treating on...
Interesting. What's the name of the fungi? I have a "supposedly" rare yeast.[/quote] I couldn't write everything down during the phone call but I'm pretty sure it's alternaria alternata. It's not...
The only reason to switch to IV abx's is if your gut isn't tolerating oral abx's. I do however think that there is great benefit in some of the IV treatments that you can get at an naturopathic Lyme...
My doctor believes that the lyme/coinfections caused our immune systems to be compromised which allowed these other issues to occur which is keeping us sick....
The report reads:high level of microbes detected (>2%) No Parasites Identified List of Identified Fungi (then they are listed with their percentages) No DNA Viruses Identified List if Identified...
Ok I was the guinea pig on this test. I only did the plasma test. I was only off killing meds for a week and did not do any extra exercise before the draw. My results came back and they are 5 pages...
Good to hear about the Readisorb, I’ll probably give it a try. Might you be able to elaborate on the effectiveness of charcoal? I do find it hard to believe that charcoal is really capable of...
Yes, my numbers were good on Mepron. Either Dapsone or Rifabutin. Do allergic reactions cause kidneys to fail though? I didn't get anything else to indicate an allergic reaction...I would think I'd...
I use pure encapsulations liposamal glutathione and I finally found the coconut charcoal. It's made by Bulletproof and is sold at most Whole Foods....
I'd check that if your numbers were ok on mepron. If they were and this happened that quickly on the dapsone then you might be allergic or not your body may not tolerate it. That happened to me on...
Yes, Full CBC panel and creatinine and bun were fine on mepron. I get blood work every 30 days....
My GFR has done that a handfull of times during treatment. My LLND has had me pull back on treatment and take this ghastly tasting stuff called Two Treasures. It's made by Heron Botanicals in...
I'm so thrilled for you!!!...
what exactly are you looking for? Holistic simply means whole body. Treatment of the whole person, taking into account mental and social factors, rather than just the physical symptoms of a disease....
What meds are you taking. I find that my hair growth and texture changes depending on the antibiotics I'm on. I noticed a loss of hair when on alinia....
What Girlie said is true. I was on a very low dose oral cortisone to boost my adrenals for a few months. That was prescribed by my Lyme doc. You will be fine with a typical cream....
The 50 billion doesn't matter as much as getting a lot of different strains. Right now I'm taking Garden of Life Raw Probiotics Ultimate Care 100 billion 34 probiotic strains...
In the google custom search box at the top of the page type in bicillin lyme and it will pull up all the threads that have been about bicillin shots/injections in this forum....
My insurance will also only cover 6 pills. I get my rx for 60 pills a month through Foundation Care in Missouri. I pay $300 and they overnight ship for free. I've always taken it with Biaxin and...
Alexis-When I went through the worst of it I had opiates from major surgery or I don't know if I could have handled the pain. I very much understand. My LLND just gave me a bottle of Kratom. I've...
I emailed him all the info including Chick's doctor. Foster City is about a 55 minute drive. I did some ozone at Holtorf there....
I don't get the usual anxiety...but my nerves go berserk.....and I get all shivery when I'm reading this stuff...lol. my husband is perplexed...because I've always been quite cool and calm...and now...
I'd call the pharmacist about splitting the pills. I just read Dapsone's info sheet and it states not to split the pill. I've taken a med that splitting the pill completely changes the way the...
Insurance should pay for the rocephin but they may not pay for anything else. By that I mean the IV bag, saline, tubing and the infusion cost. Their reasoning is if you haven't exhausted every other...
The Bay Area has become one of the big hot zones for Lyme in the country so it's possible that he got bit here. Most ticks here are nymph ticks so it's unlikely that you would have seen it....
I think the xylitol caused the dash to the bathroom. All no calorie sweeteners have that effect. There is actually a warning on diabetic candy regarding that side effect....
Can they prescribe Mepron/malarone? That was the issue with my LLND. (in BC, Canada)[/quote] I'm on Mepron now. I don't know if that's just California or not....
I see a Lyme Literate Naturopathic doctor. In most states they are able to rx all meds but controlled substances. They also have a very broad knowledge of herbs and support supplements....
I can only tell you from my own experience. I had my ovaries removed about ten years ago but when I first got bit I was still cycling. I didn't know at the time it was lyme but I did realize after a...
It was Dr H...