I did 10 weeks on PZA starting last May or so. For me, it actually didn't make a radical difference, and was a really hard road. I was hopeful mainly because I related so heavily to a patient's...
The Malarone should hopefully mean you'll start hitting the babesia -- to me most associated with depersonalization. Honestly, in your treatment list, it seems you haven't gotten to targeted babesia...
I had a "macular plaque" rash after my tick bite and my (duck=idiot) doc was completely dismissive about it. Much later, pretty recently actually, I saw an *exact* replica of my rash on the CDC's...
I get this, but taking too many potassium supps is I'm pretty sure the biggest contributor to why I got gastric ulcers, also due to gastroparesis from Lyme that was building up acid in my stomach...
Mimosa pudica is one of the only herbs that has given me a very clear herx for babesia. I'm on it now. I just mix it in water. . ....
I started having seizures after getting bartonella. Under control now on anti-seizure meds and after a long time bart treatment, but I do feel my brain is also damaged. The brain is comprised mostly...
LDI (I did it a couple of yrs ago) seemed to push me into the scariest herx I've ever had, honestly. My blood pressure suddenly went higher than it's ever been (typically low) and I was having...
I was really intrigued by this article too, but annoyed they didn't say *which* antibiotic (or combo) treats this, or what probiotics might specifically help. I read that E. gallinarum is resistant...
Baro pressure changes REALLY affect me, and cause huge amounts of pain, brain swelling feeling, heart racing, a lot more. I got a weather station (the kind that has an outdoor sensor and beams info...
I read you can have a "rebound" effect if you're taking antihistemines regularly to control mast cells - I'm not sure if that's the reason you're taking - where you're "controlling" the mast cell...
What about Dr. B. in NJ (who deals a lot with psych issues resulting from Lyme)? If you haven't at least listened to his lectures on YouTube, I recommend it. There are, in short, multiple causes of...
Dextromethorphan actually blunts excitotoxicity in the brain, so it helps somewhat with hypersensitivity symptoms at brain level. I didn't take it for sleep per se, but have taken it for *that,*...
Lapis, I did order some sterile (collodial) silver dressings, but am concerned about using anything that isn't specifically sterile. Do you know of a topical collodial silver that I could use under...
Suddenly I have this puffy, super itchy, sort of prickly rash under my PICC dressing that came out of nowhere. Nothing has changed in the routine in terms of the actual dressing I use, dressing...
The testing process for MCAD is apparently more specific than most docs realize, and initial tests often appear negative. It might be useful to try some of the meds for it anyway, as they're all...
BabsBunny, for what it's worth, this is the listing I found of a lot of research articles on cardiac complications of flu, including a lot with bradycardia. When I typed low body temp and bradycardia...
Someone I'm close to had a very *mild* case of the flu a couple of weeks ago - really seemed more like a cold - but since then, has really *low* body temp (like 96.2-ish) and really *low* heartrate...
Hi all, I'm on a lot of other meds and herbs. Rifampin which I tolerate *great,* Ceftriaxone (IV), and herbs including now: cat's claw, houttuynia, and mimosa pudica (for babs). I seem to tolerate...
What are specific protocols for pulsing Doxy? I took Tetracycline instead for a long time b/c the only time I'd ever taken Doxy for a month, I felt like I was going to die the whole time, it just...
Bartonella is notorious for impacting stomach, esp. W/ gadolinium, my doctor recommended taking cilantro tincture daily for several weeks or longer to get any residue out of my system: seemed to...
I feel toxed and "poisoned" a lot of the time. My LLMD actually said to me that some patients do feel like they're herxing continually. I do think in my case this sensation has to do with...
Oddly, I only started craving red wine *after* getting Lyme/bart/babs. I actually think (red wine specifically) is a better source of resveratrol to kill bartonella than other things I've tried (like...
Have you ever tested for Brucellosis? I know it can cause cyclical symptoms that mimic flu. You might also want to test for HHV-6, EBV, and other herpesviruses. You could try pulsing lomatium...
Does anyone know why babs would cause drops in temp like that? I just posted separately about weird chills I'm now thinking are a babs herx from the replies. My temp was also low but not that low....
I managed to stay on Cipro for about 7 weeks and it was the very first thing to really hit my bart when it was most severe. It really helped me turn a corner and did far more in those 7 weeks than...
