Ljm - This d-ribose stuff is great! Been on it about 2 weeks now....
Thank you Lendi. I'm trying a new Neuro & the appt. is in June. I agree that's it's better to know for sure. We'll see if this one is a little more thorough than the last so I can put it to rest....
I started at 30mg with plans to also ramp me up to 60mg. Due to the fact that it is working and has given me some restless side effects we are keeping me at 30mg. I have the jittery, fidgety thing...
Sounds like you are tolerating it pretty good without side effects. Hopefully you'll get some relief from it soon! What dosage did your doctor start you at?...
Just got back from the opthalmologist. Eye looks fine. Wants me to follow-up with the neurologist. Here I go again with the neurologist. Says it's muscular. Last neuro I saw was useless. Guarantee...
Hi Lendi. Cymbalta is different from the SSRI's because it has 2 neurotransmitters that it deals with (serotonin and norepinephrine). Whereas the SSRI's only work with the serotonin levels. The...
Hi again Becky. Okay so you've done steroids more than once then you know the drill. Sounds like you have done a weekly dose pack in the past (since you said you never did a 14 day dose). It's good...
Hi Becky, I don't know what dosage you were on, but I have been on seriously high levels of steroids for extended periods due to my UC. The symptoms you are describing do not occur after you are off...
Hi Lendi, I take Cymbalta. It has definitely helped the Fibro. I noticed a difference within a few days. I am on 30mg. I was put on it for Fibro and was taking Lexapro for anxiety (an SSRI). I came...
Almost medfree - I have had dry eyes for years, but I'm kinda bad about consistently using the drops. My eye doctor recommended Systane last time I was there (I used to use something different). I...
Thanks for your replies Ljm and almost medfree. I just made an appt. with the eye doctor for Monday. I'm sure he'll find nothing, but it's driving me insane. I've never had the twitching go on for...
So about a month prior to being dx'd with Fibro (but after displaying symptoms of fibro) my left eye started twitching. I didn't think much of it as this has happened on and off during my life and it...
For me mucous means rectal inflammation. That may be why he is suggesting a rectal foam. I don't think any oral meds that work topically (i.e. Mesalamines, Uceris) work on rectal inflammation. The...
I never had a positive result. Both tests were negative. The first test was taken prior to me taking meds for it. When I went to the dr for the skin rash they took blood and put me on 3 weeks...
Almost Medfree, do you have any reason why you think you should be tested for Lyme (i.e. Lyme symptoms, tick bite)? I was tested in 2011 (way prior to my Fibro dx) because I had a weird rash that...
The article states that approximately 90% of people have been infected with the EBV virus. I have one of the seven illnesses listed (IBD), but then wouldn't 90% of the people have one of these seven...
I drink a ton of water daily anyway so I'm not sure I would notice unless I didn't drink a lot of water afterward. My therapist also gives me a bottle of water on my way out (and a piece of dark...
I usually don't feel great right after the massage for the remainder of that day (this even happens with spa massages). My body is super sensitive to anything and everything and I am also hyperaware...
I just want to thank those of you who recommended therapeutic massage. I wasn't sure how to find someone in my area and Sherrine gave me a link to check things out. I asked my neighbor if she knew...
I ordered it today so I'll let you know how I do. I ordered from another company because I wanted the Corvalen brand and the website you gave me was showing a brand I didn't recognize. Of course I...
Positive ANA indicates auto-immune reaction. It could be from your UC, a different auto-immune disease such as Lupus, a reaction to medication or it could mean nothing. Further serologies can be done...
Positive ANA and elevated ESR can be indicative of Lupus. A lot of your symptoms also coincide with that. I would encourage your rheumatologist to do further testing. Also, I believe there is a Lupus...
Astroman - "In a nut shell consider this: Fibro is a set of symptom from unknown causes. Fibro meds don't fix anything, its just a cover up. Its an easy way for the medical industry to stop looking...
Thanks again Sandyfeet for all your well wishes. Yes, it's quite frustrating that if the test does come back positive for antibodies to not know if it's a current or old infection. I will keep in...
WalkingByFaith and SandyFeet - Thank you both for your responses as I feel they were both supportive and also giving me options to do some more specific testing for peace of mind purposes. Just...
