10LymeB, I see from your blog that you were still doing treatment in May of this year? How are you now? Are you free of lyme/symptom free?...
Don't go there. Cost is $40-$70k (w/o housing) and people still dont get better. Some even leave worse. Use search bar to look up envita....
Do not go to Envita. They are frauds. I remember reading something on here or on another lyme forum where people went and wasted their money (the cost for Envita when i called was $40K-$70K and you...
Girlie, I read some of your other posts and it seems like Jemsek's office is being super annoying, which is disappointing since I was thinking about going to see him/them but i keep hearing very...
PDXtransplant, what combo are you using?...
Girlie, How have you been doing? Did you go to a different doctor? Do you still have Bartonella?...
Is he any good/helpful?...
cppoly I dont understand. You clearly want to do Buhner so why did you go to an llmd who outright treats with antibiotics in the first place?? I didnt like Dr. S when i saw him but everyone online...
Thank you everyone for your kind words. I am feeling better now. I would like to touch on a few things. I tried Buhner and it didn't work and I personally dont like him. I even bought two of his...
I don't even know what to do anymore. I've been crying for the past 5 hours and finally decided to at least try to talk to someone about it. I wanted to call my older sister and tell her I wanted to...
The past 2 days I've been having muscle twitching, especially in my legs. It even woke me up this morning. I also woke up drenched in sweat. IDK if its because i have a cold or if it's a herx??...
jrpsf, Thanks for replying. Did it get rid of any symptoms?...
Has anyone done IV Peroxide? What was your experience? Did it get rid of many symptoms?...
I started to take Renelix drops (homeopathic drops for kidney function) again yesterday evening. I might've put too much in the water but it's hard to measure. Last night I started having pain on my...
I used Xylitol on and off for baking for the past 5 years. Recently in the past few months every time I use it I would eventually get an upset stomach after a day or 2. I was wondering if there are...
Does anyone know who the best doctors in the US are for Bartonella? Please reply or message me!! Or if you have seen a doctor that has gotten rid of Bartonella, also please message me!...
RedEyedArab, No the regime posted in your first post. When and how many times did you take each thing?...
RedEyedArab, Could you list how many times a day and how much you take for each treatment/supplement?...
Jinna, What are photons and nosodes? What antibiotics did you use that was most helpful?...
I was on rifampon for about 6 months. Girlie, did Rifampin work for you? What worked for you to get rid of your bartonella?...
tickbite666, You said Zithro just pairs well with others? Yes, that's what it seems like most people say online. It doesn't seem like Zithro itself is useful in getting rid of bartonella. It seems...
What was your experience with Zithromax/azithromycin for Bartonella? I have been on azithromycin and tinidazole for past 6 weeks for bartonella. Before that i was on Rifampin and Azithromycin for...
Jinna, are you done with Lyme and co-infection treatment (as in no more symptoms)??...
Generally for busting cysts antibiotics are used and for busting biofilms enzymes are used. So you can do both at same time. I feel like busting cysts is more impactful because thats where the very...
No, I went there for years complaining about symptoms and when I finally realized I probably had Lyme from online, I asked them to give me a Lyme test and the doctor refused because there are too...
Girlie, what are you treating with currently for Bartonella?...
I understand what you guys are saying but it is not another co-infection, it IS BARTONELLA and the symptoms match. I am not questioning whether it is Bartonella, I'm telling you it is. So moving on...
I added azithromycin to my tinidazole 2 times a day, but this was 4 weeks ago. I just ended my period yesterday and this cycle was ROGUH. Very heavy and had an increase in both period pains and...
1) Are sharp muscle pain and muscle twitching neurological symptoms? 2) If so, are they usually the last to go when treating bartonella? I suddenly have an uptick of muscle twitching and sharp muscle...
You'll have a harder time detoxing toxins out of your body compared to someone who doesn't have MTHFR mutations. Therefore herxes might be longer, more intense and you should probably up your detox...
Remember to ask him about his: *primary treatment methods, *how often do his patients return after they get well (it's a bad sign if he says a lot because that means he doesn't cure them/treat them...
To gabybee, For Lyme my doctor had me on a lot but the consistent one was varying amounts of Doxycycline. Was i on it every month for the past 4 years? No, but it was the most consistent. I think...
It's most likely caused by Bartonella. Treat that and it should go away. But as you get more aggressive in treatment and Bart dies off, you will get an increase in muscle twitching (mine lasted...
When I switched to herbals after antibiotics they eventually tore my stomach up way more than antibiotics. I was in so much pain I decided to see a Lyme literate gastroentologist who said he didn't...
I've been in treatment a long time but Tinidazole has really helped me with bartonella (even though it's usually used for Lyme). I have a hetero MTHFR mutation which my Dr. says takes me longer to...
I just started a new job where I have to wake up early and move around quite a bit. I'm afraid no matter how much I sleep I'm still gonna feel super tired during the day. Regular coffee (like from...
I see Dr. S in Howell, NJ....
tcoach1, My doctor had prescribed me Rifampin only for a few months and then added zithromax. Do you live in NJ by any chance? Also, I have a lot of muscle twitching and some boring muscle pain....
needhelp4, Have you tried antibiotics?...
I usually wait 30minutes to an hour. Anything longer and I have a bad herx/flare....
Only 1 out of 7 of those people got completely better......
gabybee, Be careful with switching to herbals thinking it will help your gut. For me it did the opposite, and made it worse! I was on antibiotics for 3 years, and took a year break to go on Buhner...
I'm so surprised at the amount of comments! But if we could get back on track, so has anyone gotten rid of it? Someone replied that Chapelle and rwngmom got rid of bartonella. I've tried contacting...
Have you gotten rid of Bartonella using antibiotics? What did you use? If not you personally but you've seen some online, can you please post links of success treating Bartonella with antibiotics?...
My friend wants to take me out tomorrow for St. Patricks day in NY. But my doctor just put me on tinidazole/tindamax Monday and has started me on 250mg once a day this week then ramp up slowly to...
Usually, I've heard they produce herxes and may relive symptoms but never got a person 100% well....
Simile1, What did you and your family use to get better? Details please....
Traveler, it's okay. I'm a little on edge. Yes, bipolar sounds more correct but my doctor looked so confused. And he's been an llmd for years so you'd think he'd know. bluelyme, does inadequate liver...
I don't know if you read my post completely, but it doesn't seem like OCD. I'm not compulsed to do anything. Does OCD cause weird euphoric feelings?...
I've been on Rifampin and azithromycin since mid December but have had Bart for a long time. I've been noticing that some days feel like mood swings which can only be described as bipolar disorder...