My daughter seems to be in a relapse (she has Lyme Bartonella and Babesia). She is having really bad knee and leg pain to the point where she is back on crutches. She was diagnosed 2015 by Dr. Jones...
I need to find a doctor for my 14 year old daughter. She was seeing Dr. J from CT but he has since passed away. She was doing ok but she seems to be flaring. She always had trouble with her right...
she was diagnosed with blood tests years ago with Lyme, Bartonella and Babesia. Dr J would check her levels every visit (every few months) but she hasn't had blood work in awhile so I thought we...
My daughter had been in the care of the wonderful Dr. J from CT but he has since retired. I had her ped doctor run general blood tests just to get an idea. She had been diagnosed with Lyme, Bart and...
She is not on any antibiotics right now. Tj's is for the suggestions....
Hi, my 14 year old daughter has been dealing with Lyme and bartonella for over 6 years. We were seeing Dr J in CT but he is retired now. We are searching for new doc. She told me Saturday her vision...
thank you. I guess I am most nervous about dosing. I am assuming most books have doses for adults but she is only 13. Does any one know if there is a resource on a protocol for kids her age or around...
She has only really been on antibiotics. Dr J was not into any alternative options. She does do epsom salt baths. and she takes Vitamin B12 and Vitamin D3 She is a bit picky with what she eats etc so...
I am interested in resources to help my 13 year old daughter. She has chronic Lyme, Babesia Duncani and Bartonella. She got sick around 3 years old but was not diagnosed till she was about 8. She had...
Yes and retesting is the plan. And also a test for Bartonella...
Yes I know my daughter has Lyme and Bartonella. I was thinking that but was asking about Lyme because that is the test they ran...
My daughter actually is a patient of Dr. jones. But he recently was ill and moved over 3 hours away and I don't think he is taking new patients but thank you...
it is for my son who is 12. He had a sinus infection, was treated with antibiotics then started complaining about muscle pain, he know has bottom of the feet, pain, headache, fatigue, He had only a...
on his Western blot igm they tested 41 23 39 all absent igg 93 66 58 45 41 39 30 28 23 18 all absent I guess my main question is: should I pursue further testing including co infections. in other...
He did have the Western Blot but no bands showed up at all. They were all absent So is that negative? I was thinking some other infection may have triggered the positive Lyme. Maybe I should have him...
The Lyme igg was positive but no bands were detected. So it's considered negative by the CDC. But I was wondering if it was a false positive for Lyme but some other infection caused the false positive...
So the positive titer is significant? I saw you can get a cross reaction from. Other infections? My older daughter has Lyme Bartonella and babesia so when he complained of foot pain that is what I...
Hi, My son who is 12 has been having pain in the bottom of his feet, headaches, muscle aches (which have gotten better) and insomnia.This all started after a sinus infection (though he had been...
My DD has been having a bad headache since last Tuesday. Nothing seems to help. This is the first time she has had this type of headache. She recently finished treatment for chronic Lyme,...
Never tested for Lyme. I never had any reason to suspect anything. His younger sister is the one that had all the background of being sick and never knowing what she had. He has always been very...
I just checked him again and it looks the same. Its also flat. Does not feel rough or anything. Not sure if the Bart rash is supposed to feel like anything. Its the holiday so course doctor's is...
Thank you. I hope this is it. If I didn't have a daughter with Bartonella and lyme I would have never even considered Bartonella. I am going to check in with the doctor anyway. Just to be sure but I...
http://s50.photobucket.com/user/Eddiemeg/media/eddie%20back_zps91gecvr1.jpg.html?filters[user]=147346662&filters[recent]=1&sort=1&o=0[img] think this is it. I really think it might just be stretch...
Marks are like a purple. And they look deep like. Really do look like stretch marks. almost look like scars. But he has had no injury that would cause anything like that. Does anyone know if I can...
I have a daughter who was treated for Lyme, Bartonella and babesia. She was treated for a year and is doing ok so far. She never had the Bart rash. This is about my 13 year old son. My husband and I...