Hi Girlie, yes! That's a lot of what it feels like, esp. the weird feeling in my spine, that's really interesting. I too am very intolerant of cold now, to an extreme degree (I'm actually okay with...
Yes, it's definitely possible. You can buy the "medical grade" coffee (the brand is S. A. Wilson I think probably, or that's one that's commonly used) which is not roasted. I personally prefer just...
I restarted an herb that actually in the past gave me the strongest babesia herx of any herb I've taken -- mimosa pudica. I have babesia duncani, and many of the herbs for babs don't seem to touch it...
Babesia is highly association with depersonalization and derealization. But I agree bart can also cause really strange brain symptoms....
It definitely sounds like Lyme. But also, I would suggest you have her take Lomatium tincture for any residual virus, and take it for a prolonged period of time (adding fish oil as an additional...
The best thing I have gotten in recent years was a pressure cooker that cost about 90 dollars (like an Instant Pot, but cheaper version) b/c it's so easy to throw in a bunch of things without a...
I began having pins and needles from Flagyl at one point and because I didn't stop it immediately, it blossomed into *excruciating* peripheral neuropathy that I was only able to resolve over a slow,...
Again, trust me, I'm in no way saying anyone should ever trust the CDC -- just that this could be persuasive to some docs who don't know what they're doing and aid in diagnosis. This page shows all...
As useless as CDC is, I personally had what's known as a "plaque" rash, not a bullseye, and if you look on CDC's rash pictures website, you will find there are a *variety* of rashes that count as...
The "Azheimer's dose" which is something like twice what is typically recommended on the bottle, is pretty pricey, that's why I personally stopped taking it as I found that dose was needed for any...
I have these symptoms really bad now too, and among taking the other suggestions here (and just ordered some things) I'm about to add liposomal turmeric too, b/c it does seem liposomal varieties of...
Solaris, it's weird your LLMD would say duncani is "milder" as it's actually the exact opposite, people call it "babesia on steroids." Sometimes microti protocols don't work as well for babesia...
Can anyone tell me the best time to start stinging (for the first time) for someone in a cold climate? Also, nobody seems to know the answer to this for sure, but since I'm on very low doses of...
I had an episode of optic neuritis in one eye from neuro Lyme: what reversed it was mainly Bicillin injections. This doesn't sound exactly the same though, and could be another very serious condition...
Usually with the cedar oil here we try and apply it after it rains, and then once a week, but you're right rain can wash it away. Between that and the mulch it really can help though, and there is...
Cedar oil spray. And spreading a lot of cedar mulch each year (then refreshing it with the cedar oil). Ticks hate it. Also, keeping the grass short. I personally can't and wouldn't use chems. Also...
Traveler, thanks so much for that adrenal testing info. (I got bumped off of here for a few days and it took me this long to get back : ). W/ the adrenal issues, I *really* have that "lack of...
Traveler I almost had a saliva test for adrenals but then heard the one I was about to do (via Quest) wasn't that reliable (?) -- can you recommend a specific test for that (preferably Quest since...
It really does sound like a bartonella herx (worsening of the symptoms you're treating, which is good but not always pleasant). You could also try Alka Seltzer Gold in water with lemon (can help w/ a...
Notime really interesting you mentioned about the salt b/c whenever I have this, I crave salt like there's no tomorrow, and eating a lot of it *does* seem to help. I hadn't been able to explain why...
Armoise = artemesia, I just looked. Samento = cat's claw. Mary, it sounds as if you are being treated then (herbally) for both Lyme and babesia. Have you had symptoms that might be specific to...
Not exactly the same thing, and I've only done them a few times, but I actually think *phosphatidylcholine* IVs are helpful -- they have been generally used to remove neurotoxins from the body....
Thank you for these ideas, as I have several of these at home now so will try tonight! (probably knotweed, maybe burbur if I can find, and fish oil at least. . . )....
I've got that brain swelling feeling, I think many of you know what I'm talking about but . . . because I've got that brain swelling feeling, I can't articulate it that well! Suggestions on what...
It can be dangerous to stop and start Rifampin drugs -- is that what someone is suggesting? There can be a hypersensitivity syndrome thats possible with any restart. If one needs to take a Rifampin...