Hi 1000daisies! May I pm you to talk about your kids treatments:)...
Hi Chappelle! I am looking for Bart meds to start-minocycline biaxin and rifampin Then babesia stuff-probably malarone or mepron?...
Has anyone had any luck with this?...
Hi Girlie! So glad you are improving!! My sons last Armin tests were in July 2016- do you think dr. J would want more current Lyme tests? What lab does he use? Hi Walking in faith-the extreme fatigue...
Hello! I hope you all can comment and advise us. I was on the forum a while back and have been watching most of you get better:) My son got sick 2015. Diagnosed with positive Armin labs July 2016....
Hi Girlie, I’m not sure the ocd is from bartonella. He is still taking houttuynia sida jkw and gou teng. He is taking the bactrim for sibo but I thought why not carry on with it for any possible...
The guy on fixyourgut.com is very knowledgeable....
Hi everyone Does anyone have any thoughts on taking Bactrim in the summer-how sensitive to sunlight has it made you? My son has been taking it to cure his IBS/SIBO but I wonder if it would be good...
Hello I’m so sorry to hear you are suffering from GI pain. My son had excruciating GI pain, his LLND had him do a microbiology stool test at Doctors Data. It showed normal candida and many other...
My son had the feeling of pins and needles all over his body last summer and it was awful for him to put on clothes. He responded well to gou teng and of course continued treatment. Have you tried...
I am soo sorry to hear about your DS #2!! If you don’t mind, what are his main symptoms rn. Also what exactly is he taking rn as far as herbals/supplements. Did anything happen or change (supplement...
Hi Nic! My son suffered from severe constipation. So much so that I gave him a laxative but it contained inulin-a common prebiotic. This caused my son to have extreme gi pain-so bad he missed half a...
Hi Aerorose91 My son had an overgrowth if klebseilla and entrobacter clocae. Dr. Ordered Bactrim for 10 days. His GI pain is much improved....
Try fixyourgut.com, he is very knowledgeable...
The guy on the website fixyourgut.com is very knowledgeable...
I just read that Genova Lab has a comprehensive stool test that tests for zonulin in which is helpful for Dx leaky gut. It would also identify pathogenic bacteria and candida in the gut. This would...
Apparently Genova Lab's stool test iCloud's testing for zonulin which is helpful for testing for leaky gut...
Hi guys, https://www.doctorsdata.com/resources/uploads/sample_reports/Sample%20Report%20CSA.PDF Here is what a sample report looks like, do you think that would be helpful? Astro, my LLND ordered, so...
Caprylic acid might help?...
If you have a microbiology stool test done, say by Doctors Data, they can give you a pretty good analysis. My son was really suffering from awful lower intestine/colon pain, worse in the am. The test...
Hi there, My son did use antibiotics, which I think really helped a lot. But he also used Beyond Balance Bab 2, Allinia and Artesunate which may have targeted Babesia. He has been using Buhners since...
Oh Daisies, This is the most wonderful story!! I am so happy for you and your son! And I wish good health to you and your other boys!! Big hug...
So the first couple of months on antibiotics were pretty tough for us. Are you able to incorporate some detoxing into his care? I guess it might be hard if he is in hospital. Is he taking probiotics?...
Oh sorry, Where do you live? Anywhere near the pediatric llmd Dr. J? I hear he is an angel! I bet if you told his front desk that your DS was hospitalized right now he may try to squeeze you in?...
Hi I'm so sorry to year your son is going through this. My son's main sx for about 2 years has been anxiety/ocd. At his worst, he couldn't walk, read, had migraines every day for 6 months, extreme...
Hi 1000daisies! You are such a caring and wise mother, I am so sorry to hear this. What are your current symptoms, from head to toe? Maybe we can look at it this way, even though you know yourself...
https://www.doctorsdata.com/microbiology-profile/ Aha Thanks Girlie :)...
Hi 1000Daisies:) The Doctors data test is called the microbiology profile. Our LLND said it wasn't really worth it to test for parasites because they so rarely show up. After looking at the website,...
Hi Girlie! Great to hear from you! I know this is going to be a great year for you! My son’s wbc count went down to 1.1 for a while-had trouble getting it up to 2. I don’t know about 95% but just...
Hi Everyone! My son had to stop abx inAugust after a year because his wbc count was so low. He had been on Japanese knotweed, houttuynia and gou teng since March 2017, and still is. He’s started sida...
Girlie I am so excited for you! I wish you all the best and a happy healthy new year!, :yeah:...
How’s it going for everyone?...
Hi! My son has been using gou teng tinctures for about 9 months for great effect! I bought the concentrated granules a while back but was too scared to use the them-how much of the granules were you...
Hi! My son had to stop abx in August because his WBC were so low-1.1. So that was pretty scary. He has been on just Japanese knotweed, gou teng, houttuynia and sida acuta. His physical sx are...
Sounds fantastic! Do you find it is helping with anxiety?...
Oh Girlie! Thank you so much for that link! Just what we needed to hear :) Big hug!...
Hi Girlie!! I'm so happy for your improvements!! I hope you just get better and better!! Big hug Deb...
Thank you soo much for all your caring advice. You are really a wonderful angel and I was soo lucky to have the chance to "meet" you here. I wish you the most absolutely wonderful healthy future!!...
Hey Blue -so glad you had a vacay! My son has started seeing his counsellor again - someone to vent to that's not his mom. The counsellor is not Lyme literate but has given him many tricks for...
Buhner suggests woodland essences and I think the Japanese knotweed ratio is 1:5. When I switched to monteagle herbs the tincture ratio was stronger - 1:2 so I had to decrease the number of drops I...
I really enjoyed this podcast. Thank you :) I broke down in tears at about the 38 min mark when Stephen was talking about looking at the patient in front of him and trying to work on the most...
Hi Huddie I am soo sorry for your son's suffering. A big hug to you both. Would you mind saying what your son is taking right now and his main symptoms?...
I don't know if this is related but here goes. The year before my son got very sick with the usual Lyme like symptoms, his allergies went crazy. We went to an allergist that fall and he started...
Dearest Trav, You are an amazing rock star!! You are kind, intelligent and empathetic! I f you wish to whine -and it wasn't much of a whine-you are allowed to!! Big hug to you and all the sufferers...
Hi Girlie! Thanks so much for your wisdom! I really appreciate all your support and hope you are feeling better all the time. That's good advice, I will drop his drops to 15 for a bit maybe. Oh haha,...
Hi everyone, I know houttuynia isn't supposed to cause herxing -that it may in fact be caused by die off from the many other pathogens. I think I've read that the swelling of the endothelial may...
Dear Daisies, I am soo happy for you and your son!! Your family has been through soo much!! You are an amazing mom! I hope you all Keep healing and have more and more good days!! All the best!...
Thanks everyone! Middle aged mama - may I ask what your daughter is taking and what she has been diagnosed with??...
Yay Girlie!! I'm so happy for you!...
Sorry, I was at work all day. Thanks for your replies and advice!! Pirouette: great idea about GI detox. I will look into Beyond Balance again. He used Bab2 for 5 months and I thought it was great. I...