My llmd started me at 2mg. My sleep got worse and my head pressure increased. I didn't like it at all, so I quit taking it after a week. I read most people start at a much lower dose. After 2 months...
I'm not sure what your doctors are talking about. Lice is the primary vector for bartonella quintana (trench fever)....
Sahale - I went the herbal/alternative route and am very happy with that decision. As was mentioned before, trust your gut. You can always go with antibiotics down the road if herbal isn't working....
The only pharmaceuticals I've done are LDN and two 5 day courses of Alinia. I chose the alternative route after consulting a doctor friend of mine who luckily finds merit in alternative therapies. As...
I absolutely hate needles, but I will gladly get acupuncture. It has helped a lot with head/facial pressure. I didn't believe in it when I first starting getting it. I was just so desperate, I let my...
I have had every visual disturbance under the sun: floaters, snow, tracing, blurry vision, close my eyes and see kaleidoscopes, light sensitivity, stinging, conjunctivitis...the floaters and tracing...
I have herxed with the bar-1. It doesn't tend to last a long time for me, but I also follow my naturopath's instructions to back it off a drop if I herx. The herxes I've had haven't been bad; mainly...
I assume when you say BAR-1 you're referring to Beyond Balance MC-BAR-1? I take BAR-1 and my LLNP has me taking TOX-EASE-GL with it. I take 2 more drops a day of the tox-ease than the bar. I've been...
I put my herbs in pomegranate juice per Buhner, but I rarely eat pomegranate....
I've done two short rounds of Alinia. It definitely hit my bart the first time (head pressure and vertigo increased a lot). It was rough on my stomach, though. Whether that had anything to do with...
With regard to the question of can you have bart as a stand alone infection, the answer is yes. Humans can get over a dozen species of bart from various vectors (lice, fleas, sand flies, spiders,...
I did something similar to Mark. My lamps are in my shower as well. I originally bought a canvas drop cloth from Home Depot, but it was too heavy for the shower rods I had. So I ended up draping a...
Travis75 - I just sent you an email with some info on the primary LLMD here in Austin as well as an LLNP....
I see Dr T and have some info on the other TX docs. Feel free to send an email if you'd like info....
What about coinfections? I have yet to find anything about sexual transmission of cos. For those whose partners have Lyme, and believe it was sexually transmitted, does your partner also have the...
My LLMD and LLND have both shaken their fingers at me for trying too much too fast. I would get the energy high when I started ozone, so I thought doing a year's worth of neglected yard work in a...
This is an ongoing thread about Hansa Center: https://www.healingwell.com/community/default.aspx?f=30&m=3777592...
I've heard of the supply shortage (the infusion center I go to has been dealing with it). The first hiccup came when Houston was hit by hurricane Harvey which knocked out the distribution center....
I haven't had that exactly, but I do have weirdness during meetings. I'll be perfectly fine before the meeting, then during the meeting I'll get head pressure, increased heart rate and feel like I'm...
I did UVLrx. I was doing IV ozone at the same time. I had 7 IV ozone treatments prior to adding UVLrx. I noticed a huge difference when I started the ozone, but I did not really notice a difference...
When I had my CD 57 tested is was 66 which also had me a little down considering the range that I'm sure we're both looking at is 60-360. Dr. T said it was ok (he actually switched me to a wellness...
I've flown several times without any head pressure related problems. The only time I had an issue was when I flew on a day I was having a flare. My head pressure didn't increase, but I had the...
The ingredients on my bottle say: methylcobalamin (methyl-B12), RG3 (ginsenoside), nicotinamide riboside, MCT oil, DMSO, and a few things that I can't read without a magnifying glass. My LLMD had me...
I was having a a lot of allergy related congestion problems, so I was put on DHist and given a list of high histamine foods to avoid. Milk, buttermilk, sour cream and matured/aged/hard cheeses are on...
Shonna, as goshawk mentioned, there is the Texas Lyme Support Group on Facebook that has had quite a few discussions about the different LLMDs here in Texas. There is one in Marble Falls and two in...
I usually stay away from doctor bashing, but in my experience, neurologists are just about the most worthless of the medical professionals I encountered. I went to three. The first two did their...
