Sounds like a good plan!...
It’s been a few years but DS would say JC saved him. He has been in remission for a few years. It took several years of treatment but it worked. I just spoke with them about DH who may need their...
Thanks for the link Girlie! I've been meaning to watch all the Dr. J videos. I'm so glad he and his staff are doing these....
Thanks everyone for the replies! Girlie - first YAY!!!!! I remember when you first started going to Dr. J and things were so tough. This is fantastic news. As far as your lingering symptoms - DS went...
Gosh, among other Lyme symptoms, my DH has slurred speech/speech issues after having a soft voice for a year now - Girlie if you see this can you send me the Bulbar info! Now I'm really getting...
DS, O- blood type, recovered from Lyme: had it last March and in early Jan 2021. First time was insanely sick but not hospitalized - symptoms similar to Lyme but only lasted 1 week, not years. Jan...
DS did a varied schedule. At first it was multiple weeks on abx etc and 1 week off. Over time and after cycling through various combinations, he ended with 5-6 weeks off and 1-2 weeks on from what I...
Hi everyone, I'm back on this board - now looking for herbal help for DH who had Lyme twice and was treated both times with one month of abx, had Covid last spring (likely-not confirmed as was in...
Awesome news, may you have years of good health ahead. It is inspiring to hear success stories!...
It's interesting to hear how different everyone's protocol is. DS, a teen, hasn't used a lot of the medications mentioned in this thread. Girlie, they will go back and treat issues that crop up, so...
DS took Rifampin and mino at same time for bart....
DS had his first and only marks appear when he first started treatment for bart with antibiotics so it was treatment that brought them out....
Glad you found a doctor willing to figure it out! DS had POTs like symptoms pre-diagnosis and during the early stages of treatment. I think many do because his LLMD practice always measure BP at each...
Hi there - it's been awhile. This sounds familiar from our own story. I say Mycoplasma and it's easy to test by bloodwork. DS is postive for it once again this fall but is asymptomatic. We use mino...
I'm sorry you're still struggling. These infections take years to recover from which makes schooling difficult as you know. I would think about discussing the status of your scholarship and if you...
You're very welcome!...
Air hunger is usually babesia (chest tightness, elephant on chest, suffocating feeling) and shortness of breath is mycoplasma according to DS's LLMD/NPs and to our son's experiences with both...
Evanston- that is fantastic news! It's great you returned to update because people are always looking for info on the clinic and any successes. I'm so glad to hear that your daughter is back 100% and...
Welcome and that's nice of you to help her out. I'm mom to a teen with Lyme and while I'm only dealing with 1 sick family member, there are others here who have Lyme and have multiple kids with Lyme....
@Dahlias - had a chuckle at your hantvirus remark - a few years ago there was a ton of bat poop right outside DS's bedroom on our front porch because they love to live behind our shutters - I asked...
@Girlie - sweats/fever low grade but for DS mainly has been determined by his breathing issues. The elephant on the chest/tight band is babesia while shortness of breath is mycoplasma - we discussed...
@ Girlie - definitely save it! DS did re-treat and then at last appointment they said babesia is the one that haunts so - my take is yes, keep it at least through its expiration date. Now we never...
Hi Dahlias, Sorry to hear you've been sick with a virus. If you still have diarrhea can you push back a week on the abx and try to get past that - charcoal, probiotics etc until it passes? I agree...
DS's LLNP is using it in conjunction with another antibiotic to try and get rid of mycoplasma pneumonia along with Bart and Lyme....
When at J Clinic in DC recently, we were told the body never completely rids itself of these viruses and infections (mentioned as examples were EBV, HIV, herpes, all tick infections). Their whole...
Well, I haven't read your story to know if you will be treated for co-infections but if you late stage Lyme meaning it was missed, you probably have several infections that would be treated with...
I should have said that as well. DS tolerated mino much better than doxy and I'd forgotten but it's great for the brain blood barrier as others have noted....
@physedgirl09 - exactly what Girlie says - he would have vomited and then refused to take any more! @Rikky1 so glad things are working well for you. Reading all the different things people are doing...
You're welcome. Be sure to detox a ton and just keep trying new detox methods because you will feel it when you start it!...
Ah yes, the babesia protocol - he did it twice but luckily used malarone - I honestly don't think he would have ever taken mepron and would probably still have babesia today ;) The testing for myco...
Yes, mino should be fine and I don't think you need to spend the extra money on doxy. Our DS has been on mino since month 2 of treatment and is pretty much in remission now 3 years of pulsing it plus...
Just thought I'd drop in and post a few items from DS's appointment with C - first time with her. She was extremely thorough in her explanations. We actually met Dr. J for a few minutes when he...
As mentioned it is very common co-infection. DS literally just got back from his appt at J Clinic in DC and yet again has active mycoplasma which is asymptomatic but according to them still needs to...
Great thread - I'm glad it was started. DS has been well this past year but in Nov came to us and asked to be tested for ADHD - while he has always had tendencies but was never recommended by others...
Glad you made it to DC even without luggage and 'fessed up Girlie! I remember them saying they like to treat babs first and then bart unless bart is really affecting someone a lot. I find they are...
If your CBC is looking good, then I think you can rest easy. I know that's easier said than done, especially because these infections literally cause anxiety via their nastiness. Many folks feel...
Thanks Girlie - it can be hard to find success stories and I know they meant and still mean so much to me so I'm guessing they can help others beginning this journey have some hope too. Our fingers...
Yes, he couldn't lift a finger - would go to bathroom and not move again. Last year it would happen every Tuesday (after restarting meds on Monday) so this year, not knowing what to expect I switched...
DS tried it on a CFS day and it was amazing - he got up and went to school. After he told us this, we tried CBD which I use fairly successfully for my migraines (not tick related), but it didn't work...
Our DS is back at 100% or so he feels. He was dx in Nov 15, started with JC in late Dec. Had a really rough 1.5 years and then last July started really turning around so much so that he only missed 1...
Dahlias, are you taking a probiotic with s. boullardi? Something like Primal Defense? I'm so sorry to hear you're having troubles. I don't know how people with GI Lyme can tell if it's the disease or...
Yes, definitely. Lyme loves DS's left knee and right shoulder, mostly the knee. I think that is normal for many but probably not all since Lyme symptoms can also be so random. The tingling, pain,...
Hi Yogi, Gosh I'm sorry to hear you've relapsed but it's great you noticed and restarted treatment immediately and have had good results already. I bet that will cut down on recovery time plus you're...
DS has had a few fungal rashes - one was on upper shoulders and made his skin full of little white patches. His LLNP said to use dandruff shampoo on it and that did work. If the cream your dr gave...
I know Dahlias - I feel like everything gets stirred up when you're treating even if it's just one disease and there are others lurking. I would definitely ask her practitioner what the plan is. If...
Nic-sorry to hear that you're feeling ill again. I know DS cycled feeling really awful every 3 weeks and would have to stay home the entire week and I believe it had to do with the life cycle of Lyme...
Also, like all co-infections, it can be stubborn but if it's the only one she has, it may be easier to take care of. I'd be interested to know what your person recommends for bart....
Sure - it is hard to pinpoint which of his multitude went along with bart but there are a few that stand out: anxiety and a related psych issue (not comfortable putting it out there), he did have...
DS had a lot of this twitching before and throughout the first part of his treatment. He has been on mino for 2.5 years now (pulsed mostly). He now has no twitching anymore, but oddly he did appear...
Dahlias, gosh sorry to hear this! I'm glad you got some results. I think the plan is good because doxy will show if there's Lyme - the stiff neck is often Lyme. JC has DS treating bart with rifampin...