Hi Nellie, I live in Pa also, not sure where u live though...I use a doctor M in Exton. She’s really good & super nice- even though I’m like a nightmare patient! Girlie has her name & info , she’s...
Hi, to the best of my understanding, cats rarely if ever get Lyme. They do get Bartonella a lot though,and maybe other tick born stuff. ( I’m not sure what) Bartonella is something really common in...
I take it, but not with Neuro symptoms in mind ( although if it helps them I’ll be happy) I take it for my joints & colllagen loss from Ld but started taking it because I have a connective tissue...
Hey, so sorry you’re feeling so bad for so long! I deal with those symptoms too. It sucks! Sometimes I feel like nothing I’m doing is helping at all, but I think it’s all relative. I’m still having...
I think collagen & bone broth are good for gut healing. I also feel like I read something about turmeric being good for the gut too- but you might want to double check that- I just read it in...
Interesting thread. Tickbite, is a ‘blind’ pimple one that never fully develops? If so, I’ve had tons of them. Prior to treatment I had them ( also on my chin &upper lip) almost constantly. Since...
Also, just like anything else we take, I think it’s always best to start at the lowest possible dose ( 1 drop of diluted oil) and gradually increasing it depending on how you feel....
I would also suggest taking only very high quality oils- for any that you want to ingest. I do take oils ( only ones that are ok to take that way) internally, and get mine from doterra & North...
I think you’re right if that’s the only thing you’re taking. But I do believe it’s helpful in lesser doses especially as part of a full protocol. Even my llmd says that she thinks I’d be much worse...
I just wanted to chime in and say thanks for describing the spine thing. I get that sometimes too, often accompanied by chills and extremely uncomfortable feelings in my lower abdomen & back &...
I’ve been taking the same brand of oregano oil( p73) which is already diluted with olive oil. I’ve been taking it for years. Let me just be clear that anything I say here relates only to this...
Hi, I’ve often tried to figure out the same kinds of things. There are online interaction checkers, which allow you to type in all meds & check them for interactions. I did find one that also let you...
I used to feel that way, even after eliminating all the bad stuff- but it’s gotten better - mostly since switching to a whole foods ketogenic diet, but I’ve also been treating as well, so maybe that...
I’m not good with meals myself. Eggs. Salads .non starchy / or sweet veggies... olives. Avocados. But I am better at snacks etc...I’ve begun to incorporate a lot of healthy fats. It might sound...
Yeah I have this sometimes as well. It’s actually improved a lot with treatment & diet ( yeah !!!!! :) ) I used to have it a lot , and it was very noticeable when laying in bed. Eaither that or I...
Just a thought, but I also have( hopefully HAD) severe yeast overgrowth involving many different strains ( not sure if yours was one of them though) . Severe kidney pain and UTI type symptoms were a...
Great thread! So good to laugh about this stuff! And to know I’m not alone ... I thought I was the only one who could forget to renew their drivers license ! - went 2 + years without an issue until I...
Yes , I gave this problem too. Can’t take heat at all. Even though I can’t maintain a steady body temp, and am constantly trying to do so, it’s the heat that literally makes me ill. I do get some...
Yeah I've often wondered why the canine Lyme ( and co's) tests are so fast & easy & seemingly accurate, when the human ones aren't. I get my dogs tested for Lyme ( and heart worm- just cause it's...
Hey Scooterbuglyme, sorry you're feeling so bad! I don't have any specific advice for you reguarding the flagyl or other alternatives, but I can definitely relate to feeling that the the antibiotics...
Hey Mergirl, so sorry for all you're going through! I also want to apologize for not properly responding to your questions on another thread. I fully intended to- and you've been on my mind this...
Yeah, I've got this to some extent also. It was worse at one point, but now I'd say my sense of taste is about 25% returned. But for now I kinda count it as a bonus that I'm tasting less than I used...
Hey Mergirl, sorry I don't have time for a proper response right now. I can't drive anymore & today's the only day I can get a ride to get food, but didn't want you to think I was ignoring you! I'll...
HiLila, sorry about your toes! Not sure if it's the same thing, but I had blisters & cracking / peeling toes & feet pre-diagnosis- it was awful & very painful. I used ( diluted) oil of oregano ( I...
Hey Mergirl, just want to say how sorry I am that you're going through all this- it's bad enough being so sick , and then losing your mom on top of it... sending you hugs! So sorry you don't have...
