Thanks Girlie, yes, I'm taking the Biaxin as well. I'll have to read more on pulsing....
Thanks so much for the responses. It helps to hear from people who understand and have been there. It makes me feel better that most of you think this is a herx. I get to feeling sometimes like I'm...
I've been sick for 5 years. Two years ago I was diagnosed with Bartonella (positive IFA and PCR) and possibly Lyme, though I never had a positive Lyme test, only an equivocal Elisa. My Quest, DNA...
skinny_joe, my sister and I (both sick with TBDs) tried andrographis last year and both of us lost our sense of taste. Everything tasted like cardboard. I'm sure it was the andrographis because it...
There are some herbs that can cause this. What kind of herbs/supplements are you taking? Hope you can get it figured out. Loss of taste is a real bummer....
Walkingbyfaith, I don’t follow a specific diet, just what I feel works for me. I had a food sensitivity test and avoid the foods I’m sensitive to most of the time. (Dairy, corn and yeast). I cut way...
I’ve been doing the Buhner protocol for about a year now and I feel I’m about 75% better. But I’m like psiliciraptor, I don’t have a clear diagnosis. My Elisa was equivocal and my western blot was...
Thanks ArtAngel. I haven’t thought about Klinghardt herbs but maybe. I guess I was thinking I’d make some of my current herbs liposomal but I’m doing the Buhner protocol so I’m not sure if any of...
I’ve been taking Beyond Balance IMN-V for viruses for a long while now. But I have no idea what bug is causing what symptoms. I have (or had before treatment) high titers for Mycoplasma and Chlamydia...
I’ve been self treating for almost a year with Buhner herbs (and a few others) and I think I’m about 65% better. I have more energy, less weakness, fewer migraines, hardly any more heart palpitations...
I have a friend in Michigan whose symptoms and history point to Lyme disease. She's in central MI, near Lansing. She would like to see a Lyme literate doctor. Any help is appreciated....
Thanks, Girlie, I should have searched the forum. Good thread. I think I'm going to keep the CC in my protocol but keep it at the lower dose until I can comfortably increase it. WalkingbyFaith,...
For what it's worth, I am an extremely sensitive person, too. I never thought of myself as an empath, but maybe I am. I'm like you, Brookiegirl, in that I pray for road kill, ask forgiveness for even...
Thanks, WalkingbyFaith, I definitely have Bartonella. I tested positive for it on two different types of tests, so maybe that's what's happening. I will continue on the Cat's Claw dose I'm taking. It...
So I've been treating herbally since last fall and a few months back I realized the powder I'm taking (Samsara - Lyme) doesn't contain the kind of Cat's Claw Buhner recommends for Lyme! (They just...
missy_j78, I would love to do the Rawl’s program instead of all these tinctures and powders. But my loss of taste was so awful I couldn’t live with it. I was dropping weight rapidly. Not to mention...
I was taking andrographis twice a day for about a month when I lost my taste. It was profound. Not just a metallic taste. Food tasted like sawdust. I could hardly eat. I couldn’t taste sweet at all....
Yes, thanks goshawk. It's good to know that the increased vibration is probably herxing from the Sida acuta. I had taken it before for awhile in a formula that had multiple ingredients so wasn't...
goshawk, thanks much for replying. I hadn't thought about it, but I just recently added Sida Acuta to my protocol as well! I had almost forgotten. So far my usual herxing has been fatigue and...
Since treating with herbs for Lyme, Bartonella and mycoplasma, I'm feeling more energy and a decrease in some symptoms. But CNS symptoms are still bothering me more than anything. I have a constant...
My husband and teenage daughter were bitten by ticks on the same vacation that I was bitten. I’m the only one who has been really sick but they both are having some mild symptoms that may or may not...
Traveler, thanks so much. I have heard it’s possible to overdo the detox but have had a hard time wrapping my (foggy) brain around that. But I will check out your links and see if maybe some of my...
Psilociraptor, thanks for your comments. It's good to know you made progress by going slowly. I think I've just been pushing too hard to kill, kill, kill all those nasty bugs. I'm treating Lyme,...
Thanks Dahlias. Glad to know I'm on the right track for detoxing. And yes, I do take probiotics. My guts are actually much better than they've been in a long time. I eat fermented foods, too and bone...
