Hey Lapis_29, have you checked your home for mold? I had some of the symptoms you're having when my Lyme journey started. I was living with mold....
Guess I'll just try it....
.25 isn't going to do anything. You need at least 1mg several times a day, if not more. Talk to your doctor!...
I read someone mention it on this forum, and on another forum too. But I can't find any information about it. Thanks....
Your protocol is almost identical to what Horowitz writes in his book. The problem is that it should only be during Month 1. Here let me show you from the book: MONTH ONE: Plaquenil 200 mg, one PO...
My saliva cortisol was extremely low on all 4 points. I took Cortef and didn't feel better, then I took prednisone and didn't feel better, I also took a Bovine Adrenal (Extract?) supplement and...
Your doctor is most likely referring to the same acronym (IgG) but a completely different test: Immunoglobulin G. Labcorp offers 1-4 for that test....
Yes I just noticed the other day I have an indentation at the back of my head. It made me wonder if it's always been there....
I found this the other day on how to do IV for Lyme yourself: http://free.info.ldb.s3.amazonaws.com/ebooks/InfusingForLymiesSmFormat.pdf Not sure if it's a good idea, but I thought you might just...
Hi Girlie! Yes definitely! I will let my doctor know! Thank you so much for your help! Also here's my update for today: Day 4 of Dapsone Still on 100mg, everything the same as yesterday. Herx still...
Yeah I agree with Girlie, I had good results with Igenex...
From: https://microbewiki.kenyon.edu/index.php/Bartonella_quintana B. quintana, as opposed to related species B. bacilliformis and B. clarrideiae that possess flagella, uses a twitching movement...
That doesn't sound like a herx to me,.. maybe an allergic reaction or something else? I found banderol to be very watered down. I doubt it caused all of that....
Have you been tested for Ehrlichiosis? I'm asking because band 45 is sometimes positive when people have Ehrlichiosis. It also matches some of your symptoms: Wikipedia: The most common symptoms...
If you're going to take Klonopin you should really consider getting advice from a psychiatrist. Klonopin is a CYP3A4 Substrate, Rifampin is a CYP3A4 inducer. In fact, Rifampin lowers the effect of a...
Hi Girlie, I actually didn't do any labwork the last months, so I'm hoping I have enough Folic acid left before I do my testing next week. Maybe I'll take a higher dose sooner. Hammer8 thank you so...
Thank you Girlie, I'll be careful! I am a bit concerned about my blood levels, I'm not good at math, but I figured if I take 8 x 300mCg that's 2400mCg (or 2.4 MG), which is still nowhere near the 30,...
My own update: Day 3 of Dapsone Moved up to 100mg of Dapsone since my body is tolerating the Dapsone very well. Still no side effects besides headache and a bit of weakness. Herx was suddenly gone...
It's confusing to me too. I bought the 5-MTHF version, but it's only 300 mCg (not even MG). My plan is to do testing in a week, and find what dosage works for me. Horowitz suggests at least 30mg, but...
Out of that list, I know andrographis actually kills the Lyme spirochetes....
Hey Girlie! Hope you're doing well today. Yes that's what I thought too, but when I did some research earlier I found out there's different manifestations of tetanus, like check this one out:...
Sean I'm just thinking out loud here, but you said you were bitten by a dog when the twitching started. Did you get tested for tetanus? Look at this: .......So healthcare personnel need to be aware...
1000Daisies thank you so much!!!!!! I will keep that in mind about Stevia, maybe if I try on some days, and then go without on other days, I can figure out if it works. Thank you again! Girlie thank...
Found it: skip to 36:20 https://www.youtube.com/watch?v=6kn-ieUEO7Y ...
Hey Rikky1, I'm taking Dapsone since yesterday, I have absolutely zero stomach issues. I think it might be the Daraprim you're taking. In a video from Dr. Horowitz he says Dapsone doesn't cause...
Thank you so much ChickenArise!...
Oh and Stevia! I took some Stevia. Not sure if it's proven to help, but I figured it won't hurt....
Thank you all so much! Quick update: After much delay, I finally took my first Dapsone dosage an hour ago (50mg). No Rifampin or Doxycycline yet, I think I'm going to add them in slowly if needed,...
I did the Buhner protocol for a couple months, it helped, but it went so slow, it can become discouraging. Now I'm back on antibiotics. Honestly, I feel like the cure to this disease is to throw as...
Hi all, So I'm starting my Dapsone journey tonight. I'm a little confused about what dosage Folic/Folate acid I should be taking. In Horowitz book it says: That seems like an awful lot of Folic Acid,...
This is what I do because I can't afford LLMD's either, you just have to find the right doctor and be completely honest about your financial situation. I brought Dr. Horowitz's book (How can I get...
What dosages are you taking?...
Hey good luck! I'm starting tomorrow too! I read that we need to take it with Folic Acid....
Hi, from what I've read we need to go up on our antidepressants, sometimes up to 3 times higher, while on Rifampin. But talk to your doctor first....
just this one: https://www.ncbi.nlm.nih.gov/pubmed/3616827 ...
That reminds me of those people who accidentally overdosed on Dapsone and got cured from Lyme. It makes me wonder if for Lyme maybe even the higher dosages of antibiotics aren't high enough. Although...
Haha thanks Dude, honestly you did all the work. In regards to the missing PDF, it's actually not available even for members. :(...
Thanks Dude! Found the PDFs: PDF Transcripts http://video.chroniclymediseasesummit2.com/transcripts/Amy_Derksen.pdf http://video.chroniclymediseasesummit2.com/transcripts/Christine_Schaffner.pdf...
I think this could possibly explain what's going on: The article is here if you want to read it : https://www.lymedisease.org/lyme-subverts-immune-system-ucd/ ...
Ok guys, I think I'm starting next week, just wanted to let you all know....
Check this one out too: http://biochemical-pathways.com/#/map/1 ...
Hmm what happens after Adrenaline? The arrows just stop....
It aren't high numbers but that doesn't mean you can't have it. My advice would be to see if you herx (get worse) from the medication at first, that can be sort of a confirmation that you do indeed...
Thank you for remembering me NicHostetler. I have picked it up from the pharmacy but have been feeling too bad to actually take it. I'm going to take it very soon though. Will keep everyone updated....
Hi everyone. I just wanted to thank everyone so much for their responses. I'm not feeling very well right now, so responding to everyone individually is very hard. Please know that I read every...
Hey this might interest you: https://www.healingwell.com/community/default.aspx?f=30&m=3620488 ...
Hi everyone, So I just wanted to give an update after my last post here. After many attempts of getting better with herbs and antibiotics, as detailed in my previous post a few weeks ago. And after...
Thank you so much Girlie, and yes PLEASE reconsider it, this last week was absolutely terrible, I wouldn't want that for anyone....
From: http://www.letsdrug.com/meds_interaction/101-5174-0/ ...
Hi Girlie! Thank you so much for your nice message! Yes I actually took it 5 hours apart from medication on both sides (5 hours before and 5 hours after) The problem is that I don't think Charcoal...