Ps. Post thanksgiving venting here... I am finally home. In bed . EXHAUSTED... and realized how very little I've eaten today. There were mountains of food there, but very little that I could eat......
Hey 10LymeB, I totally hear that! I ended up allowing myself to be pressured into going to a BIG to-do at my fathers house. A lot of people- and not just family.... I also had to go upstairs & lay...
I was diagnosed w/ EDS as a kid. As far as I know it is a congenital disease- I don't think it's something Lyme can activate. But I do think if you had a mild case of hyper mobile type EDS that Lyme...
Hi Pirouette, as far as an actual caffeine supplement, I don't know. I had to totally quit caffeine ( especially coffee ) when I changed my diet ( at my sickest) . I was leary about adding any back...
Yes, it really is discouraging! Especially when I have friends who are older than me who still drink & party and eat terribly- and look ( and FEEL) way better & younger than I do. So unfair! It's...
Yep... me too . Skin is nasty, and seems like every time I find a moisturizer that doesn't make things worse it gets taken off the market... ( seriously, that's only happened one time, but I was...
Hi Mergirl, so sorry you're feeling this way! I understand the fear that comes with the neuro issues. I always think the neuro/ mental stuff is the worst! Don't get me wrong, the physical stuff can...
Hey 10LymeB... glad you came here to share what you're going through... so sorry you're going through it though! I know the sadness & loneliness that can come along with this disease.... just wanted...
Hi Sarahjane, I'm sorry you're having a rough night! And so sorry you're losing a friend. I know how difficult making & maintaining meaningful friendships can be with these illnesses . If you've...
Hi! I do ketogenic diet, oil of oregano, agricept-L , 2 kinds of probiotics, lemon water & sometimes ACV in water. Lots of coconut oil... There might be others I'm forgetting now... Also binders! I...
Hi Pirouette, Thsnks for sharing your experience... and for the suggestions. Maybe you're right & we're just not communicating well. And I have gone undiagnosed for a LONG time, lots of co infections...
Ps. Thanks for responding And sharing your experiences, Girlie!...
Hi Girlie, at first appointment she did a fairly good intake & all she gave me was trazadone ( for sleep ) and supplements.( and blood work orders) The first follow up was ( 2 weeks after initial...
Hi! That seems strange that the medication doesn't come with the syringes/needles etc, and that your doctor couldn't give them to you. Did you ask at the pharmacy that will fill the script? They...
Thanks notquite, I thought so too.. Just to clarify though, it was Szabo's doc who wanted the blood work to 'confirm' after an EM... I was just commenting on how crazy that was! I still think my doc...
Thanks Szabo246, for confirming my intuition! That's crazy, they wanted blood work to confirm when you had an EM......
Hi guys, I've been seeing an llmd since the end of august ( literally , it was august 28-30 th- the very end of the month...) Since then I've seen her 4 times ( always at her request ) and if I had...
Hi! It's been awhile since I used a castor oil pack, and I never used them with the intention of moving the bowels, more for low abdominal pain, detox & female type things... I don't remember ever...
Hi, I don't have time for a real post now, just wanted to say thanks for posting ...I came on forum to talk about similar family stresses & found your post instead. Sorry to hear of your situation!...
Thanks goshawk.... yes, I know all about mental stuff & panic mode... ;) I'm going to try to get back on track with my journal keeping too, as every single time I go through these 'cycles ' & rounds...
Hey guys, I've not tried miralax ( but may have to if I can't get things moving better...) but I do take a different kind of magnesium that I really like. Its called Innate magnesium powder, and at...
But so true.... I just got a shower & put on clean pjs!... and I feel like this is a major accomplishment. ( as yesterday I wasn't able to do so) ... and because it took me some serious effort !...
Hi jmeow16, I totally get where you're coming from. I've lived with chronic illness/pain ( maybe Lyme, maybe Ehlers Danlos Syndrome & then Lyme & co,..) for my whole life. So I've been dealing with...
Hi astroman, Hmmm...i was going to say that's weird, but then I realized I'm beginning to experience something similar. I only took antibiotics ( very) briefly so far, but know candidia is a major...
Hi Coopy1869, I don't really have much to add, seems like goshawk pretty much covered the bases... But I think it's great you took a photo of your bullseye! Also , while it's understandable that...