Hello all! I'm looking for a PCP for a base, to help me reach out and the help I need. (I don't know the name of type of doctors for some) The doctors I'm looking for: Neurologist Eye doctor One that...
My Lyme doctor is saying that I need an IV for treatment. My gallbladder was removed, because it stopped working. The ejection fraction rate was roughly 4%. The lowest is supposed to be around 35%....
Medical bills and spouse holding you contempt for them. I know this is a common problem. Makes me wish I would have NEVER even had surgery. Even if it was 'life saving'....
Girlie: Sorry for the late reply. Yes, I am seeing them. But a ton has been going on for me. I lost an unplanned baby, traveled to a retreat, moved, and now unpacking, dealing with trying to get on...
Jb1994: I was diagnosed with Lyme march2018. Quickly found out that I am very advanced, speculated I was born with it due to all of the health issues I had growing up. It took major stressors to get...
Yes, I'm on my 3rd one.... We were trying to avoid the 3rd one. But I am a very advanced patient.all I need now is money, so I can treat. But honestly, it might be too late for that. The activity in...
Hello, I wanna say thank you to all of you who answered my questions. I am back, but, I'm deeper in this pit of sand. The professionals are trying to up my quality of life... I'm not even 30....
Oh boy. It's be a nightmare. A huge nightmare I can't handle infant antibiotics.......
Thank you! I didn't know that they could test for mold through urine. I have a few essential oils that kill mold. As for the post being deleted, that stinks...
I don't think I've ever heard of, "cold laser therapy" As for mold, I'm not sure how to test or help my symptoms....
I think my body itself has trouble detoxing. Or, I'm so dessimated that it's easy to get overloaded. I'm on tons of suppliments/herbals right now. Detoxing alone last July/August helped stop the...
Update: I'm being forced to go to Dr j. Not that I really object. (Luckily, I already have thousands of thousands of dollars of labs already done) My biggest worry is me passing, and leaving them...
Thank you everyone for your kind words. I know I'm not alone. But I'm stuck in one room most of the day. This morning, (before the sun was up), I was told that I was being selfish by asking for...
Everyone, Thank you so much for your replies. I was referred to DR. J. The issue is, we are being kicked while we are down. seriously. My health is declining rapidly. I know now more - co-infections,...
Hello everyone, I just found out that I have very VERY advanced Lyme disease. My LLMD, (also functional medicine Dr) Dropped me from treatment with antibiotics, due to the fact that I seized for...
@bbuggy- thank you for your advice! You're right, I need to reach out to my therapist. I only have a few weeks, before I relocate. But, I should be able to see them. @sebreg- I can't go on walks. :(...
Giving up? Or Giving in? Suffering from: Late Stage, dessimated, chronic neurological Lyme disease. B.Duncani HGA Mycoplasma pneumoniae Chlamydia pneumoniae Hhv-6 *Note* I am NOT a danger to myself...
Gerd, Thank you so much for your help!...
Thank you Beth. It's been hard. I have a Lyme doctor in Virginia. I am currently being treated with a natropath. I have stopped treatment until we can figure out what the seizures are from, and...
I'm just venting, this could be a possibile trigger warning for some. So please don't read if you think you may triggered! Ok, Here it goes... So... The last 2.5 years for me have been absolute hell....
Thank you for all of the stories! It's a good way to vent! There are too many bad doctors out there. I seem to always find them. Lol Three -four of my doctor's support me, and try to help. The others...
The neurologist at least gave me an referral for an eeg, and physical therapy, so it's something. If I'm nothing but a money maker for them, I am just going to use them as a means to an end. My...
Sorry for the upcoming vent. Doctors are seriously pushing my patience. With my journey as of almost 3 months now and I've been told by 3 different specialists doctors that, " its in your head, go...
I started with seizures mother's day. I am able to avert them, or stop them, with the use of medical marijuana. Also, medical marijuana has greatly reduced my pain symptoms, and allowed me to get...
I have no idea if it is the withdrawal. I've been slowly trying to get off of the stuff. I'm a very late dessimated case, so, it could be that too. The benzos and ssris have maybe been preventing...
Today was terrible. I awoke in pain and confusion, along with the worst case of brain fog ever!! Today I managed to avoid seizures. Bit I made it through the day. I think I had a ton of absence...
I am being treated by a natropath, but yes. I've also have had seizures in the past. They said to take a break from medican until the herx lessons. I'm going to switch the lead of my Lyme treatment...
Bump?...
Mother's day: Worst herx yet. *Please see signature below to answer antibiotic and treatment protocol* I traveled for mother's day. 4.5 hours riding in the car one way. I traveled on Friday and I...
Hello everyone, I am late stage, chronic Lyme disease. Started treatment March 17th doxy, and the cowden protocol. With a probiotic, and a gi restore treatment. I also am taking vitamin c and B12...
Hi, Just diagnosed with chronic or stage 4 Lyme. Been doing cowden protocol for 28days, took a week break, now starting back up today. I started on 100mg of doxy 2xs a day. I experienced herxing the...
It seems like my symptoms are always worse on my period. But I am not in my period right now. I have those symptoms too....
Thank you so much for your reply. I've had the burning and flushing face since I was about 14 yrs old. I have no idea when I contracted Lyme. Just talking helps sometimes. I have a really high pain...
Thank you so much for your reply. I'll def ask my treating physician about the dosage. My natropath put me on a low dosage because I am chronic, without any prior treatment. My system is so...
Hello, I kinda have a question. Well, reassurance, and encouragements. 1). My symptoms are getting worse. Im on week 4 of doxy, and the cowden protocol. (Im thinking it's a herx) what do you think?...
Cowden protocol has tons of different things in it. It's kinda hard to explain. It has Pinella burbur/ parsley, sealantro, tukuna, stevia, it has more, but I can't remember. I kinda take it along...
Thank you for asking!! Yes, I started doxy Saturday, Monday morning, I woke up almost a normal eye. Now, the only problem with my eye is pressure and brurriness. Other than that, I think I'm herxing...
Doxycycline and the cowden protocol....
I'll be going on 3 weeks Monday, so, yes?...
The protocol I'm on has a detox in with it. But I don't think that it's enough. Any advice on detoxing would be great! I have Pinella/burbur in my herbals...
I am currently experiencing paranoia and demintia episodes. I just started treatment 3 weeks ago, now I'm experiencing this. Anyone suffer from it in treatment?...
Me- after testing positive, but didn't meet cdc critiria, ( 1IgM, and 3 IgG) from LabCorp, my nathropath had me do more labs and send them into MDL. It came back with 7positive bands, and 3...
Toxo? I think bluelyme is referring to toxoplasmosis. Okay, thank you! I do have a cat....
I don't have an LLMD. I was reffered to an IDMD and a rhematologest. I guess I should ask to see a neaurolgist too? I would find a LLMD to treat you. You need a specialist in Lyme disease treatment....
Toxo?...
I don't have an LLMD. I was reffered to an IDMD and a rhematologest. I guess I should ask to see a neaurolgist too?...
Thank you so much! I was going to detox today, but I don't think that is an option. The swelling is spreading even more. I'm going to have to just start my antibiotics today....
I'm going to try and make this short. Friday March 2nd, I woke up with vision loss n one if my eyes. It felt like pressure. Everything looked like ai was looking through fogged glass. I had some...
I'm trying to get in as an emergency patient tomorrow. If not, I'll have to drive an hour+ for walk-in clinics. I was told it looks like keritosis conjunctivitis. Probably a result of my hhv-6...
Doc says I'll be taking herbals around week 2-3...