I’ve been doing the Buhner herbs for almost six months but still can’t get anywhere near the normal doses of any of the antimicrobials. I seem to herx constantly. At least I think it’s herxing...
I heard they were great for moving lymph fluid so I bought one. I bounced on it three or four times and couldn’t walk for a couple of days because my back hurt so badly. I have a degenerated disc, so...
Thanks PeteZa, I’m going to try it. And I’m so glad to know I don’t need to refrigerate them. I’ve been keeping the tinctures I do have in the frig. I hope that didn’t hurt anything....
PeteZa, how long do you think the drops can be in the bottle mixed together? If I could mix my tinctures up and get them ready the night before, that would be great. If I could mix up a week’s worth...
PeteZa, thanks. If it was just now and again, I could manage it. But I have to be at work very early and I really don’t want to have to prepare and carry my morning and midday tinctures with me every...
Missouri, I used the Samsara powder for Lyme for about four months and definitely saw some improvement....
I know Stephen Buhner has recommendations for certain companies that he trusts. However, he mostly recommends tinctures. I do not want tinctures. They’re too hard to put together multiple times every...
I had horrible GERD and it came on right when I became very ill with all my Lyme symptoms. I have never tested positive for Lyme though my LLMD thinks I likely have it. I definitely have Bartonella...
Thanks, PeteZa. You’re probably right. I would just settle for a GP who didn’t automatically assume my issues are caused by depression. One doc put that on my chart a long time ago and now I feel...
I’ve seen an LLMD in Irvine but they are not real helpful and I can’t afford to try another one right now. Also, Irvine is quite a drive for me as I live a lot further east. (Yucaipa) So I’m self...
Thanks for directing me to Pathways to Recovery! I really appreciate it. I’m reading it now. Lots of information. This is great. 🙂 Looks like I’m a compound heterozgous, having both of those...
Thanks so much Girlie and PeteZa. I guess I have a lot of reading to do. I really hope knowing this will finally help me make some good progress toward healing....
I’ve been treating since June with the whole Buhner protocol. I was taking Sida Acuta and Houttyunia until about a month ago. I was having horrible gut issues and stopped everything for awhile. I...
Sorry I'm posting again today but I just got back several test results and don't have an LLMD at the moment. I just tested positive for the MTHFR mutations A1298C and C677T. I have a limited...
Thanks for the responses. I feel sure Bartonella is causing my painful feet and gastritis and I've had these symptoms for a couple of years now, so it's chronic. I've lost some faith in my doctor...
Hi all. I just got my DNA Connexions Lyme Panel test results back. There was a recent post here regarding that test and company. Some were saying they returned too many positives and it was suggested...
I posted here a week or two ago about my loss of taste. I still don't have my sense of taste back but I'm pretty sure I know what caused it, and it wasn't a sinus infection. For one thing, I still...
Casa11, yep, I’m thinking the silver lining is that I’m losing weight. I need to take about 15-20 lbs. off. But I sure hope this goes away eventually because I love food and cooking. Hope we all get...
I have sound sensitivity too. My worst is probably the sound of a loud TV, especially if it’s violence, like explosions or people shooting each other, screaming, etc. I don’t like so/called white...
Goshawk I hope your taste sense is fully restored. Not tasting food fully is a real bummer. Redlabel how long did the metallic taste last? Mine is more salty if I have to describe it. I hope this is...
For the last week, everything tastes like wet sawdust to me. (Ruined my Thanksgiving dinner, the food part, anyway.) I have this horrid salty taste in the back of my mouth and can’t taste sugar at...
Wow! Thank you so much! This is great....
Three years ago when I first became sick, I could hardly walk for more than a minute or so without sitting down to rest, so I can see how this would be impossible for some people. I am not nearly as...
So maybe I should exercise vigorously and then go have a deep tissue massage. :) mm57553, I found the instructions online, I think it said they don't want first morning urine and there is some...
Yes, I understand some LLMDs won’t accept that test but I’m ok with that since I’m self-treating with herbs for now. I just want to feel more confident about what I’m treating so I can target it...
Thanks, Girlie. I read that thread a few days ago. Apparently massage is also suggested. So should I get a massage first and then exercise or vice versa? Or only do one of those? And what about...