Hey everyone. Haven't been here in a LONG time, because quite frankly I'm done with this 8-year chapter in my life and while Lyme will always be a part of my story, it's a much much bigger story -...
Just finished my first year in remission (as diagnosed by Autonomic Response Testing and Chinese Medicine). I'm told Lyme is purged from my body; this year has been about purging it from my mind and...
I started by seeing my doc twice a week for acupuncture, and as I stabilized went to once a week. Now I'm once every 2-3 weeks, mostly for acupuncture. If the prescribing doc is too expensive/far,...
Yes, same doctor, and still on pearls - a combo of about 5 different ones, and others that change with my condition, for example when I have my period, or when heartburn or muscle pain flares up....
It's hard to say because I don't look at it in terms of pathogens, Lyme, or even necessarily germ theory. Terrain Theory makes a lot more sense to me. My body ultimately shut down in 2016, after a...
@ Garzie - yes all of that. It's gut-wrenching dark-night-of-the-soul HARD. But Lyme already threw me into the bottom, so why not go all out and dig out ALL the demons down there? It's been a...
So far I've been doing the mental work by myself with books and Instagram. It's never recommended, but I had to start where I was at - zero trust of anyone to not judge and traumatize me further,...
Hi, inhale/exhaleee, welcome! I'm really glad this is of help to you! I didn't mean for this to be my own personal thread, but it seems all-in Chinese Medicine is still a hidden gem. I am 100%...
My Lyme coincided with antidepressant withdrawal after 20 years on them - one LLMD told me he's heard of it before. Was an absolute MESS to get diagnosed with that kind of tangled medical issues, but...
Correct. Acupuncture can't kill anything but can release heat and damp conditions that foster bacterial growth, and stimulate the immune system to fight better. That's why herbs - very finely tuned...
I don't remember the exact progression, but I do know it was still a roller coaster - I indeed felt much better at first, then got hit with scary symptoms, and stress (moving twice in 2 years) really...
D-mannose gave me horrible illness and diarrhea. Apparently I'm one of "those" who has the opposite reaction to everything. Just had a UTI, horrible pain, peeing blood clots. Was Rx'd Bactrim, to...
The immune system is INSIDE. Which means you have to monitor EVERYTHING you put INSIDE to keep your immune system healthy: FOOD goes inside and affects your immune system. COSMETICS and TOILETRIES go...
There are two ways to view the same idea: as blaming the victim for their disease/condition – which is indeed offensive; or empowering a victim to take control of a situation that was forced upon...
Now I need to post again just so the number "666" doesn't appear under my name 😂. That's not a good "pattern" for anyone to associate with me!...
YES! YES YES YES!!! I swear I have been trying to find the words for this and having the same conversation for the last year. The "pattern" concept just articulated for me in the last week, and...
I went gluten-free, dairy-free, soy-free, corn-free, sugar-free, basically all processed food-free and focused on a real-food diet of vegetables and pastured meat. Nutrition has been a MAJOR factor...
First, look into C-PTSD, complex PTSD. It's what you said, not "Post" but ongoing. I've been working on trauma and mental health the last year and it's really putting a lot in perspective and helping...
@Charlie55 I use Chinese Medicine. It is a completely different system of health, that does not reduce everything to pathogens and antibiotics. That western model made me very very ill. A holistic...
https://www.beautyafterbruises.org/what-is-cptsd# This is also clarifying everything. I swear I have said every single thing in this entire article to myself, in my journal, and to my husband,...
@sareli, thank you, I agree wholeheartedly. I'm aware mind-body/psychosomatic exploration can feel very offensive. I think I mentioned it before but there's an interview with Chris Kresser and Annie...
@CalmLittleBuddha: Of course treating Lyme-MSIDS was necessary to stop the [latest of many, straw that broke the camel's back] trauma causing the dissociation (I use Chinese Medicine, and C-PTSD...
Complex PTSD dissociation fits me to a T. The de-realization is my last crippling symptom. Doctor says my infections are gone. Since I'm too traumatized by doctors to find and pay for a LL therapist,...
Milestone update: I am going off black-label Pearls, the ones which aggressively target Lyme and Co-infections. (It would be the equivalent of going off antibiotics and focusing on support, renewal,...
