I am also very curious about this subject as I just bought his Advanced Biotic herb mix. I have started out at one capsule a day (per his written instructions) and will build up to three capsules a...
Disulfiram got rid of my dyspnia and other dysautonamia symptoms. When I went off of the disulfiram the dyspnia slowly crept back in. The breathing has been my worst/most persistent symptoms over the...
Yeah when life gives you "regular" mishaps on top of being chronically ill, it adds up quick. You're right this is a prison most days. I talked to a therapist a few times who specializes in chronic...
Oh Sunflower I'm so sorry. I completely resonate with your statements... "begging God everyday to just take me or cure me soon because this is beyond devestating" "I don't want this life anymore." I...
Thanks for the metformin idea Quin. I've never heard of that before. Clindamycin and bactrim worked really well for me a few years back and that's why my doc put me back on them. But you're right, my...
Quin, Maybe that was my problem. Maybe I could have stayed on disulfiram if I were also doing a hard core bart treatment with it. I was taking bactrim and clindamycin on and off while on disulfiram...
I have read through all the disulfiram posts but never posted my own experience. Some of you already know my experience but I just want to keep a good log of info going here. I was on disulfiram from...
My doc has me on diflucan right now along with antibiotics. I can't say I've noticed a difference since being on it. However its still a good tool for people to try. If systemic fungus is a problem...
Quin, When you say a few weeks later do you mean after stopping the valproate? So is valproate suppose to kill lyme and babs?...
Lymie I started treatment with my current doctor in jan of 2017. Then from jan 2019 to June 2021 I tried a different doc because he had some alternative treatments. After I saw little results from...
Thanks everyone. Girly, I've done babesia treatment in the past with malarone at one point and mepron at another. And my doc tells me the bactrim and clindamycin im on right now should fight both...
Oh I also forgot to mention that for the first time in all my years of treatment that three days ago I got distinguished bart lines...a few short ones on my stomach and two long ones on my arm. Does...
About a month ago I stopped disulfiram due to causing horrible skin issues(acne on chest, back and neck with white solid core) Then about a week ago my doctor told me to go back on minocyline,...
Thanks rainy. I'll look into the ivermectin cream. What issue specifically do you think its related to? Lyme/co die off? Parasites? Fungus? I'm sorry you have skin issues too....
Thank you all for your responses. Astroman I forgot to mention that I am on Fluconazole as well. This is not the cause of the acne due to having it before starting the Fluconazole. However maybe if I...
At little background info: I have been treating lyme, bart, babs and fungus for about five and a half years now. I have used numerous treatments including antibiotics, herbals, UVLrx. My most recent...
I also do this and think the same thing. My thought is when you feel better, then you don't visit this place as much. When I see a past poster who was in a rough spot at one point and then eventually...
Thank you Gettan. So far I got a little air hunger back but it is way better than before I started disulfiram. The skin issues have yet to subside completely. It has been 3 weeks exactly so hopefully...
This is very sad to hear. What a lost for the lyme community. Everything I heard about him, was that he was a great man....
WBF no problem with the rambling. I'm glad to hear people's hypothesis and thoughts on the subject. Thank you for your input. Rainy, thank for the response. Im sorry you have skin issues as well. I...
I hope you are enjoying yourself Girlie!...
Garzie, I too get the hard sandlike materials out of my pores sometime. However most of my skin stuff is nodular acne. Rainy, are your skin issues related to disulfiram as well? If so, what dose were...
Garzie, I've been doing disulfiram for 8 months but my skin only got bad the last 3ish months (with higher doses) The disulfiram has helped my air hunger greatly but unfortunately it came with the...
Thanks blondie. I've never gone slowly off the drug. I think I'm at the point where I just want it to leave my body. I really hope I get some improvements from putting my self through this for over 8...
Hey guys, just wondering if anyone quit disulfiram before getting to their target dose? I have been on disulfiram since last August. My doctor had me slowly ramp up but I can't even tolerate 187 mg...
I cried so hard watching "under our skin" ...very sad/disturbing yet informative documentary....
Thanks for the replies everyone. I talked to my doc today and she agreed I should stop the disulfiram. She said I can try it up again when I get over covid. Even though my physical was not great...
Thanks for the responses guys....
My llmd prescribed ivermextic but the pharmacy wouldn't give it to me due to the high dose my llmd wrote it for. I contacted my llmd bout this as well but she is so behind right now. I feel like I...
I didn't get my period until at 17, it was induced. I needed to be on birth control otherwise i never got it consistently. Years later when diagnosed with lyme at 27, my doc told me that I might have...
So for the last four days or so I've been in a really dark place...like waves of depression pour over me and are now lasting most of the day. I was diagnosed with covid last Wednesday and have been...
She put me on famotidine as well. I was able to pick that up the other day...she also told me I need lots of vitamin c and zinc so im treating myself the best I can. If lyme has taught me anything...
I am very sorry to hear about your friend's passing. This post is a subject I think anyone living with chronic illness can relate to. I've been dealing with lyme for five years now and there were...
Does this sound right? My llmd wants me to do 4-12mg tablet a day. Whether it's right or wrong I can't afford that though....
No I'm going to try to order in on that alldaychemist website to make it a little cheaper. My llmd prescribed 4 12mg tablets a day though and I can't afford that....
I'm only on day three of symptoms but so far I feel ok. I'm more achy than usual and my throat is sore....
Some of you may remember that I was debating what to say for my sisters wedding speech ...a sister who I feel was not there for me through my lyme journey. Well she had her bachelorette party on the...
Ok people talked about sugar and whatnot but dark chocolate is lower in sugar than milk chocolate. What it is higher in is caffeine though. I love love love dark chocolate because you can actually...
I have been told to go on ivermectin by my llmd as well but the cost was outrageous. My llmd also wanted me on a large does but this website will make it a little cheaper. I was also sketched out by...
Thank you Deejavu. I didn't listen to it yet but I look forward to it. I want to make progress in this department....
Thank you all so much. So many good pieces of advice. I knew you all could relate as you have been in similar situations. Girlie, I don't want the confrontation either. I have honestly just ignored...
I have had depression on and off over the five years of treatment. No one antibiotic caused it. To date the worst psych symptoms I have experienced though were from minocyline. For the first few...
Ok hear me out the title of this post may seem really off topic but it relates to lyme/ chronic illness. So I'm trying to create a wedding speech for my sister and I'm having a reeeeally tough time....
Thanks again everyone for your responses. Blake- it could be a herx since I never did cryptolepis and artemisinin at the same time before. Its so difficult to figure out because I also tried ozone...
For future reference for members. I feel this has happened to me as well. I tried ozone for the first time four days ago. I feel that two day ago is when my air hunger ramped up in intensity along...
Thanks for the replies :) As for going back on antibiotics...I don't know that I will. I've done every combination in the book and never accomplished full health. The plan as of my last appointment...
Its been a while since I've posted here. I once again fooled myself into thinking I was going to get better. As of the last few weeks I've started to tank again. My air hunger has ramped up a...
Yeah it cost me 110 for a month supply and I needed a prescription from my llmd....
I was put on clotrimazole and methylene blue together for my air hunger....I did the combo for two months. I just can't say if it helped or not. It did permanently stain my toilet blue. :/...
I am waiting to get preliminary bloodwork done but will also be starting Methylene Blue soon. My doctor is combining it with Clotrimazole and Artemisinin. All three of these are new to me. My doc...