I took a combination of four IV abx at a time and I felt bloody awful the entire 6 weeks. I don't think I felt any better until about a month after stopping treatment. And then it was up and down...
Pretty good thank you :) Start of COVID was exciting I got laid off and became depressed but things have really picked up again since July work wise and otherwise. I am mostly isolating though as I...
I couldn't take Rifampin or Rifabutin although I was told that Rifabutin has less side effects - among other effects I actually turned a fine tinge of yellow on Rifampin......
Hi Girlie so glad you're doing better big hugs your way....
I had a whole host of skin sensations - tingling, numbness, burning, itching, feeling from time to time like someone was driving a needle deep into me, like something is crawling on me, feeling like...
I used Phosphatidylserine supplements for a while....
I was treated a few years ago at the Lyme Mexico clinic in PV and I thought I should add some comments reflecting my opinion of my experience there in case it may help someone else. Thanks much to...
You actually don't need a doctor to sign the Armin labs req :) Unlike Igenex. You can get it yourself :) The advantage to having a doctor order it though is that you get a 24% discount. Fortunately...
Thanks Solaris. That sounds so frightening. I'm so glad you were able to get yourself to a parked state. I too fainted soon after I had parked my car at a client's site one morning and I can't help...
Hi Solaris. Can you tell me a bit more about your the near-fainting episodes? What happened? I'm asking because I fainted and I have no history of fainting prior to this....
I think that for me at least, it was just the not knowing whether it was Lyme or something else that added to the misery. For a while I was convinced that all my symptoms were a side effect of a...
Good evening from Canada :) I'm afraid I can't tell if that's a tick bite. I'm not sure you can tell if something is definitely a tick bite? But others would hopefully be able to shed more light....
Hi everyone, I'm wondering if anyone has information on a family doctor in Calgary who is Lyme friendly. Also wondering if anyone has any information on whether financial support is available at all....
You know what? I've seen some Lyme sufferers make rather paranoid claims and I feel great sympathy for them - it's likely neuro Lyme symptoms. What I absolutely can't understand or accept is you...
Hi xsilverandcoldx and welcome. Have you taken a look at the Horowitz MSIDS questionnaire? Google and you can easily find it online for free. Since finances are an issue, perhaps before you commit to...
I have Arminlabs info Girlie don't know if you want me to post it somewhere else. Armin labs cost of testing depends on who is ordering the test. If your physician orders it you get a 24% discount....
I took Doxy Hyclate. It made me nauseous so I took it with food. 200mg in the morning and 200 mg at night just before bed to not feel nausea for too long. Usually the night dose by the time I'm...
I'm planning to do an Armin labs test - going for the Borrelia Elispot. Noticed they have a separate Borrelia Miyamotoi elispot as well. Don't really have the cash to splash so wondering if the forum...
Hi all :) My vet thinks I am being a hypochondriac and thinks kitty is just fine. But I insisted and I just spent $500+ getting him tested for tick borne diseases including Borrelia and Bartonella....
Hi! Sorry for resurrecting an old thread. I'm wondering if Banzai is around or anyone knows what happened to Banzai's cat? I'm concerned whether my cat is also suffering. My cat used to hang out with...
Well I think as with any disease that's chronic or misunderstood like Lyme, you're going to have snake oil salesmen coming out of the woodwork. One small town I lived in the past - there was a guy...
Hi Hoagie. I can't remember where I found the study, if I find it again I'll link it but from what I saw 65% of Lyme patients respond favorably to antibiotic treatments. Just wondering about the "It...
Feel free to email me about the clinic in Puerto Vallarta, Mexico....
Of course. Scared me too. But I wanted to address any parasites if that's what it was. And with my doctor wanting to prescribe me anti-psychotics and sleep meds and everything but anything useful, I...
Ivermectin is an anti-parasitic not an anti-bacterial as far as I know....