I know someone starting SOT soon at Genesis in GA. I'll try to remember to update but I'm not much on the forum anymore. From what I understand, you need a separate treatment for each co-infection,...
OO also hits Candida and pretty much everything...
While you're waiting to get into a doctor, you can start treating your own (her own) immune system with herbs - Stephen Buhner recommends astragalus, 3000 mg for 30 days. Andrographis, I believe, is...
Better Health Guy finally interviewed Heiner Fruehauf! If you haven't browsed his podcasts, I highly recommend it....
I recommend earthing.com, the original earthing products. Your order will come with the book, DVD of the new movie/documentary, and a magazine that's great for sharing with others. Available direct...
I've been using the mat since the beginning of the year. It gave me a huge boost of energy. So much so, I can't sleep on it, only using it during the day. For that reason I recommend the mat, unless...
I'm having the same issue - I get my PMS symptoms AFTER my period, for about 2 cycles now. Before that I was getting PMS like 2 weeks before and it was lasting until my period. I've been quite...
The National Capitol Lyme Association (NatCapLyme) runs various support groups in the DC area, which meet different days and times. Check our their website for more info www.natcaplyme.org...
I'm considering starting if my current plans don't have enough effect. I use a similar program called the 21-day Brain Detox by Caroline Leaf and it has helped with my sleep, depression, and anxiety...
For what it's worth, I do Chinese medicine for Lyme, which includes a lot of herbs common with Buhner. When I get sick, I stay on my protocol - those herbs are supportive to the immune system and...
Could be - I did just come out of a babesia flare up. It's weird, parts of me are warm and parts are cold in random areas all over my body....
Having cold problems now and I do get this problem in episodes every few months. I'll be sweating in a sauna at 140° and my feet are still ice cubes. Just part of the cycle....
Yes - we treat based on the principles of Gu Syndrome. I believe I have mentioned it earlier in this thread: Classical Chinese Medicine is different from Traditional Chinese Medicine. For Lyme you...
Chinese medicine sees the body as a whole and doesn't really divide treatment into infections. It does everything at once....
I don't know much about MTHFR because I have recovered steadily without checking - I have no reason to suspect I have detox issues. But I do have friends with it telling me how much it affects their...
The plan is in Bill Rawl's book "Unlocking Lyme." I think when I bought it and signed up for the email list, I was sent a more comprehensive PDF of the diet plan. I can't seem to find it online....
Obviously not yet because I still have some food sensitivity, but I'm tolerating much more now. I don't even use the SIGHI list anymore. I just eat fresh and immediately freeze leftovers. I have,...
I'm sorry, I posted a reply but it never showed up. Yes, B-vitamins always make your urine yellow. You don't have to stop unless they make you feel very bad or if you do some research and suspect you...
Do you have an MTHFR mutation? It's going to mess with your detox ability, and make the B vitamins useless (or even harmful) if your body isn't using them. If so, treating it and detoxing via sweat...
Everything takes time :-) I can't ignore the mental work I have to do as well - I keep trying to do deep-breathing and yoga exercise and such, but find that the trauma of air hunger is actually...
I started with Designs for Health, as recommended by my naturopath. I now use the Nutricost NAC because there is no added fillers, and I make my own capsules. I take about 1000-1200mg... but that...
The SIGHI guidelines have been a helpful part of my MCAS journey. I used this list and it did help my MCAS, however you need to read the whole thing and follow the rules of cooking, fresh food, and...
Yep, still here! Chinese medicine continues to work wonders for me! It is a slow process! It is allowing the body to heal itself, which does take time. Some symptoms can immediately be relieved with...
I've had exactly this.. trouble falling asleep with heart palps and vibrations, jittery feelings, and waking up with heart palps and anxiety. I'm totally fine once I get up and even having great days...
Hello, everyone, I suffered Major Depressive Disorder for most of my life, and I've been where you are. I am aware that my words will not be encouraging or accepted by everyone, so I tread gently....
The safest would be to do it with a trained doctor to help you - many naturopaths, functional medicine doctors, Ayurveda, or Chinese medicine/acupuncture practitioners are trained to get people off...