Girlie - "But, it's not my opinion. I'm not diagnosing you. The EM rash says it all.... An EM rash is a sign of lyme disease. From the ILADS treatment guidelines:" Girle, you are diagnosing me...
Thanks Ljm. When you say that you don't take it after 6pm, is this because it will keep you up at night? I was thinking it just helped with muscle energy. My energy has improved dramatically since...
Okay, so I'm thinking it was not really a good idea to pose my questions on this particular forum. What I'm hearing here is that no one is really open to anything other than Lyme. Although I do...
NotQuiteAntonio - Thanks for your response. What's TBI?? The only thing I know that it stands for is Traumatic Brain Injury which I definitely do not have. My gut is telling me that I don't have Lyme...
Hey Ljm2014, where did you purchase your Corvalen D-Ribose? Their website only sells to medical practitioners. I know I can probably find it out there on the net, but I want to get it from a reliable...
Hi Girlie and thank you for your response. I am not 100% on board with the bullseye definitively being Lyme in my case as it is not the only disease that presents dermatologically that way. If you...
Hello everyone. I was recently diagnosed with Fibromyalgia (2018). Though I am pretty sure this is an accurate diagnosis I have a question regarding Lyme testing being that Fibro can mimic other...
I'm not really sure why it says that, but I take both Bentyl & Omeprazole (PPI) together and so does my husband take Bentyl & Pantaprozole (another PPI). Our GI prescribes it and neither one of us...
When I was discharged from the hospital 10 years ago (my worst flare to date), I was discharged taking 39 pills per day. When hospitalized I was going 20+ times a day. My list included: 750mg Colazal...
My gastro & OBGYN have always recommended calcium. I see my GI soon so I'll see if his opinion has changed. I do supplement with vit D and magnesium along with the calcium. I do not take vitamin K,...
Imagardener2 - yeah, I've had 2 bone density tests done. One back in 2008 after I was on the 2 rounds of pred & one last year because of some pain that has since been dx'd as trochanter bursitis....
I have taken calcium with vitamin D faithfully for all the years I have had Ulcerative Colitis and even a few years prior to having it. Now there is all this new talk about calcium supplementation...
Scoobymummy - I think back to when I was discharged from my 10 hospital stay for my Ulcerative Colitis and I was taking 39 pills a day. It is crazy, but can be done. Just on my prescription meds I...
That's interesting about taking the melatonin around dinner time. I thought it was supposed to be taken right before bed. I don't think it was doing all that much for me so I have stopped taking it...
In the winter I walk on my treadmill and eliptical. I have a pool so in the summer I swim laps. Sometimes I ride my bicycle in the summer too. Today, unfortunately, I shoveled snow. And I'm already...
Lj - good to know that the d ribose can be taken long term. I know I will have to try different things and see how I react to them, but it's good to get some ideas here. Thankfully my vitamin D was...
Thanks so much Lj. Just Read some about the D-Ribose. Sounds good for muscle fatigue which I have plenty of currently. Did you take it daily and long term? I know some supplements are only suggested...
I hear you. I'm in the northeast too and I'm so done with it already. My neck and head are not happy at all today. I need to move to Hawaii, although I suppose I would still take my pain and fatigue...
Hi Sherrine. Yes, you did tell me to read the PPI thread...I must have had a fibro fog moment!! I'll look at that thread again. You have definitely stated on numerous occasions all the supplements...
Almost medfree - Thanks! would you mind telling me which supplements you specifically take for your Fibro? Sherrine - I did read the Fibro 101 a few times the first week I was diagnosed. I have read...
I have read about some of you using topicals, vitamins, trigger point therapy and massage to help manage your pain and fatigue. Since being diagnosed a month ago I have started conventional treatment...
Sherrie - Very Helpful!!...
Hi Cathy - I am doing okay with the Cymbalta side effects. Possibly because I have been on Lexapro for the past 10 years and it is in the same class, although it's a SSRI and Cymbalta is a SNRI. My...
Thanks again everyone for responding. Lj - I will look into those topicals which I am assuming are over the counter? I do tend to have snesitive skin (not just to touch but also to skin reactions...
Sherrine, thank you for your response. My bloodwork would only show elevated inflammatary markers if my ulcerative colitis was presently active/flaring. As you know from crohns, IBD has periods of...