The month prior to stopping the antibiotics she never really complained about leg pain but did occasionally complain about being tired. I think while being treated she did complain on a couple of...
I have not dealt with any sort of relapse before as this is the first time since she was treated for Lyme. Does this strike you as a possible relapse. It is so hard for me to judge since I was told...
I think he is still taking new patients but I know he was really sick awhile back with the flu and his office was closed for awhile. He has a go fund me page as he is trying to update his office...
Its 11pm at night all my kids (I have 7) and husband are sleeping and I have had a glass or two of wine so hope this does not sound crazy. I am worried about my daughter. She went undiagnosed with...
She was on Mepron, Septra and Azythromicin. She was on all 3 from November 206 to May 2018. Her main symptoms were joint pain and leg weakness and she had pain on the bottom of her feet. She was...
My daughter did really well on the antibiotics. She was on 3 (she had Lyme, b.duncani and bartonella). Her symptoms abated almost right away (she mostly had joint and feet pain. She was unable to...
My head is saying to trust but my heart is fearful. We have been dealing with this since she was 3 and now she is 10. Every time she got better before the Lyme treatment she would relapse again. But...
She started treatment 2016 and her symptoms resolved in the first few months. Dr j kept her on the medicine since she was still testing positive. December 2017 was her last blood tests. He did say...
My 10 year old daughter has been seeing Dr. J (in CT the expert in child lyme) since 2016. She was diagnosed with Lyme, Bartonella Henselae and B. duncani. She took 3 antibiotics for over a year and...
thank you. Can you just take a quick look at her other tests. She gets blood work every 3 to 4 months with her Lyme doctor (Dr. J in CT). The blood work I posted was from December 2017 July 2017 Free...
thyroglobulin antibodies - have history and current high levels; might be start of hashimoto, but its not very high at all, keep an eye on it. Dairy free and glutan free are sugested in hashimoto,...
Thank you every one. Sometimes I feel I am overreacting and overanxious with her health since she has a history of illness and we only figured out it was Lyme and co infections in late 2016. I tend...
I should have stated that it is the thyroglobulin antibodies that I am most concerned about. I was wondering if any one knew if her number (6) is high or just above the range and if I should start...
My DD age 10 is being treated for chronic Lyme and two co infections. I have some concerns about her thyroid results from December 2017 and was looking for opinions from others with experience. I...
Thank you. That is what I thought. Just thought I would ask here because I know this forum is so knowledgeable. And yes it is the "older" Dr. J. He is more wonderful than I was expecting. My daughter...
My daughter has been treated for Lyme, Bartonella and Babesiosis. It has been about a year and she is under the care of Dr. J in CT. She is still on antibiotics. Her latest blood results have two...
Dr. J was wonderful. He knew her whole history before the appointment and was able to site examples from her history back to me. The appointment took 2 hours and I am still processing it all I think....
That is who she is going to see if I think that is who you are referring too. We are going to CT tomorow...
Ever since she got sick when she was 3. The doctor's said it was some kind of throat infection but not step at the time she gets back reactions to viruses. That time she got what they called a viral...
I am not hoping its something worse I guess I just want the doctor to tell me nothing is wrong. She is now walking again and she seems fine. But I know symptoms come and go. Also I think my husband...
But, if you're hoping he says she's not infected...she still has symptoms...so what else could it be...what would you hope for? For me - it was less frightening than MS or ALS...or even an...
Has anybody gone to a LLMD and been told they don't have Lyme. I may be in denial but part of me is hoping he is going to say she is not infected. Though I would think if he requires her medical...
Thank you...
I got my daughter an appointment with a LLMD for this Wed The doctor is supposed to be an expert and I know I cant say who it is but from what I read he is excellent. Main concern is a reactive on...
Thank you. I think I am just overanalyzing everything right now and doubting everything. I just want her to get better. But I appreciate this forum so much. Hopefully we can get her that appointment...