When I first looked into testing I had very little information and noone to guide me. I did the whole tick disease panel from Igenex. You could get the new immunoblot from Igenex - I got that - was a...
If you go the self treatment route with Ivermectin from horse stores/ Amazon - please remember to calculate the appropriate dose per your daughter's bodyweight. Do not overdose. A human needs much...
When I didn't know what I had - but kept getting craling, itching sensations on my skin, I self treated with Ivermectin (after begging doctors for Ivermectin and getting only one dose). Now the...
Welcome BBN. I'm sorry these are the circumstance under which you are here - but the good news is your nightmare likely has a name. Once you know what you are dealing with things become so much...
You mean tested for Thalessemia? I can't remember for certain but I think I requested it when I was doing a normal blood test. If you figure it out would you mind pinging me? I'm just curious if my...
No I haven't. Is it good for yeast?[/quote] Yes that's what I was told. My personal anecdotal experience is that it's pretty amazing. I spent 30 days on an extremely aggressive IV abx protocol and...
It's genetic - inherited through my mother. Common in Mediterranean, Middle East, South East Asia, etc, areas where malaria is an issue. I don't know much about it as I don't have the background to...
Welcome HPrice. A good screening tool that my LLMD uses and swears by is the Horowitz MSIDS questionnaire. You can easily find it online through a Google search. A study found that this questionnaire...
Excellent! lol Better if it glows in the dark......
Hi wbolyard and welcome. Igenex is very commonly used especially in North America. Other labs do exist and are sometimes used - Stonybrook in NY, Armin labs in Germany, etc. You do need a physician...
IgM: 41+ 93+ IgG: 18 ++ 23 Ind 41 Ind 45 Ind 58 ++ . 93 Ind...
Anyone suffer from beta-thalessemia? And Babesia? Fortunately I seem to have avoided Babesia. The more the I thought about it, I suspect my own blood disorder may have saved me from the joys of...
Oh good to know about the Rifampin. So far my body has been a total champ with everything except IV clarithromycin. I was kind of feeling a little fear about starting the Rifampin just in case....
I was doing some reading and thinking. What kind of labs/ monitoring/ tests should I be doing while on antibiotics? My GP isn't the most pro-active but if I request something that makes sense he will...
Is Doxy 200mg a high enough dose? I thought you needed 400mg. I wonder if perhaps you should consider another LLMD? Sometimes if we don't make progress with a health professional and we have given it...
I have not seen an infectious disease doc but I did see multiple dermatologists :) Was so much fun. Should do it again. No I mean. They demeaned me, mocked me, and dismissed me. When I questioned...
And thank you too Girlie. I am struggling with absolutely necessary spending versus nice to have spending. Still trying to decide....
Thanks so much LymeSick. I think that makes sense. Although I'm struggling to understand why I was asked for this when I have never complained about sinus, ear and my rashes look nothing like EBV...
I was asked to test "IgG sub-classes 1,3 through Labcorp" - unfortunately only instructions I received and there's not been any more clarification despite requests. I'm wondering if anyone can shed...
Yep I met two patients of the Calgary ID Dr. He is able to prescribe IV abx under certain conditions only - even if he thinks it's the best treatment under other conditions as well. It is beyond...
His wait list is so long and I heard he's not taking new patients anymore. I tried to persuade my GP to talk to him at least to get advice and he did try. But ended up not following up with his...
Thank you LymeSick. Hey Girlie. "Glascis - you found a Dr to give you IV abx in Alberta - without a positive Lyme test?" No of course not. There is no Lyme in Alberta per the medical community here -...
Have you tried turmeric?...
Hi everyone, I had declined quite severely last year and finally got treatment - I did 4 weeks of IV antibiotics. Which seemed miraculously helpful until recently I started seeing some symptoms...
I'm on 4g of Rocephin daily at the moment - 7 days a week for 15 days only. However, first day I started on 2g then 3g the next day and then 4g. I am not here for long which is why after 15 days I'm...