I attributed that to bart. For me they would start at the base of my skull, shoot over my head and wind up somewhere in my face (typically sinuses, upper front teeth or lower right jaw)....
Lapis - my bart protocol isn't very impressive, but I've been lucky in that: 1) we figured out the problem in just under a year of minor symptoms and 8 months of major onset and 2) it's working (at...
I know an online yoga "class." It's $8 a month and you can pick which instructor's videos you want to watch (there are a lot). It's like yoga class only in your house and anytime you want. I don't...
I'm one of the ones who tested negative for borrelia through DNA Connexions; however, I tested positive for bartonella bacilliformis. I talked to Dr. B (bart specialist) about the odds of me having...
cindylynna - if you're on facebook, join the Texas Lyme Support Group. On November 3rd there was a discussion about LLMDs in Texas who take insurance and it sounds like we actually have one. She's in...
I have them in my legs, face and lower back. My LLND put me on a potassium stabilizer which is half magnesium/half potassium. My LLMD added Essentiale (phospholipids) to my IV ozone each week. I...
I did a five day (2x/day) course. My LLMD was taking a shot in the dark and thought maybe my recent sleep issues were parasite related. It hit my head (bart) like a bulldozer. My LLND said bart can...
I haven't tried it, but my naturopath recommends Restore Cyrotherapy for HBOT. There are four locations in and around Austin (one north, one south, one in Round Rock and one in Bee Caves). Dr. T has...
I have a non-Lyme friend who is a biological dentist. She, and her family, go to NYCIM for various ailments. She has run into Lyme patients while getting her treatments, and she makes the same claim:...
I personally know someone who has been in remission for almost 15 years, and she continues to take a maintenance dose of samento and banderol every day. To my knowledge, she has had no ill effects...
I know this isn't the take away, but I'm amazed the nurse acknowledged chronic Lyme. I'm not a success story, yet. I have made big improvements in the past 6 months of treating. Just this afternoon,...
Howdy, Dude! I am feeling pretty good these days (*knocking on every piece of wood in sight*). I have not yet reached full remission, but I have reached a place of mostly "normal" days. Almost...
I did UVLrx which is a little different from UVBI. I did it in conjunction with ozone. I started ozone first and it helped a lot, so by time I added in UVLrx, I couldn't really tell how much it was...
I ended up building my own NIR sauna in my spare bathroom. I used Dr. Wilson's sauna plan with 4 bulbs: http://drlwilson.com/SAUNAS/SAUNA%20PLANS.htm I got my bulbs from RubyLux. I did the Grade-B...
I haven't done a lot of research on this, but if you can't do IV ozone and the sauna gave you a rash, there's ozone insufflation. I know a non Lyme patient who has tried rectal insufflation and said...
Did you know her before she had Lyme? This may sound weird, but maybe you were there for her too much. I know a couple and one is dealing with health issues. Her partner is smothering her. She...
I have been getting IV ozone for a couple of months now. It's really been helping me. The big question will be what happens when I stop? If it weren't so expensive, I'd definitely keep going with it....
This isn't a one size fits all problem. I sit in an infusion room every week with a revolving door of 2-6 other Lyme patients. We all have different infection stories and vastly different symptoms...
I had lumbar and cervical spine and hip pain for months. Treatment has helped a lot with that. Twitching? ABSOLUTELY! Legs, shoulders and most often, face; lips, around my eyes, and cheeks all twitch...
If you enable your email, we can send you info on doctors in Texas. The one with the best reviews is in Denton. There are some in the Austin and Houston areas Also, a really good resource is the...
Thanks Pirouette! I think my doctor (and sometimes me) thinks I'm closer to remission than I actually am and he prescribed me 2mg to start. They (he and the pharmacist) wanted me to increase to 4mg...
I attempted LDN several weeks ago. Within 10 minutes of taking 2mg, my tinnitus went into overdrive. I woke up about a thousand times during the night (I usually sleep straight through). My head...
Have you asked the integrative dr what he/she thinks about the other doctor's protocol? You'll need the comprehensive approach whether you go with the integrative and they tell you everything to do...
This won't help your core issue, but I've found these meditation podcasts to be really helpful in quieting my mind. I just lay on the floor and listen and breathe....