Garion, do you remember how much the test was to have done?...
it says it detects late stage, so I'm assuming that would mean chronic....
Am I missing something or does this new Lyme test sound beyond amazing? Sucks it's only in New York, but guessing it will be approved everywhere soon? No idea on the cost either...
how much was this to have done? I see it's been a week since you posted this update, any improvements since?...
Is the RG3 spray the same as the BEG spray? Because I've tried 30 days of BEG and I don't think it did much for me. I also have terrible brain fog as well, and will try anything to get rid of it......
Girlie- When you say your brain started working again, do you mean brain fog cleared up? If so which of the CW oil did you use? I see there are 3 different strengths. thanks Anyone else have brain...
Also K07 I saw on another post that you had the neuroquant MRI done. How much did that end up costing and did it shed any light on your issues?...
oh, my VIP is <50. Yeah, I'm guessing basically undetectable is not good...I just got off the phone with my LLMD and am stopping Lyme treatment. I've done it for 13 months without any result, and now...
the test name is MSH alpha. Any idea if that's any different than just MSH? That test came back at .5 Also noticed my MMP-9 is sorta high as well, it's at 383. Not sure if it's better to be high or...
strange. Mine is labcorp as well and it says <5.0...
yes I had VIP taken and this is another one that gives me a reference range <75 and mine just comes back <50 so for whatever reason it doesn't give me an exact number, so I could be less than...
I have not done the ERMI test. Since getting sick I've lived in two different houses and both are fairly new builds, with my current house being built just 3 years ago. I am always much worse at work...
I'm at the end of completing my abx pulsing protocol with very little improvement, so I'm revisiting mold again. I had all the shoemaker tests done last june and c4a came back around 10,000 along...
look for one that deals with chronic illness. I went to one for awhile and she knew nothing about lyme. She researched it some and she was really a big help....
this issue sounds just like me. I believe my disassociation, depression, etc all comes from the braing fog I experience. I've had the fogginess for over 3 years, and it's by far my worst symptom. The...
No I'm not seeing Dr J. There is an LLMD that went to learn Dr J protocol and she follows it to a T. One of the NP there has really started focusing on mold so I'm going to revisit that....
I'm about finished with my Dr J protocol. I'm about at the 13 month mark and while I feel a little better it's not much. My big issue is brain fog, if I could get rid of that I could handle any other...
Joe Rogan Experience had an hour long podcast with the Dr from Medistem Panama with special guest Mel Gibson(his father went there and recovered from health issues). They use adult stem cells, and...
thanks for your reply. umm I don't think I've tried liposomal glutathione, I'll look into that. as for binders I tried cholestyramine for a short time. I thnk only for a week though, so maybe I need...
hey, I need some opinions/help on my tests... I had all the shoemaker tests done this last may. The two that came back really high were c4a(9,799) and TGFB-1(10,360), everything else shoemaker...
Sorry to barge into the convo here, but my wife and I are looking to start a family in the next year or so. I am currently pulsing on abx and she has no signs what so ever of having Lyme. I'm...
yeah I thought it was crazy they recommended 5 grams. I'll start with 1/4 tsp and work up to a 1/2. Thanks. Do you usually just drink it straight or put it in water or juice?...
I use purified water 95% of the day but I guess usually when I take my pills I'm just using my hands over the bathroom sink. I really don't think the water would be the issue as it's straight...
i just bought some from amazon in liquid form. A dose of it is 1 tsp=5 grams. Thought about just doing a 1/2 of tsp to last longer, as 5 grams seems like a lot. Thoughts?...
About 50% of the time after taking my abx I develop a runny nose and/or sneezing. Has anyone else dealt with this and what could that mean? It also seems to happen sometimes after I take my xylitol...
There is a group on FB called "lyme success stories"...
You know how it goes with Lyme, something changes with your body you need to know if it has any connection to the illness. So on Monday I got this huge canker sore inside my bottom lip. It hurts to...
I hope someone can find this post useful. For anyone in the midwest and has a Fresh Tyme close to them, Udis hot dog and hamburger buns are on sale for $2.79 each until 7/20. Also i'm not sure if...
Has anyone tried this CBD oil before? https://kbpureessentials.com/product/500mg-cbd-hemp-oil-1-fl-oz/ A neighbor friend of mines boss knows someone that has been taking this CBD oil and they say...
great to hear! The only thing that kind of sucks is I buy through the amazon app 90% of the time. There isn't really easy way to make sure that I go through amazon smiles to get that donation over to...
So I think I'm late to the party, but I kind of just found out about Amazon Smiles. If you don't know what it is Amazon will donate .5% of every purchase you make to the charity of your choice by...
I take CoQ10 on a daily basis. I'm on malarone 2 out of 4 weeks during my treatments. My LLMD has never mentioned CoQ10 not to be taken during the two weeks on malorone. What's the reasoning not to...
brain fog and everything that comes with it, it's be far my worst symptom fatigue joint pain...
That makes sense, thanks for all the info! I feel like I probably detox better than most, but I see what you are saying with how am I feeling when I'm not detoxing. Looking at when I'm on and off...
thanks for both of your responses. Traveler, how exactly do I know if my body is detoxing well or not? During treatment weeks I do a lot of detoxing right after abx and throughout the day, and it...
How important is it to detox on my off weeks of abx? Right now I'm 2 weeks on and 2 weeks off, and on my off weeks I tend to not do as much detoxing. Thoughts on this?...
They are all biotics research brand: ultra vir-x, ADP, and biotics intenzyme....
I got my most recent EBV results back: EBV IGM 1.5, EBV IGG 1.7, EBNA >8.0 past results from 4/20/16 EBV IGM 1.0, EBV IGG 2.0, EBNA >8.0 If i remember correclty EBV IGM is a current infection. Any...
Indeed. Curious about the results of the ticks that fed off of the Lyme patient. They actually mentioned persisters also....
They say that lyme can be treated with 4-6 weeks of doxy whether you are sick for a month or 2 years. I don't see how that even makes sense? The longer something goes untreated the harder it is to...
Yep, 92% is really good I think. Do you have mold problems? It be interesting to see how someone did that has confirmed mold issues....
I don't actuallly see Dr J. He trained an LLMD to mirror is protocol to the T. I have mentioned it to her and that's why we are looking at mold. I think for whatever reason I just still dont want to...
Thank you all for your response. Traveler-yeah, i keep seeing a false positive is very unlikely and on my igenex test i was negative CDC and positive Western Blot. I know most don't test positive CDC...
Has anyone tried this Test? https://www.vcstest.com/test/ My LLMD gave me this website to help check of mold being a possibility. She said either way we can try a week or two of cholestyramine. I...
Quick rundown of my issues to understand things. I became ill in October of 2014 after a weekend of being ill. My worst symptoms are: Brain fog(as you probably all know causes all sorts of issues),...
i would advise everyone to avoid going and looking at this fb group. I did, and it make me very angry within 15 seconds. I quickly closed out of it as i don't need that to start my saturday haha....
As far as I know she is not infected. It's something I need to look into further, but like I said we are probably a year or so out from that. My hope is I will be near recovered at that point. I've...
What's the consensus on only the Male having Lyme? My fiancée and I want to try having kids in the next year, and she is symptom free. I'm treating with antibiotics right now...
And actually it may have been labcorps that did mine as well. They just had some one at the dr office. It was either mid America or labcorps....
Yeah I just got the numbers and checked the ranges that shoemaker gives. Cholestyramine is a prescription correct? So id just request from the dr the pure form of it? I've been taking activated...